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I've been trying to find information on B. cepacia so that we can try to "avoid" it with our daughter. Is it as prevalent as pseudomonas? Are any of you infected and for how long?

My infant daughter wasn't born with meconium ileus - does this mean she most likely won't suffer from intestinal blockages later in life? Many individuals have mentioned surgery or colostomies on this site...are there symptoms prior to obstruction other than pain? That is, are stools...

Just needing more reassurance and insight!! As many have noted, my 5 week old has CF (ddf508) and also has severe pancreatic insufficiency. Her enzymes are working wonderfully as she's gained almost two pounds since 7/3! The doctor said she'll most likely be diabetic by her late teens...who else...

My daughter's CF doctors have prescribed the use of an Albuterol inhaler after her CPT treatments. Has anyone else been advised to do so? She doesn't wheeze and seldom coughs, but their rationale is that it will "open" the airways to allow her to expell mucous more easily.

We found out today that our 1 month old is severely pancreatic insufficient and will most likely develop diabetes during her teen years. Is management of this form the same as "regular" diabetes? Would appreciate hearing about your personal stories...

As a mother to a CF positive infant, I can't help but to notice that children still succumb to this illness. This is despite the new treatments which have increased the average lifespan. Perhaps the answer is obvious to others, but what causes their "early" passing?

Does anyone know the incidence of liver transplant as it relates to a history of meconium ileus? Does anyone have experience (self or other) with liver failure and they didn't have digestive issues other than soft stool? Thanks...

Has anyone been advised to avoid swimming pools or waterfalls/ponds in their yard? We are landscaping our backyard and had planned to install a waterfall feature, but I'm concerned this may breed pseudomonas...thoughts?

I know that each CF individual is affected differently, however, does anyone know if there is any way to predict CF severity? I know that df508 is the most common mutation but is it "better" to have two different mutations? I've seen posts from CF individuals in their 40s and 50s and am curious...

My infant daughter was just diagnosed with CF. Both my husband and I are f508 carriers and genetic screening showed she is a homozygous carrier. She was in the hospital for the past week due to a cough - which we are now wondering if it was viral related as she had eye discharge prior to the...