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Not sure if anyone knows what PostSecret is, but it looks like one published this week was of a mom who has a kid with CF <img src="i/expressions/face-icon-small-sad.gif" border="0"> <a target=_blank class=ftalternatingbarlinklarge...

So this is news to me, but maybe it's not to everyone else. Ralphs/Kroger has the CFF (various chapters) listed under their Community Contribution Program. You can go to their website, and create an account. Then register your Ralphs/Kroger card and you can select your Community Contribution...

Anemia in Cystic Fibrosis: Incidence, Mechanisms, and Association With Pulmonary Function and Vitamin Deficiency Anemia in Cystic Fibrosis: Incidence, Mechanisms, and Association With Pulmonary Function and Vitamin Deficiency <a target=_blank class=ftalternatingbarlinklarge...

<b>Statistical limitations of % ideal body weight as measure for nutritional failure in patients with CF </b> Again, I don't have the full article but this is a great abstract. I'm 99% sure your CF doc subscribes to the Journal of Cystic Fibrosis so hopefully if you're interested in reading...

many of you have heard me speak about the Denmark way - doing IV antibiotics for PA regardless of how you are feeling. Danish patients live well into their 50s, which is fairly different than other European countries. Anyway, here's an interesting study examining an aspect of the Denmark...

<a target=_blank class=ftalternatingbarlinklarge href="http://www.biomations.com/ ">http://www.biomations.com/ </a> one of my friends on Twitter (@PhoebeColeman) created a medical animation short created for a BFA Thesis. "I wish to create medical animations to bridge the gap between the fine...

Pharmaxis Announces Positive Results of Phase 3 Cystic Fibrosis Trial Pharmaceutical company Pharmaxis (ASX: PXS - News; Nasdaq: PXSL - News) is pleased to announce positive results of its recently completed international Phase III trial of Bronchitol(TM) in people with cystic fibrosis. The...

Severe bone demineralisation is associated with higher mortality in children with cystic fibrosis Are you getting your annual DEXA scans per CF Foundation recommendations? <a target=_blank class=ftalternatingbarlinklarge href="http://snipurl.com/h9ko5">Severe bone demineratlization associated...

<a target=_blank class=ftalternatingbarlinklarge href="http://noexcusesnoexcuses.blogspot.com/search/label/Fluidosomes-tobramycin">http://noexcusesnoexcuses.blog...Fluidosomes-tobramycin</a>

<a target=_blank class=ftalternatingbarlinklarge href="http://snipurl.com/gxvh8">http://snipurl.com/gxvh8</a> (there's a PDF for the article) <b>Better use should be made of current cystic fibrosis treatments </b> These are the views of Dr Brian O'Sullivan, University of Massachusetts...

Jerome Groopman, Annals of Medicine, "Open Channels," The New Yorker, May 4, 2009, p. 30 There is no text version of the entire article, but you can register for the New Yorker (free) to see the full text of the article. here is a summary: ABSTRACT: ANNALS OF MEDICINE about the development...

Such fascinating research regarding PA <a target=_blank class=ftalternatingbarlinklarge href="http://noexcusesnoexcuses.blogspot.com/search/label/iron">http://noexcusesnoexcuses.blog....com/search/label/iron</a>

Lung Disease at Diagnosis in Infants with Cystic Fibrosis Detected by Newborn Screening. Study shows even newly diagnosed CFer's <b>with no symptoms have lung involvement</b> <a target=_blank class=ftalternatingbarlinklarge...

Great WSJ article about financial planning for those with a chronic illness.... <a target=_blank class=ftalternatingbarlinklarge href="http://noexcusesnoexcuses.blogspot.com/search/label/financial%20planning">http://noexcusesnoexcuses.blog...l/financial%20planning</a>

I was going to post this on my blog here at cf.com, but it seems to not be listed under the blog section. Not sure what happened. Anyway, I have a podcast discussing careers and dating with CF. It's a bit tricky to get to, but I have instructions on how to get to it on my blog <a...

Not following my blog? Here's what you're missing..... <b>Genetic Modifiers Play a Substantial Role in Diabetes Complicating Cystic Fibrosis </b> <a target=_blank class=ftalternatingbarlinklarge href="http://noexcusesnoexcuses.blogspot.com/search/label/News">My...

A great meta- analysis has been conducted about long term azithromycin use.... i have posted the article on my blog. also i've posted several news stories about CF on the blog as well - head's up for those who don't subscribe to my RSS feed/ visit regularly / follow me on twitter <a...

It's with a very heavy heart that I announce the passing of my long time friend, Julie Moritz. She was 27 with CF. To my understanding she recently had a liver tx just 2 weeks ago. Ugh. So incredibly sad.... I'll miss you Julie.