Cystic Fibrosis Forum (EXP)

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  1. J

    Feedback on my site

    I'm thinking about making some changes to the website, and would really like some honest feedback. 1. I think the homepage is too cluttered. Not much I can do about changing the Navigation bar at this point as yahoo is suppose to be releasing a "drop down" option soon. So until then, I am...
  2. J

    Feedback on my site

    I'm thinking about making some changes to the website, and would really like some honest feedback. 1. I think the homepage is too cluttered. Not much I can do about changing the Navigation bar at this point as yahoo is suppose to be releasing a "drop down" option soon. So until then, I am...
  3. J

    We are 6 months

    <img src="http://i136.photobucket.com/albums/q196/jmraysbrook/6mosspringpictureindividualand3.jpg"> <img src="http://i136.photobucket.com/albums/q196/jmraysbrook/6mosspringpicture3ontummy.jpg"> <img src="http://i136.photobucket.com/albums/q196/jmraysbrook/6mosspringpicture3onabench.jpg"> <img...
  4. J

    We are 6 months

    <img src="http://i136.photobucket.com/albums/q196/jmraysbrook/6mosspringpictureindividualand3.jpg"> <img src="http://i136.photobucket.com/albums/q196/jmraysbrook/6mosspringpicture3ontummy.jpg"> <img src="http://i136.photobucket.com/albums/q196/jmraysbrook/6mosspringpicture3onabench.jpg"> <img...
  5. J

    Have I helped you with SSI/SSDI info?

    I've got some more requests for info on SSI/SSDI that I've emailed out in the past and need help from anyone who I sent the "infection" log to, the social security go by and the activity log to. My Dell desktop that I have all this information onto has crashed (yes, I have BAD computer...
  6. J

    Have I helped you with SSI/SSDI info?

    I've got some more requests for info on SSI/SSDI that I've emailed out in the past and need help from anyone who I sent the "infection" log to, the social security go by and the activity log to. My Dell desktop that I have all this information onto has crashed (yes, I have BAD computer...
  7. J

    Carryover from another topic

    It was previously posted in another topic and I wanted an opportunity to discuss it, but didn't want to start a rampage on that post so here we are..... <i>And as far as the natural form of birth control, you're close, but just slightly off target. Biologically speaking, it's actually a natural...
  8. J

    Update on Mark's bleeding

    I called the CF clinic this AM and requested the pulmonary doc. on call get ahold of me. He called back about 1 hr later. I told him what was going on and he said we could come to the U.W. or since we were quite a bit away, we could go to our local ER to get a chest X ray and sputum culture...
  9. J

    Couging up blood

    For the first time, Mark is coughing up blood. He's previously had sputum that has a few streaks here and there, not a lot by any means. And the streaking has been infrequent.... The last few days, Mark has been coughing up sputum that is ONLY blood. Clearly there is mucus in there, but it's...
  10. J

    LouLou

    I found my food journal, just wondering if you want some examples of what I ate to try and get in my 3000-4000 calories a day???
  11. J

    New pictures AND videos!!

    Jennifer and a few others were asking me the other day about new pictures and I realized I haven't updated the site with pictures in a LONG time. Since I'm snowed in tonight, I found some time to do it. Here is the page with new pictures: <a target=_blank class=ftalternatingbarlinklarge...
  12. J

    OT but need to vent and some advice

    and I welcome any leagal advice/recommendations for when I go to court. On 9/29/06, my mom and I went for a walk with the babies in the TD and we took my big dogs with us. My dogs are really well behaved on walks, so I was just exicted to get out of the house and to get them out of the house...
  13. J

    More tax information

    I've recieved a few more PM's requesting me to email out the excel spreadsheets for food deductions. They were released in the most recent CF newsletter, so for those who don't know, I thought I'd post the direct link here: <a target=_blank class=ftalternatingbarlinklarge...
  14. J

    Great Strides letter

    Anyone care to share the first sentence or two of your great strides letter? I'm having a hard time coming up with an intro this year. I want to address how blessed we are to have treatments like we do, made possible by the research of the CF foundation, which has enabled Mark to remain...
  15. J

    Great strides letters

    Anyone care to share the first sentence or two of your great strides letter? I'm having a hard time coming up with an intro this year. I want to address how blessed we are to have treatments like we do, made possible by the research of the CF foundation, which has enabled Mark to remain...
  16. J

    chest X ray

    Just got mark's chest X ray results back, <i>"there are hcanges representative of progressive chroinic cystic fibrosis, since most recent prior PA and Lateral chest of 7/18/06, whth evidence of diffuse bronchiectasis with fluid endobronchial stasis versus superimposed alveolar consolidative...
  17. J

    New pictures on the website

    Posted some new pictures, no videos yet though because I"m having problems getting them loaded. <a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosismaleinfertility.com/Babies_are_born_Pictures.html">http://www.cysticfibrosismalei...are_born_Pictures.html</a>
  18. J

    More tax deduction information

    For those who are asking, you can now get the tax deduction information here: (including the excel spreadsheet!) <a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosis.com/newsletter/2007/jan/2ed/tax_tips.html ">http://www.cysticfibrosis.com/...jan/2ed/tax_tips.html...
  19. J

    How are all the momma's doing?

    Just a tuesday morning check in!! <img src="i/expressions/face-icon-small-smile.gif" border="0">, any new pictures to share? Are you measuring your stomach with a measuring tape??? (this was one of my fav. things to do! Wrote it down in all the baby books so they can see how fat they made me...
  20. J

    New pictures

    I'm hoping this works <img src="http://i136.photobucket.com/albums/q196/jmraysbrook/moms4mospicture1.jpg"> <img src="http://i136.photobucket.com/albums/q196/jmraysbrook/4mospicture3.jpg"> <img src="http://i136.photobucket.com/albums/q196/jmraysbrook/4mospicture.jpg">
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