Cystic Fibrosis Forum (EXP)

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  1. H

    This might be a really stupid question... but I had to ask

    I hear a lot about lung transplants for those with advanced lung disease; even (less often) about liver transplants. For those with severe PI and CFRD... do they ever do pancreas transplants? I have never seen this mentioned. Or do they just never do these because there are meds to replace...
  2. H

    OK, a couple questions about... gas (still not used to this)

    I see the gas and poop talk all over the place and honestly, well, I am totally used to talking about gas, poop and any other type of body function you could imagine... I have 10 and 11 yr old boys after all. <img src="i/expressions/face-icon-small-tongue.gif" border="0"> Just still not used to...
  3. H

    Does your center give you this information?

    Emily's center (Central CT CF Center) sends out a quarterly newsletter and in this issue the directors of the pediatric and adult programs included summaries of information they learned at the annual national CF conference... among that, a summary of how our center measures up against the...
  4. H

    Emily will be getting a (HillRom) vest... what to expect?

    Emily had her clinic appt. yesterday and the pulmonary dr. wants her to start using a vest. She showed us what they looked like and fitted her for one but I would like to know what to expect... how difficult are they, typically, to get used to? (I know all kids are different but some heads up...
  5. H

    Newly dx'ed 7yr old w/ severe growth failure, testing other 2 kids. Anyone relate?

    I will 1st apologize in advance for how long I know this will be. <img src="i/expressions/face-icon-small-blush.gif" border="0"> I need to get this all out to people that I know will understand and this is my first opportunity to do so... I am still just starting to come out of the early stages...
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