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That is wrong...why would they wait til health is declining before giving them a wish? Why not let them do it when they are healthy to enjoy it? We are waiting for Ashlee's til she really knows what she wants. JANE: I am interested in knowing what they did for the bedroom makeover...Ashlee...

That is wrong...why would they wait til health is declining before giving them a wish? Why not let them do it when they are healthy to enjoy it? We are waiting for Ashlee's til she really knows what she wants. JANE: I am interested in knowing what they did for the bedroom makeover...Ashlee...

That is wrong...why would they wait til health is declining before giving them a wish? Why not let them do it when they are healthy to enjoy it? <br />We are waiting for Ashlee's til she really knows what she wants. <br /> <br />JANE: I am interested in knowing what they did for the bedroom...

I am so happy to see this post! I was going to post this weekend about any advice for a nissen/g-tube for my 15 mos old daughter. She will be having her surgery on Tuesday, next week. it is coming so quick! So I am VERY interested in seeing what other posts will come up <img...

I am so happy to see this post! I was going to post this weekend about any advice for a nissen/g-tube for my 15 mos old daughter. She will be having her surgery on Tuesday, next week. it is coming so quick! So I am VERY interested in seeing what other posts will come up <img...

I am so happy to see this post! I was going to post this weekend about any advice for a nissen/g-tube for my 15 mos old daughter. She will be having her surgery on Tuesday, next week. it is coming so quick! So I am VERY interested in seeing what other posts will come up <img...

I have also read that it is 15-20% of babies w/ CF will have MI. Both my daughters were born w/ MI. Ashlee was able to get hers out with multiple enimas within a few days. She was still in the NICU for 3 weeks trying to gain weight and be on full feeds. Jordin had surgery, then an ostomy and...

I have also read that it is 15-20% of babies w/ CF will have MI. Both my daughters were born w/ MI. Ashlee was able to get hers out with multiple enimas within a few days. She was still in the NICU for 3 weeks trying to gain weight and be on full feeds. Jordin had surgery, then an ostomy and...

I have also read that it is 15-20% of babies w/ CF will have MI. <br />Both my daughters were born w/ MI. <br />Ashlee was able to get hers out with multiple enimas within a few days. She was still in the NICU for 3 weeks trying to gain weight and be on full feeds. <br /> <br />Jordin had...

That sounds awesome! I so wish we had this at our clinic! I am going to tell them about it <img src="i/expressions/face-icon-small-blush.gif" border="0">) Thanks for sharing!

That sounds awesome! I so wish we had this at our clinic! I am going to tell them about it <img src="i/expressions/face-icon-small-blush.gif" border="0">) Thanks for sharing!

That sounds awesome! I so wish we had this at our clinic! I am going to tell them about it <img src="i/expressions/face-icon-small-blush.gif" border="0">) Thanks for sharing!

How was the feeding clinic? Is that what you went to? We were referred...not sure if we will end up going, it depends on the insurance which wouldn't cover for Ashlee...so not sure. I am just curoius what kind of things they do... Thanks!

How was the feeding clinic? Is that what you went to? We were referred...not sure if we will end up going, it depends on the insurance which wouldn't cover for Ashlee...so not sure. I am just curoius what kind of things they do... Thanks!

How was the feeding clinic? Is that what you went to? We were referred...not sure if we will end up going, it depends on the insurance which wouldn't cover for Ashlee...so not sure. I am just curoius what kind of things they do... <br /> <br />Thanks!

Is she on any reflux meds? My daughter is jsut over a year and has terrible reflux and it is getting worse over the past few weeks. She vomits almost every day now too at least once and it is also due to gagging it seems. Sounds about the same as your daughter. She has eating all kinds of food...

Is she on any reflux meds? My daughter is jsut over a year and has terrible reflux and it is getting worse over the past few weeks. She vomits almost every day now too at least once and it is also due to gagging it seems. Sounds about the same as your daughter. She has eating all kinds of food...

Is she on any reflux meds? My daughter is jsut over a year and has terrible reflux and it is getting worse over the past few weeks. She vomits almost every day now too at least once and it is also due to gagging it seems. Sounds about the same as your daughter. She has eating all kinds of food...

My daughter takes them with applesauce. She just got switched from Pancrecarb. We have not had this issue w/ applesauce. I got lucky and she has always used applesauce with no problems. Have you ever tried the flavored applesauces? They have many dif ones <img...

My daughter takes them with applesauce. She just got switched from Pancrecarb. We have not had this issue w/ applesauce. I got lucky and she has always used applesauce with no problems. Have you ever tried the flavored applesauces? They have many dif ones <img...