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If your sugars are high, you pee out a lot of nutrients ("spilling protein"). So not only is not treating sugars above 140 dangerous to the lungs, but it can impact weight/nutrition as well. So the weight gain should be gradual (other CFer's can chime in), but mine was over a few week period...

losing weight is another hallmark of CFRD. once you give her insulin, most likely she will start to put weight on

Australia absolutely has socialized medicine, and people are still lobbying the government to bring Kaly to their country. https://www.facebook.com/groups/343431685698805/ This is a group called Kaly for AUstralians and they don't anticipate access to Kaly until 2014. The European Commission...

If you don't have health insurance in the US, Vertex will give you the medication under their assistance program. If your co-pay is too high when you have health insurance, Vertex will give you the med as well. We just have free market solutions (aka not under government decree) to such issues...

Yup, I've had the test 1/year for the past 10 years. And it missed my diabetes. I got a false negative from the oGTT. It wasn't until I did a 2 week diary of my sugars that we saw how things really were. My endo aptly described the difference like this - the OGTT is simply a snapshot of your...

how have the sugars been the past 2 days?

just know that PA can negatively impacted many types of patients. many skin infections are caused by PA (so I would never let a surgeon with CF touch me), Oncology and HIV patients are susceptible to PA infections, etc. if you colonize MRSA, you might have trouble gaining employment because...

I wish I had better news for you. But truly, she will be healthier for the early diagnosis. SO many CFer's go undiagnosed for years on end, and their lungs pay such a high price. Your little one won't have such a struggle....

Those #s are definitely consistent with CFRD. It's a good thing you have caught it - treating will help her have a better prognosis and lifespan

Ya she probably has CFRD. That's a high #. As we have discussed in your previous threads, a # above 120 2 hours after the first bite of a meal is abnormal. CFRD isn't fun, but better to treat it then to let it go and negatively impact your daughter's lung health and life span.

Maybe you need to be treated with IV antibiotics for pneumonia, instead of PO. You might need something stronger to kick it. Have you had sputum cultures conducted to make sure that they are using the right antibiotics for the bacteria you have in your lungs? What type of nebs are you doing...

More big questions: what treatments are you doing in between pneumonias? What drugs are you inhaling? What type of mucus clearance are you doing? Manual CPT? The Vest? Flutter? Your home care can influence your exacerbations as well

I said biotech - not pharma. If you don't know the difference, please google it. Biotechs on the list you showed - #15 Amgen (largest biotech in the world) is US. #15 Genetench is US (recently purchased by Roche, but 100% US for 26+ years), #32 Genzyme (recently purchased by Sanofi, but 28...

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I'm curious if ppl in the US correlate American access to medications such as Kalydeco (how many threads do we have on this board about no access to Kaly in Australia, Canada), certain enzymes such as Zenpep, HFCC (aka the Vest) and many other life-altering/extending devices/medications. We are...

ya 132 is definitely insulin resistance. you need a week or two's worth of tests to see a real pattern. lunch and dinner may be different. even snacks. some sugars vary by time of day, and of course food you are eating.

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mistyjo</b></i> I'm getting ready to start the process of checking my daughters blood sugars for a few days. They want to make sure she isn't cfrd. We have to test at 3am, first thing before breakfast, 2hrs after a meal. For a few...

they say 180 is the guideline, but with 140+ causing bacteria to flourish, I think this is a no-brainer threshold. Treatment goals for tight control of CFRD are 140, or should be (i guess some endo's vary). But why not give your lungs a fighting chance? Anyway, Type 1 diabetes is your beta...

Most docs have no clue what an amazing significance this finding is. Would love to hear what your docs think, Jonathan. FIGHT ON!

Anything over 140 causes the bacteria in your lungs to grow more. I was getting anywhere from 150 to the occasional 200 after doing a 2 week diary. I had more frequent exacerbations the past 18 months, 2 new cavities (I had only had 1 cavity my whole life up until that point) and my energy was...