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Anyone out there that uses the vest do you get really SOB when using it with a lung infection? I am TRYING to use it to help get this gunk up and it is making my SOB worse <img src="i/expressions/face-icon-small-sad.gif" border="0"> I lowered the pressure to 5 and it still isn't helping. I am...

I possibly have a job interview next week. I have to call the company on Monday to set a day up to go in. My question to all of you older CFers is: How to I bring up the topic of benefits without making it known I NEED them? The thing is I <b>will not</b> leave my current job if the...

We were talking about this a few nights ago in chat....well it was mentioned and it got me curious. How often do you cough? All the time, rarely? Sometimes not at all during the day? Have you always coughed, or when you were younger did you go days without coughing? I know for me I cough...

I'll be emailing you my answers tonight. I don't have the time right this second to do them, I have to get to work <img src="i/expressions/face-icon-small-happy.gif" border="0">

I was wondering if anyone on here wW/ CF has their own private insurance that is NOT through work, or through a spouse. I am thinking of looking into getting my own insurance instead of worrying about state and federal help. Skye's post about medicare really has me worried I will not be able...

Tips for an Exceptional, Superb & Powerful Life! 1.) Take a 10-30 minute walk every day. And while You walk, smile. It is the ultimate Antidepressant. 2.) Sit in silence for at least 10 minutes each day. Buy a lock if you have to. 3.) Buy a Tivo (DVR), tape your late night shows and Get more...

Ten Thoughts to Ponder for 2008 Number 10 Life is sexually transmitted. Number 9 Good health is merely the slowest possible rate at which one can die. Number 8 Men have two emotions: Hungry and Horny. If you see him without an erection, make him a sandwich. Number 7 Give a person a...

Hey all! I posted a blog about this but I haven't heard anything so I figured I would post something here too. I am having a benefit in April for Great Strides but I also want to make it an organ donor awareness benefit. For this I would like to have some stories of people post-transplant...

I was curious what "normal" blood sugar levels were. And of course what is high and low. I don't think I have CFRD or anything like that but I have heard talk of BS and the numbers totally confuse me!!!! <img src="i/expressions/face-icon-small-smile.gif" border="0"> Thanks!!!

I've been noticing alot of people on here mention that they have asthma with their CF. What I want to know is how did you figure this out? Aren't asthma and CF similar in what they do to the lungs (constrict breathing)? I'm curious because I get so SOB with everything now and it is the...

I got this as an email: A PUPPY has been born in Japan with a large, clear, love-heart-shaped pattern in his coat. The Chihuahua was born in May as one of a litter to a breeder. Shop owner Emiko Sakurada said it was the first time a puppy with the marks had been born out of a thousand...

Just curious. I know with the whole organ donor issue you have to make your relatives aware of your wishes so they can follow through with it after you die. Can we get it engraved on our medical bracelets and would that work? Does anyone know? I figure it would be there at all times as...

Ok this might seem like a strange topic but I am hoping I am not the only one to have to do this. My parents divorced when I was 2 and I was diagnosed at 5 so needless to say my Dad was never eally around for the brunt of CF treatments while my mom was. He always visits me when I go in the...

BESIDES being home from my lock up I ..... GRADUATED!!!!!!!!!!!!!!!!!!!!! from college again that is <img src="i/expressions/face-icon-small-smile.gif" border="0"> I "graduated" last Friday when I was in the hospital but I am proud to say I graduated with a 4.0 <img...

I'm on lockup again!! My numbers were all down and worse than they were the last time I was admitted in October. My FEV1 is 27% and my O2 is 90% sitting and 85-86% walking. But he told me 8-10 days in and I will be out by Christmas, as long as we don't hit any snags. So I'll be online if...

Anyone talk to her lately and see how she is doing? I hope better now that they got that lake out of her lungs!!!! <img src="i/expressions/face-icon-small-happy.gif" border="0"> If anyone has talked to her let us know how she is doing <img src="i/expressions/face-icon-small-smile.gif"...

I know alot of people on here are on Pulmozyme. What do you think of it? I called my DR again today because last night and today I have a fever along with everything else. They put me on Pulmozyme to thin everything out since the HTS and mucinex are not working. And they want me to come in...

I was wondering if anyone knew where I could get a pulse-ox reader. The really tiny ones that the PT usually has you wear during the 6 minute walk test. I want to get one to wear during the day to check myself. And also for exercising (well when I can exercise again). I don't mind paying for...

for those of you who use TOBI my nurse gave me some advice tonight to help the tightness. She said to add the Albuterol in the TOBI when doing it. She said to do my atrovent and saline then do airway clearance. Then do my TOBI with the albuterol and I should not get the tightness. Unless of...

I have no idea what is going on here. I just started my TOBI last night and all day today after I cough I start shaking uncontrollably. It is so weird. I feel like my heart is racing and my whole body is shaking but not visibly shaking - if that makes sense. So on top of not being able to...