Cystic Fibrosis Forum (EXP)

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  1. S

    NEW Cepacia information from Boston University

    Hello: <br /> <br />Found reading my Alumni publication it's woth a look. Please cut and past the following. <br /> <br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.bu.edu/bostonia/summer10/goldstein/ ">http://www.bu.edu/bostonia/summer10/goldstein/ </a><br /> <br />Best...
  2. S

    News Article On Adult Onset CF

    Great Post!!! It gets my goat when one of the experts on this forum / website says some people with a mild & severe mutation may never have any complications from this combination!!!! We'll that fries my wires and as Blondy's song goes "one way or another I'm gonna get ya get ya" well that's...
  3. S

    News Article On Adult Onset CF

    Great Post!!! It gets my goat when one of the experts on this forum / website says some people with a mild & severe mutation may never have any complications from this combination!!!! We'll that fries my wires and as Blondy's song goes "one way or another I'm gonna get ya get ya" well that's...
  4. S

    News Article On Adult Onset CF

    Great Post!!! <br /> <br />It gets my goat when one of the experts on this forum / website says some people with a mild & severe mutation may never have any complications from this combination!!!! We'll that fries my wires and as Blondy's song goes "one way or another I'm gonna get ya get ya"...
  5. S

    Robert321 ( Mother Passed--Please read re-write)

    Hello All: How cruel life can be! It just is way out of the normal person's life so to have this along with the baggage of being a CFer you are at a place no one can comprehend. My thoughts are with you do not get down and never quit. Best to you! Steve
  6. S

    Robert321 ( Mother Passed--Please read re-write)

    Hello All: How cruel life can be! It just is way out of the normal person's life so to have this along with the baggage of being a CFer you are at a place no one can comprehend. My thoughts are with you do not get down and never quit. Best to you! Steve
  7. S

    Robert321 ( Mother Passed--Please read re-write)

    Hello All: <br /> <br />How cruel life can be! It just is way out of the normal person's life so to have this along with the baggage of being a CFer you are at a place no one can comprehend. My thoughts are with you do not get down and never quit. Best to you! <br /> <br />Steve
  8. S

    Chat Anyone ????

    Hello: I'm going to try however my typing skills and chat experience are hurting. Sorry for missing tonight however I do have some questions beings I just got CF HAHA! Best Regards, Steven
  9. S

    Chat Anyone ????

    Hello: I'm going to try however my typing skills and chat experience are hurting. Sorry for missing tonight however I do have some questions beings I just got CF HAHA! Best Regards, Steven
  10. S

    Chat Anyone ????

    Hello: <br /> <br />I'm going to try however my typing skills and chat experience are hurting. Sorry for missing tonight however I do have some questions beings I just got CF HAHA! <br /> <br />Best Regards, Steven
  11. S

    Munchausen by Internet - a phycological disorder

    Hey Landy: Good to here from you too bad it's on this POS topic. One question what is an "MBI friend"? On your second point I'm kinda still green on the CF forum beings the late DX so it's nice to see the veterans on this forum open our eyes. It seems some of the home cure posters are gone...
  12. S

    Munchausen by Internet - a phycological disorder

    Hey Landy: Good to here from you too bad it's on this POS topic. One question what is an "MBI friend"? On your second point I'm kinda still green on the CF forum beings the late DX so it's nice to see the veterans on this forum open our eyes. It seems some of the home cure posters are gone...
  13. S

    Munchausen by Internet - a phycological disorder

    Hey Landy: <br /> <br />Good to here from you too bad it's on this POS topic. One question what is an "MBI friend"? <br /> <br />On your second point I'm kinda still green on the CF forum beings the late DX so it's nice to see the veterans on this forum open our eyes. It seems some of the home...
  14. S

    Praying for Eva (65_redroses)

    Eva: Such a talented and beautiful person my heart and tears hit hard. This progression is hard to comprehend and the steel of your desire in the blogs telling us of your intimate experiences has touched all. We are again the witness of such a cruel fate that you have painted so elegantly in...
  15. S

    Praying for Eva (65_redroses)

    Eva: Such a talented and beautiful person my heart and tears hit hard. This progression is hard to comprehend and the steel of your desire in the blogs telling us of your intimate experiences has touched all. We are again the witness of such a cruel fate that you have painted so elegantly in...
  16. S

    Praying for Eva (65_redroses)

    Eva: Such a talented and beautiful person my heart and tears hit hard. This progression is hard to comprehend and the steel of your desire in the blogs telling us of your intimate experiences has touched all. We are again the witness of such a cruel fate that you have painted so elegantly in...
  17. S

    Praying for Eva (65_redroses)

    Eva: Such a talented and beautiful person my heart and tears hit hard. This progression is hard to comprehend and the steel of your desire in the blogs telling us of your intimate experiences has touched all. We are again the witness of such a cruel fate that you have painted so elegantly in...
  18. S

    Praying for Eva (65_redroses)

    Eva: <br /> <br />Such a talented and beautiful person my heart and tears hit hard. This progression is hard to comprehend and the steel of your desire in the blogs telling us of your intimate experiences has touched all. We are again the witness of such a cruel fate that you have painted so...
  19. S

    If you were my age, with CF, what would you do differently for your health?

    Yes this site is the best for finding out every detail and out come of the disease. I agree exercise and compliance can be challenging when you're sick or not up to par however there are no alternatives I've seen posted. Yes I'm a bit lucky on my own account however it still involved exercise...
  20. S

    If you were my age, with CF, what would you do differently for your health?

    Yes this site is the best for finding out every detail and out come of the disease. I agree exercise and compliance can be challenging when you're sick or not up to par however there are no alternatives I've seen posted. Yes I'm a bit lucky on my own account however it still involved exercise...
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