Cystic Fibrosis Forum (EXP)

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  1. A

    other inhaled antibiotics?

    Dear buddy amikacin and tobi both r from same family..doc dont want to use it for inhalation bcoz they want to use it as iv injection..if u use amikacin for inhaltion u will develop resistance and will be in trouble .it is used as 2nd line of defence when you dnt respont to oral and inhaled...
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    How to

    if you have 10% saline solution u can dilute it with .9 % i am doing this bcoz i have no option..u can ask a pharmacy to make it for you.
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    How to

    I make 7% saline on my own .I buy pure salt from scientific store..( ..i use to get calculated amount of salt auto claved in glass bottle ..then i ask some one to hold 500ml .9 saline bottle i use gloves and take a 20 ml sryinge and open syring from back.. .add salt in syring .. then...
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    so frustrated...major drop in lung function so fast

    Dont worry about it .The more u worry,the less u live.Stop thinking about it.. Apart fom that ..have u tried tobi...or other inhale antibiotic ,docs say there are more effective than oral cleaning lung is more imp..jst try to learn autogenic drainage..it will help you
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    Starting creon

    After starting creon your weight and health will improve..you will not have fatty and frequent stools. I advice you take creon in mid of meals.. If you take creon and dont eat , then you can have stomach ace that why i take creon immediately after meal and adjust my dose accordinly to how much...
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    Which air compressor do you use in the United States? Travelling there- need help!

    Hello. There is a website justnebulizers.com ..from here you can order nebuliser to any US address. i buy pari lc sprint, lc star ,lc plus from them http://justnebulizers.com/pari-vios-reg-pro-nebulizer-compressor.html this will be nearest possible replacment to ur nebuliser system( ie...
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    need ideas for help gaining weight for my lil one.

    It will provide extra calories ..Make coconut or MCT a part of daily diet..If you want him to gain weight eaisly ,give him cononut as ,coconut has mct.. Apart from.that it will also help.in mainting weight as cfers lose weight frequently. I am also under weight..ti gain weight its quiet...
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    need ideas for help gaining weight for my lil one.

    hello Weight gain can be done by eating food in coconut oil,as it does not require enzyme to digest conut oil Apart fr that it is recommended to have five meals and correct creon dose b/w meal child shoud go to potey 3 times max if creon dose is correct.. there is a supplement of medium...
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    CF and natural options... ???

    Hello Please understand that cf is not cureable but some supplements can reduce ur problem They are 1)Iron . most cf are iron deficient iron deficient ppl produce more cough(watery white cough) 2) protein ..whey isolate ..cn improve ur health .by improving glutathione level protein also imp...
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    26, just diagnosed, advice/input/kind words welcome.

    Cf have bad lungs..Did u get genetic testing .it will confirm..ur doubts
  11. A

    Cough question

    Ear problem is not common .some people suffer sinus. Tobramycin can cause ringing ineae Cough is main problem wih cf..one need to clen chest once or twice daily by 3% saline dnase using nebulzers Cough will never dissappear..u produce more coughf when u have strong infection.. U should ask...
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    3 Year Old Just Diagnosed - Help!

    U can open creon capsule and it to food ..mix it with food...grains should not chewed
  13. A

    Looking for Help/Clarification on CF

    Sweat choride does not give correct result..It cn be confirmed by dna test.I even.dont had any family history.n sweat choride nvr worked..u cn give her coconut oil ..It will be be absorbed wothout enzym
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