Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Search results

  1. P

    Chronic Chest Pain

    Hey Mag, <br /> <br />I've had pleurisy before and it usually happens when I have an infection. Hurts like crazy especially when you breath (which just happens to be all the time). <br /> <br />Usually my pain subsides after I've been on the antibiotics for a bit. Don't recall exactly how many...
  2. P

    Significant decline after evaluation...

    Hey Haley. Very cool on keeping the PFTs. Hope you have a good appointment. Stay strong my dear. Peace, Steph
  3. P

    Significant decline after evaluation...

    Hey Haley. Very cool on keeping the PFTs. Hope you have a good appointment. Stay strong my dear. Peace, Steph
  4. P

    Significant decline after evaluation...

    Hey Haley. Very cool on keeping the PFTs. Hope you have a good appointment. Stay strong my dear. <br /> <br />Peace, <br />Steph
  5. P

    Significant decline after evaluation...

    Hey Haley. That sucks about the pneumonias and decline. If I were you I'd contact my transplant team and update them on what's going on with you. That way they can get updated PFTs or whatever they might want to update your LAS. At least that's my understanding of how things should work when...
  6. P

    Significant decline after evaluation...

    Hey Haley. That sucks about the pneumonias and decline. If I were you I'd contact my transplant team and update them on what's going on with you. That way they can get updated PFTs or whatever they might want to update your LAS. At least that's my understanding of how things should work when...
  7. P

    Significant decline after evaluation...

    Hey Haley. That sucks about the pneumonias and decline. If I were you I'd contact my transplant team and update them on what's going on with you. That way they can get updated PFTs or whatever they might want to update your LAS. At least that's my understanding of how things should work when...
  8. P

    acapella

    Also splint the cheeks as much as you can so you don't lose the force of your exhalation in your cheeks. Have fun on the trip <img src="i/expressions/face-icon-small-smile.gif" border="0"> Steph
  9. P

    acapella

    Also splint the cheeks as much as you can so you don't lose the force of your exhalation in your cheeks. Have fun on the trip <img src="i/expressions/face-icon-small-smile.gif" border="0"> Steph
  10. P

    acapella

    Also splint the cheeks as much as you can so you don't lose the force of your exhalation in your cheeks. <br /> <br />Have fun on the trip <img src="i/expressions/face-icon-small-smile.gif" border="0"> <br />Steph
  11. P

    Another Transplant!

    WOO HOO. Go James!
  12. P

    Another Transplant!

    WOO HOO. Go James!
  13. P

    Another Transplant!

    WOO HOO. Go James!
  14. P

    running after a transplant

    Hey Dude, You might want to get in touch with Ronnie Sharpe. His is a runner and has CF. He's still pre-tx but probably has lots of good contacts that may help. His blog site is <a target=_blank class=ftalternatingbarlinklarge href="http://www.runsickboyrun.blogspot.com/...
  15. P

    running after a transplant

    Hey Dude, You might want to get in touch with Ronnie Sharpe. His is a runner and has CF. He's still pre-tx but probably has lots of good contacts that may help. His blog site is <a target=_blank class=ftalternatingbarlinklarge href="http://www.runsickboyrun.blogspot.com/...
  16. P

    running after a transplant

    Hey Dude, <br /> <br />You might want to get in touch with Ronnie Sharpe. His is a runner and has CF. He's still pre-tx but probably has lots of good contacts that may help. His blog site is <a target=_blank class=ftalternatingbarlinklarge href="http://www.runsickboyrun.blogspot.com/ <br...
  17. P

    Tx Center - Duke vs Cleveland vs Barnes St Louis

    Thanks Jess, Great blog. Just sent you an email <img src="i/expressions/face-icon-small-smile.gif" border="0">
  18. P

    Tx Center - Duke vs Cleveland vs Barnes St Louis

    Thanks Jess, Great blog. Just sent you an email <img src="i/expressions/face-icon-small-smile.gif" border="0">
  19. P

    Tx Center - Duke vs Cleveland vs Barnes St Louis

    Thanks Jess, <br /> <br />Great blog. Just sent you an email <img src="i/expressions/face-icon-small-smile.gif" border="0">
  20. P

    Question about Prednisone

    Hey Allisa, Muscle and joint soreness are very common for me. I also have trouble sleeping and my mind races on higher doses. Stomach issues also crop up so I take Prevacid when I start a burst. Predisone is a useful drug but does have a lot of downsides. Let me know if you have any questions.
Top