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i'm not a med skipper (post-tx that's a SUPER bad idea, lol) and i was never much of a treatment skipper pre-tx, but i AM a huge proponent of the occasional "break for life." if i want to go out and i know that it will cost me some energy, i'm still likely to do it. if it's a little crowded on...

julie is absolutely right, per usual. there are various ways to get "financial aid" (heck, there are even CF-centric organizations that give help, like the BEF), so please don't consider all of those doors closed. i'll be upfront and admit that i personally have zero experience in that area, but...

julie is absolutely right, per usual. there are various ways to get "financial aid" (heck, there are even CF-centric organizations that give help, like the BEF), so please don't consider all of those doors closed. i'll be upfront and admit that i personally have zero experience in that area, but...

julie is absolutely right, per usual. there are various ways to get "financial aid" (heck, there are even CF-centric organizations that give help, like the BEF), so please don't consider all of those doors closed. i'll be upfront and admit that i personally have zero experience in that area, but...

i had a lot of health problems starting at around 15 -- after that i was always in the hospital a couple times a year even if my lung function would typically bounce back. i didn't stop working, and ended up going to high school, college, law school, and then working for a few years before my...

i had a lot of health problems starting at around 15 -- after that i was always in the hospital a couple times a year even if my lung function would typically bounce back. i didn't stop working, and ended up going to high school, college, law school, and then working for a few years before my...

i had a lot of health problems starting at around 15 -- after that i was always in the hospital a couple times a year even if my lung function would typically bounce back. i didn't stop working, and ended up going to high school, college, law school, and then working for a few years before my...

i will talk to the tx team about this and whether it would be okay for me to join in/help organize. it's a great idea, though!

i will talk to the tx team about this and whether it would be okay for me to join in/help organize. it's a great idea, though!

i will talk to the tx team about this and whether it would be okay for me to join in/help organize. it's a great idea, though!

my upper left lobe was completely dead pre-tx, but the docs didn't consider taking it out despite the fact that it was generally agreed that without that lobe f-ing everything up transplant wouldn't be immediately necessary. probably a bit different, though, b/c my lungs without that lobe were...

my upper left lobe was completely dead pre-tx, but the docs didn't consider taking it out despite the fact that it was generally agreed that without that lobe f-ing everything up transplant wouldn't be immediately necessary. probably a bit different, though, b/c my lungs without that lobe were...

my upper left lobe was completely dead pre-tx, but the docs didn't consider taking it out despite the fact that it was generally agreed that without that lobe f-ing everything up transplant wouldn't be immediately necessary. probably a bit different, though, b/c my lungs without that lobe were...

this might not be super helpful, but lobectomy/lung reapportionment surgeries are super uncommon in CF, b/c most of the time the damage isn't isolated to one part of the lung and since it is a full-lung disease docs often don't want to mess with removal only to have more problems arise later...

this might not be super helpful, but lobectomy/lung reapportionment surgeries are super uncommon in CF, b/c most of the time the damage isn't isolated to one part of the lung and since it is a full-lung disease docs often don't want to mess with removal only to have more problems arise later...

this might not be super helpful, but lobectomy/lung reapportionment surgeries are super uncommon in CF, b/c most of the time the damage isn't isolated to one part of the lung and since it is a full-lung disease docs often don't want to mess with removal only to have more problems arise later...

lauren, it's the liters, which then changes the percent. it has to do with the mouthpiece and something about the cylinder, but i was so mad by the time they finally did my PFT the other week that i just sort of narrowed my eyes and nodded while it was explained to me. it was one of those "so...

lauren, it's the liters, which then changes the percent. it has to do with the mouthpiece and something about the cylinder, but i was so mad by the time they finally did my PFT the other week that i just sort of narrowed my eyes and nodded while it was explained to me. it was one of those "so...

lauren, it's the liters, which then changes the percent. it has to do with the mouthpiece and something about the cylinder, but i was so mad by the time they finally did my PFT the other week that i just sort of narrowed my eyes and nodded while it was explained to me. it was one of those "so...

i am an attorney, which means that i did 7 years of higher education (4 years undergrad, 3 years law school). not everyone can/wants to do that, however, so you shouldn't just assume that all "good" jobs require grad degrees. honestly, as tesorotiffa mentioned, college is REALLY helpful. if not...