Cystic Fibrosis Forum (EXP)

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  1. M

    So confused....no diagnosis...stop looking?

    Good idea to try saline rinse. I use one daily myself. We had practiced with her last spring but didn't get real far. I'll pull it out and start trying again. The nasal spray she attempts to use is Flonase prescription. We also use saline spray and Vaseline or bacitracin 2x/day to help avoid...
  2. M

    So confused....no diagnosis...stop looking?

    Oh, it's so hard to know if it's post nasal drip. We don't have luck with nasal spray for allergies b/c she gets such bad nose bleeds that we can't use them long before taking a break to let her nose heal.
  3. M

    So confused....no diagnosis...stop looking?

    Just listened to DD cough through her Vest treatment. We've reduced hypertonic saline to 1x/day per dr order in case that's irritating her airway. I hate that dry cough....sounds so irritating for her. She said she can't help it and it feels so annoying and like there's gunk in her throat...
  4. M

    Daughter has PCD- Primary Ciliary Dyskinesia

    Hi. Just checking in. Any answers yet?
  5. M

    So confused....no diagnosis...stop looking?

    Hi. Just an update. DD was chosen by an organization to receive free whole genome sequencing!! We feel very fortunate and thankful. Hoping to finally get some answers. About 60 more days to wait..... Anyone know what would cause a new dry cough? Gets worse as day progresses. In evening...
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