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I gave Damien 3 ounces of boost plus today for the first time. He is almost a year. I want to know if anyone else gives these suppliments to there child at that age. He seemed to be ok and hes taken a nap and played . I dont see any my tummy hurts signs yet and ill watch hes pamper for signs of...
Well its been nearly a week since Damien went to clinic and I still can barely bring myself to post this topic. Damien gained weight again. Hes doc said he was doing qa little better even but on the other hand she didnt discuss she flat out said were gonna go ahead with a mickey button and said...
Well were leaving tonight to go to clinic tommorow I have a feeling Damiens weight shall be the issue and probebly some touch base on hes fev.5 it is always a hard day for me to stay lighthearted. but i see im not the only one who symbolizes clinic day as a "what we wish we never had to do " day...
Well Damien gets to go for infant pulmanory function August 11th hes Fev1. I have read up on this study and I am wondering what other infants forced expitory volume is. Also if I may what lung damage or possible daqmage occured. Dam ien had a lung collapse at 4 months weighing 7 pounds and has...
Well Damien is having nutritional faluire. that is what the nutrionist calls it. He has gained a pound a month fer the last 4 months. he is 8 months and weighs 14 pounds. he was 2 months preemie. He isnt losing weight but yet still they have set us up with a g.i doc. They want me to start tube...
Damiens doc has put him on Zantac for reflux. In addition hes weight gain is low. I was wanting to see if anyones child had put on more weight after starting on Zantac. I was informed that enzymes somtimes dont work correctly when there is to much acid in stomach. And sometimes Zantac helps and...
Damien has improved. They have let him off Oxygen while he is awake. Back on when he is sleeping. Dr Radford has said she wants to wait till he is a little bigger then there gonna put him in a enclosed case I guess. She said she wants to look at hes lung.X rays are fuzzy. I wonder what this test...
Starting to give Damien a drop of oil of oregeno on heel. visit to clinic in 4 days I will Record hes saturation then for starting point. and record monthly.Wish us Well
Damien got phenumonia and was in i.c.u with chest tube and was on the machine that makes you breeth.We went home on oxygen and 6 weeks later we are on more than we started with. Has anyone else had there baby on oxygen? Does anyone feel like sharing ? I have to say,Im starting to worry and want...
What is a Bronch and My babys throught culture brought back Staph and a G I bactiria what is that.Doc giving me a call 3 to five days put us back on bacitim and right lung no change and there is now aspot on left , I guess aspiration caused it did I understand that correctly?Can anyone tell me...
I wonder why I dont think to ask questions that really i shouldnt have to think to ask. What is it that they are looking for in hes throught and when will they tell me what they found ? I really think they should be a little more forthcoming with me I feel like im always left in the dark and...
I read the replies and this forum thing is wonderfull. Of course everyone is not the same and not everyone will benifit from the change in those specific drugs like Damien has but when there is a change for the better i wonder if anyone else could 2. and when i hear a reply that has coinsided...
My Damien was put on Creon5 at 1 month they wanted 1 ounce a day weight gain. Next visit on month later he barely gained in fact was a little under a half a ounce a day and he had so much cramping he would bring hes legs up and curl up and make this hurt noise that i knew was nothing but pain he...
A better morning and afternoon for Damien. Thank heaven we are going to see hes nutritionist at c.r.s tomorow. I did lower hes calories just a touch and it hes tummy looks less extended,even though he is eating 4 ounces at a time still . I was so happy when we switched to pancreacarb ms-4 from...
I READ YOUR POSTS ALL THE TIME LOOKING 4 SOMTHING I RELATE 2 OR SOME SORT OF ANSWER 2 MY MANY QUESTIONS BUT I AM STARTING TO REALIZE THERE ARE VERY FEW DEFINITES I HAVE A 4 MONTH OLD BORN 2 MONTHS PREMATURE EXTENDED TUMMY CF DIAGNOSIS WITHIN A MONTH HE WEIGHS 8 POUNDS NOT BAD BUT WE JUST GOT...
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