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Terrifying, I only had a picc line inserted once, but it is a major anxiety feeling for sure. I hope the drs. can give you something to relieve this.

I love my Vest, I don't know what model it is and jealous of the pink vests out now!! lol.

My dr. believes my O2 is dropping at night-so he is ordering a pulse ox study. But, the office wants me to 'research' where to go. I've called local hospitals and durable medical equipment suppliers and nobody has a clue as to what this is. Someone please advise as to where I can get this done...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>carly23</b></i> Im starting pulmonary rehab to raise my fev and oxygen numbers to where i will not need oxygen i understand this will not happen over night and i understand itll be hard but im very Strong minded and will give...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>rhonda21</b></i> MY daughter is 26 now and pfts usually in her 50's. When should she consider pulmonary/cardiac therapy?</end quote> My dr. referred me in 2009 to Pulmonary Rehab (while I was the *youngest* there, lol) it def. helped...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>garanza</b></i> <span class="hps">I would like</u> <span class="hps">information</u> <span class="hps">on</u> <span class="hps">pulmonary</u> <span class="hps">rehabilitation</u> <span class="hps">centers</u> <span class="hps">where...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Vampy</b></i> man that is a scary thought!! i was always told to talk to your pulmonologist, center, where ever you go, they can help with some things</end quote> Thank you.

It can be stressed related or it can be a reaction to the TOBI. I personally have not had that side effect with TOBI, what I experienced was wheezing, etc. moreso then normal :/ I hope you can find an answer here.

Have you layed upside down? I know it sounds crazy but I have to do that on my couch and the mucus just drains out. Very gross but sometimes it helps..but if you aren't bringing up anything at more..it sounds like it's really stuck in there..esp. with the Vest (I use it too) and all the other...

Medicare is avail. to those on Social Security Medical..I'm on it. And it comes out of my Social Security check each month. You don't have to be just 65...everyone pretty much explained it well. I hope you get some help soon to relieve your pain.

Yes, it is. I thought it was just my computer screen... Thanks for sharing this post, OP!

thanks Jen I will mention the study to my dr. I bet it drops too at nigth and that explains why I am not sleeping and wake up with constant headaches. The reading was at rest-I had just walked into the drs. office.

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>RytheStunner</b></i> The cutoff for Medicare covering your O2 is indeed 88, so you're right, they wouldn't cover that in your case. And a lot of companies do just "rent" out their durable medical equipment. I don't own my feeding...

Thanks everyone! I am looking! lol.

You *really* never get rid of PA. It kind of stays with you. I do not have CF, (see my signature) but I've cultured PA most of my life. Our lungs (CF or other lung disease) are a breeding ground for bacteria i.e. Psuedomonas...maintance medication was very important to me (still is) As far as...

Thanks Joni-I am looking!

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>rosesixtyfive</b></i> This is the most ridiculous thing I have ever heard. I would switch doctors, but I would also be sure that someone on the board of administrators of the medical practice hears about her behavior. She should have...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Printer</b></i> The world is full of Doctors that can't even spell CYSTIC FIBROSIS much less dX or treat it. It is not a suprise that you found one, Bill</end quote> This is true Bill! I agree!

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Havoc</b></i> How resistant is your pseudomonas?</end quote> I can't take Sulfur or Pcn and I"m pretty limited to what medications I can take (there is one thru a iv or picc line I had last summer that worked wonderfully..but she...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JustDucky</b></i> They should pay for all of the stuff you mentioned....I am on Medicare as my primary insurance. They paid for every piece of equipment that I have needed so far without a hitch.. The O2, they will cover if you drop...