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possibly starting a new route of treatment and putting my daughter on xoepenex inhaler instead of xoepenex nebulizer and wondering if anyone has had this experience and what are your thoughts???

just curious to know how long anyone has had the mucoid form of pseudomonas....our doc at johns hopkins says it takes approx. 9 years to turn from non-mucoid to mucoid..but i was interested in seeing how long anyone has dealt with the mucoid version of pseudomonas????

my little one is due next week for her first bronch and iv antibiotic hospital stay......we have been fighting staph for 2 months, now the culture came back normal, she sounds find thru the stethescope...but...she has developed a junkie, wet cough (her first time) and the chest xrays show 3...

Does anyone have any suggestions for how i can help my 18 month old get thru dr. appts???? She has developed an extreme aversion to anything "medical" related, ie: getting weighed, stethescope, checking height, elevators, parking garages, white coats, etc... It is to the point that is is nearly...

sooo, my daughter has been having elevated liver enzymes since january (over 100, ast, alt and over 200 alk phos), long story short...we changed cf clinics, and i feel confident we made the right choice. she was put on ursodiol right away at her new clinic (in april) but... i just received news...

my daughter is 16 months old and we recently changed cf clinics. along with the change in docs came a bit of change in regimen and i am wondering if it is having an affect on her eating habits????.....she was taken off viokase powder and put on enzymes before and after the night feeding. this...

i am getting very concerned with my daughters feeding tube at night....last night was the second time i have went to check on her in the middle of the night and the feeding tube is wrapped her neck!!!! she is constantly getting it tangled around her legs and she will cry out and i will go in...

i am thinking of transferring my daughter to johns hopkins cf center....it is about an hour and 1/2 farther from my home then my current center which is 1.5 hours away...but i have been contemplating switching centers...i love our doc but she has had some serious personal health issues over the...

i was wondering approx. how many people are on reglan who have cf?? my daughter has been on it since she was 4 months old. i have been reading several articles citing liver and kidney problems associated with this medication. the pharmacy pamphlet that comes with it states "not for use in...

recently i have noticed my daughter is having a large BM very early in the morning before she is awake....is this normal??? i didnt think we were supposed to have BM's when we were sleeping. at first i thought she was waking up and then having them, but this morning she had one and was fast asleep.

just curious if this has happened to anyone else.....my daughter just stopped her first round of TOBI yesterday..and all day today I have developed this "tickling cough" in my throat. When i was administering her TOBI treatments of course i couldnt help but breathe some of it in and today I...

does anyone else have problems with family members feeling that you are too overprotective with your cf child???

my daughter is 13 months old and her throat culture came back with positive pseudomonas...they said it is the non-mucoid type for now, but they started her on tobi and cipro. i am totally devistated!! they said this will never truly go away and it is the number one cause of lung deterioration in...