Cystic Fibrosis Forum (EXP)

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  1. N

    Meeting the surgeons

    i met with a surgeon too, obviously, since i go to the same center as lex. but the surgeon i met with ended up not being the surgeon who did my surgery -- it was another member of the team. i did go to a q & a session with the guy who ultimately gave me my lungs and i asked a couple of general...
  2. N

    Meeting the surgeons

    i met with a surgeon too, obviously, since i go to the same center as lex. but the surgeon i met with ended up not being the surgeon who did my surgery -- it was another member of the team. i did go to a q & a session with the guy who ultimately gave me my lungs and i asked a couple of general...
  3. N

    Anyone in the Denver Area

    hi there. i went to childrens (dr. frank accurso, although occasionally saw jeff wagner) from diagnosis until i was 22 years old. love, love, LOVE the team there and can't say enough about the nurses, doctors -- really everyone. they are extremely proactive, a huge research center, and they now...
  4. N

    Anyone in the Denver Area

    hi there. i went to childrens (dr. frank accurso, although occasionally saw jeff wagner) from diagnosis until i was 22 years old. love, love, LOVE the team there and can't say enough about the nurses, doctors -- really everyone. they are extremely proactive, a huge research center, and they now...
  5. N

    Anyone in the Denver Area

    hi there. <br /> <br />i went to childrens (dr. frank accurso, although occasionally saw jeff wagner) from diagnosis until i was 22 years old. love, love, LOVE the team there and can't say enough about the nurses, doctors -- really everyone. they are extremely proactive, a huge research center...
  6. N

    Transplant Center question???

    Pitt is widely known for accepting cepacia patients. I know of at least one woman with cepacia who received her lungs there. You can check out her blog at <a target=_blank class=ftalternatingbarlinklarge href="http://jamiebug.blogspot.com/">http://jamiebug.blogspot.com/</a>
  7. N

    Transplant Center question???

    Pitt is widely known for accepting cepacia patients. I know of at least one woman with cepacia who received her lungs there. You can check out her blog at <a target=_blank class=ftalternatingbarlinklarge href="http://jamiebug.blogspot.com/">http://jamiebug.blogspot.com/</a>
  8. N

    Transplant Center question???

    Pitt is widely known for accepting cepacia patients. I know of at least one woman with cepacia who received her lungs there. You can check out her blog at <a target=_blank class=ftalternatingbarlinklarge href="http://jamiebug.blogspot.com/">http://jamiebug.blogspot.com/</a>
  9. N

    possible drug affects.

    all cephalosporins (the class of abx that ceftaz is in) give me severe allergies. i get flu like symptoms and run very high drug fevers, which i would imagine could cause seizures like what you describe. i also get a burning itch throughout my body and especially in my neck area. no good. hope...
  10. N

    possible drug affects.

    all cephalosporins (the class of abx that ceftaz is in) give me severe allergies. i get flu like symptoms and run very high drug fevers, which i would imagine could cause seizures like what you describe. i also get a burning itch throughout my body and especially in my neck area. no good. hope...
  11. N

    possible drug affects.

    all cephalosporins (the class of abx that ceftaz is in) give me severe allergies. i get flu like symptoms and run very high drug fevers, which i would imagine could cause seizures like what you describe. i also get a burning itch throughout my body and especially in my neck area. no good. <br />...
  12. N

    YEAH! Columbia!

    yeah, i was kind of surprised it was ranked as low as it was, but i think facilities have a lot to do with it. the doctors at col pres are nothing short of amazing, as you know.
  13. N

    YEAH! Columbia!

    yeah, i was kind of surprised it was ranked as low as it was, but i think facilities have a lot to do with it. the doctors at col pres are nothing short of amazing, as you know.
  14. N

    YEAH! Columbia!

    yeah, i was kind of surprised it was ranked as low as it was, but i think facilities have a lot to do with it. the doctors at col pres are nothing short of amazing, as you know.
  15. N

    time in hospital after transplant

    I was in 12 days. I would have been out probably a day or two earlier aside from some drainage issues so they left the chest tubes in a little longer for me. Otherwise, I was feeling pretty great. I'd say the biggest factors for how quickly you're released tend to be 1) chest tubes, 2) how...
  16. N

    time in hospital after transplant

    I was in 12 days. I would have been out probably a day or two earlier aside from some drainage issues so they left the chest tubes in a little longer for me. Otherwise, I was feeling pretty great. I'd say the biggest factors for how quickly you're released tend to be 1) chest tubes, 2) how...
  17. N

    time in hospital after transplant

    I was in 12 days. I would have been out probably a day or two earlier aside from some drainage issues so they left the chest tubes in a little longer for me. Otherwise, I was feeling pretty great. I'd say the biggest factors for how quickly you're released tend to be 1) chest tubes, 2) how...
  18. N

    Where were you...

    I was finishing a late dinner at a fancy restaurant with the family a little over a week ago. I raced home and changed and headed in. I was shell shocked but had been through so many dry runs and kept thinking "surely it won't happen like THIS!" it did though, and a little over a week later I am...
  19. N

    Where were you...

    I was finishing a late dinner at a fancy restaurant with the family a little over a week ago. I raced home and changed and headed in. I was shell shocked but had been through so many dry runs and kept thinking "surely it won't happen like THIS!" it did though, and a little over a week later I am...
  20. N

    Where were you...

    I was finishing a late dinner at a fancy restaurant with the family a little over a week ago. I raced home and changed and headed in. I was shell shocked but had been through so many dry runs and kept thinking "surely it won't happen like THIS!" it did though, and a little over a week later I am...
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