Search results

Similar to breatheforher's daughter, I also have an underarm port. I love it because it can't really be seen unless you have a really low cut tank on and also have your arms lifted. Access is easy as long as you get an extension on the IV line when it's accessed. I've only found one negative so...

Similar to breatheforher's daughter, I also have an underarm port. I love it because it can't really be seen unless you have a really low cut tank on and also have your arms lifted. Access is easy as long as you get an extension on the IV line when it's accessed. I've only found one negative so...

Similar to breatheforher's daughter, I also have an underarm port. I love it because it can't really be seen unless you have a really low cut tank on and also have your arms lifted. Access is easy as long as you get an extension on the IV line when it's accessed. I've only found one negative so...

Here are the different sources of oxygen: Compressed gas cylinders - the green and silver cylinders Liquid oxygen - comes in big tall containers that look like R2D2 Oxygen concentrators - a machine that uses sieve beds to strip the nitrogen out of room air leaving almost pure O2 Here are some...

Here are the different sources of oxygen: Compressed gas cylinders - the green and silver cylinders Liquid oxygen - comes in big tall containers that look like R2D2 Oxygen concentrators - a machine that uses sieve beds to strip the nitrogen out of room air leaving almost pure O2 Here are some...

Hey Midnight. The procedure is somewhat risky but when the lungs are failing it is usually the only option left except for passing on. Most people make it through the surgery and the recovery. There is risk for acute and/or chronic rejection of the lungs as the years pass. But there are many...

Hey Midnight. The procedure is somewhat risky but when the lungs are failing it is usually the only option left except for passing on. Most people make it through the surgery and the recovery. There is risk for acute and/or chronic rejection of the lungs as the years pass. But there are many...

Great question. At age 23 I had a massive infection, went into right heart failure, was put on oxygen full time and listed for transplant. Here I am still almost 20 years later. Why??? Not because I was transplanted. It was because of exercise. To get ready for transplant I started exercising...

Great question. At age 23 I had a massive infection, went into right heart failure, was put on oxygen full time and listed for transplant. Here I am still almost 20 years later. Why??? Not because I was transplanted. It was because of exercise. To get ready for transplant I started exercising...

Hey Roy, It's Stephanie. I met you at the Festiv-ale beer tasting in Indianapolis. I'm SO HAPPY to hear that Julie got transplanted. I know she had been struggling for some time. Congrats to you both. Now you can really live the dream. Peace, Steph

Hey Roy, It's Stephanie. I met you at the Festiv-ale beer tasting in Indianapolis. I'm SO HAPPY to hear that Julie got transplanted. I know she had been struggling for some time. Congrats to you both. Now you can really live the dream. Peace, Steph

Hey Vampy. I would seriously consider looking into a new doctor and/or center. Maybe if you said what city you are in others could make some recommendations. You keep doing what you know is best for your body. After years of living with this diseases and it's related symptoms no one nows your...

Hey Vampy. I would seriously consider looking into a new doctor and/or center. Maybe if you said what city you are in others could make some recommendations. You keep doing what you know is best for your body. After years of living with this diseases and it's related symptoms no one nows your...

My advice is to talk to Julie who has been helping with disability issues for us for quite a while. THANKS JULIE!!! Beth Sufian is also a great contact. Beth is an attorney with CF and serves as the free legal hotline for the CF Foundation...

My advice is to talk to Julie who has been helping with disability issues for us for quite a while. THANKS JULIE!!! Beth Sufian is also a great contact. Beth is an attorney with CF and serves as the free legal hotline for the CF Foundation...

My advice is to talk to Julie who has been helping with disability issues for us for quite a while. THANKS JULIE!!! Beth Sufian is also a great contact. Beth is an attorney with CF and serves as the free legal hotline for the CF Foundation...

Hey Shannon, Sounds like we are in a similar boat. I'm on O2 at night also but not during the day. Like you my exacerbations are getting more frequent. Due to the increased frequency & severity of infection, I was evaluated last August for transplant. They also wanted me to be evaluated...

Hey Shannon, Sounds like we are in a similar boat. I'm on O2 at night also but not during the day. Like you my exacerbations are getting more frequent. Due to the increased frequency & severity of infection, I was evaluated last August for transplant. They also wanted me to be evaluated...

Hey Shannon, <br /> <br />Sounds like we are in a similar boat. I'm on O2 at night also but not during the day. Like you my exacerbations are getting more frequent. Due to the increased frequency & severity of infection, I was evaluated last August for transplant. They also wanted me to be...

VIVA LA REVOLUTION!!! Definitely protest all the way to the top. That is not excusable in my opinion. I always insist on manual CPT when I'm in. As mentioned above we can do "the Vest" at home. I really don't care what the studies say. When I'm sick nothing clears me out better than CPT. When...