Cystic Fibrosis Forum (EXP)

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  1. S

    To those on kalydeco---Lauren (your thoughts, please)

    Did you call your insurance company? What exactly did you ask? I just got new insurance but don't know what to ask them about covering it.
  2. S

    Insurance with no job

    My husband hates his job and wants to quit. We have enough money where he could take some time off and regroup. I stopped working last year due to my health but have not applied for SSDI (there was thought I might go back next year) Is it possible for my husband to buy private insurance for...
  3. S

    Insurance with no job

    My husband hates his job and wants to quit. We have enough money where he could take some time off and regroup. I stopped working last year due to my health but have not applied for SSDI (there was thought I might go back next year) Is it possible for my husband to buy private insurance for...
  4. S

    Mold inspection

    My best friend just bought a house and the same thing happened. Small amount of mold found in the attic, had mold samples done and it was in the whole house. This was a newer house too! They refused to buy until the owners treated it and the new tests came up clear.
  5. S

    Mold inspection

    My best friend just bought a house and the same thing happened. Small amount of mold found in the attic, had mold samples done and it was in the whole house. This was a newer house too! They refused to buy until the owners treated it and the new tests came up clear.
  6. S

    African safari

    It has been my dream to go on an African safari. We have done a lot of research and were all set to book one this week. It now looks like I can't bring my Vest. What would you recommend as a close alternative? I really don't want to not go because of it. Also, has anyone been on a safari and...
  7. S

    African safari

    It has been my dream to go on an African safari. We have done a lot of research and were all set to book one this week. It now looks like I can't bring my Vest. What would you recommend as a close alternative? I really don't want to not go because of it. Also, has anyone been on a safari and...
  8. S

    770 approved!!!!!!!!!

    Can anyone tell me how realistic it is to hope for a drug like this for df508 in the next five or so years? I feel like they have tried before, only to have the trial not work so they try another combination of drugs. I am beginning to lose hope that any of it is working. For those of you that...
  9. S

    770 approved!!!!!!!!!

    Can anyone tell me how realistic it is to hope for a drug like this for df508 in the next five or so years? I feel like they have tried before, only to have the trial not work so they try another combination of drugs. I am beginning to lose hope that any of it is working. For those of you that...
  10. S

    Not working, what to do?

    I would love to make quilts! Do you hand sew or use a machine? How did you get started?
  11. S

    Not working, what to do?

    I would love to make quilts! Do you hand sew or use a machine? How did you get started?
  12. S

    Not working, what to do?

    I have thought about volunteering more. I volunteer at my school one day a week. I think I have just gotten into a funk and can't get out. I feel so worthless. I also doesn't help that I am very shy so it is hard for me to take initiative to do stuff out of my comfort box. Thanks for the...
  13. S

    Not working, what to do?

    I have thought about volunteering more. I volunteer at my school one day a week. I think I have just gotten into a funk and can't get out. I feel so worthless. I also doesn't help that I am very shy so it is hard for me to take initiative to do stuff out of my comfort box. Thanks for the...
  14. S

    Not working, what to do?

    I have taken the year off from my job as a teacher because it was just too hard. My lung function is 40ish and I am getting horrible hives and joint pain still, so the lack of working is not really helping. My question is what do you all do during the day? This is more for people without kids. I...
  15. S

    Not working, what to do?

    I have taken the year off from my job as a teacher because it was just too hard. My lung function is 40ish and I am getting horrible hives and joint pain still, so the lack of working is not really helping. My question is what do you all do during the day? This is more for people without kids. I...
  16. S

    Joint Pain

    I also get horrible joint pain. I get pain in joints I didn't even know could hurt! Does anyone also get hive like bumps with it? I get them on my arms and legs and they are just as bad as the joint pain. So far, only prednisone is helping. I have also tried plaquneil but it didn't do anything.
  17. S

    Joint Pain

    I also get horrible joint pain. I get pain in joints I didn't even know could hurt! Does anyone also get hive like bumps with it? I get them on my arms and legs and they are just as bad as the joint pain. So far, only prednisone is helping. I have also tried plaquneil but it didn't do anything.
  18. S

    Disability Question-Handicap Parking

    Keep in mind, if your doctor refuses to let you get one, it could be because it is illegal, not that he is mean. You are supposed to be disabled the whole year, not just in winter months. So, if you have trouble walking 200 ft in winter I would think that would qualify you for a temporary...
  19. S

    Disability Question-Handicap Parking

    Keep in mind, if your doctor refuses to let you get one, it could be because it is illegal, not that he is mean. You are supposed to be disabled the whole year, not just in winter months. So, if you have trouble walking 200 ft in winter I would think that would qualify you for a temporary...
  20. S

    Horrible Arthritis

    I get the exact same arthritis that Stephanie above mentioned. Nothing works but prednisone. When I am not on prednisone the only thing that dulls the pain to make it bearable is Advil. I have been tested for a ton of autoimmune diseases but nothing popped up. I think it is just another bad part...
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