Cystic Fibrosis Forum (EXP)

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    Happy Birthday Paula (pnhuffman)

    <img src="i/expressions/musicnote.gif" border="0"> <img src="i/expressions/rose.gif" border="0"> Happy Birthday Paula <img src="i/expressions/rose.gif" border="0"> <img src="i/expressions/musicnote.gif" border="0"> Hope you have a wonderful day !!! <img src="i/expressions/heart.gif"...
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    Happy Birthday Sonia (ladybug)

    <img src="i/expressions/musicnote.gif" border="0"> Happy 30th. Birthday Sonia...<img src="i/expressions/present.gif" border="0"> <img src="i/expressions/heart.gif" border="0"> joni
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    Up-date on Melissa's Bronch...

    I spoke to Melissa before for a few minutes.. The bronch went well (although she said she wouldn't want to have another one anytime soon !!! lol) Her throat is a little sore.. Dr. said there wasn't much junk, took a sputum sample and cleaned her up a little .. (hope i got this info right...
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    A letter from the Archbishiop for organ donation...

    Check out my blog...<img src="i/expressions/heart.gif" border="0"> joni
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    If you pray or would like to give words of encouragement..

    Please check out prayer request, under topic specific... Thanks <img src="i/expressions/heart.gif" border="0"> joni
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    Quick ?

    I was told today that it is ok to do your albuterol and your pulmozyme while vesting.. (was told in the past not to do pullmo w/ vest) This is a new center for me, and a lot is different (i think for the better) How do you guys do it? I have also just started Tobi and will start HS after...
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    Are you (or your child) getting the most out of your treatments?

    I have recently changed centers, and have been retrained in the use of the vest.. To my surprise, i actually started to get junk up.. I had always said: " i'm not productive" wrong, i just needed to be taught the correct way of doing it... Amy (bittyhorse) had answered the post "how do you feel...
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    Anyone hear from Jem?

    Has anyone heard from Jem? I am starting to worry.. joni
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    I'M HOME SWEET HOME !!!!!!!!

    Just wanted to let you guys know i just got home !! Yippie... Let out early for good behavior ... Little disapointed my pfts didnt change <img src="i/expressions/face-icon-small-sad.gif" border="0"> but glad to be back home ... Thanks to everyone for your thoughts, prayers, phone calls and...
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    Happy Birthday to Pepe

    <img src="i/expressions/musicnote.gif" border="0"> Happy Birthday Gina <img src="i/expressions/musicnote.gif" border="0"> XOXOXOXOXOXOX <img src="i/expressions/heart.gif" border="0"> joni
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    Marjolein in for a quick...

    In one of the last posts on the thread for Marie, Marjolein explains about a hosp.stay/surgery ... sounds like a quick procedure, but i thought it would be nice to let her know we are thinking of her....<img src="i/expressions/heart.gif" border="0">
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    Want to be retested...Genotyped

    I was genotyped 11 years ago, and would like to be retested... I would also like to have my 17 & 14 y/o sons typed... I was told by ins. co. to have our drs.write letters to the ins. co. to see if it will be covered.. I would like to know exactly what the name of the test is, so that, that's...
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    Katy...

    Just wondering how Mike is doing? Hope and Pray all is going well...P.S. You guys are so lucky to have each other... God Bless... Joni 55 y/o f w c/f
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    C/F Walk was today ...

    We did the walk today at the Holtsville Park and Zoo, New York.. I have a small team, but i think we raised about $2500.00 (not bad for about 6 people on my team) It was packed so hopefully we raised lots of money !!!! Joni 55 y/o f w c/f
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    Healing Mass Up-date Incredible Day !

    Just wanted to say I prayed for all of you that asked and lots of people that didn't ...I spent the entire day at St. Cabrini Shrine, in New York City.. .I held the names the entire day... Throughout the mass and the healing... I held up your names and also verbally asked for God/Jesus'...
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    Healing Mass Up-date

    Just wanted you all to know i prayed for all of you that asked and lots of people that didn't ... i had two lists w/me w/many names on them
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    Healing Mass Up-date

    Just wanted you all to know i prayed for all of you that asked and lots of people that didn't ... i had two lists w/me w/many names on them
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    Healing Mass Tomorrow

    I will hopefully be going to a healing mass at Mother Cabrini Church in N.Y.C. tomorrow.... If you would like me to say a name at the mass, please post it here.. first name is fine..... I will be praying for everyone of us.... God Bless..Joni 55 y/o f w c/
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    Any news on Amber?

    Has anyone heard any news on Amber.. Iv'e been thinking about her... Joni 55 y/o f w c/f
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    Question to Advair users

    I have pneumonia now and was watching a commercial about advair, at the end of the ad it mentioned something about risks of pneumonia. I use advair 250/50 and was wondering if anyone knows any information on this.. Joni 55 y/o f w c/f
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