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  1. C

    I'm confused

    I would go to a different CF center if CHOP isn't going to help. Not sure what he means by "breakdown her gene" but if it's a 97 mutation panel it's not testing for all of them, it sounds to me like he just doesn't want to order it.
  2. C

    I'm confused

    if she only took the genzyme 97 panel she needs to be tested for the full panel, there are over 1500 mutations that have been identified. I would push whoever her pulmonologist is to get the full panel genzyme or ambry amplified test done, both test for all mutation not just the most common ones.
  3. C

    I'm confused

    if she only took the genzyme 97 panel she needs to be tested for the full panel, there are over 1500 mutations that have been identified. I would push whoever her pulmonologist is to get the full panel genzyme or ambry amplified test done, both test for all mutation not just the most common ones.
  4. C

    I'm confused

    if she only took the genzyme 97 panel she needs to be tested for the full panel, there are over 1500 mutations that have been identified. I would push whoever her pulmonologist is to get the full panel genzyme or ambry amplified test done, both test for all mutation not just the most common ones.
  5. C

    I'm confused

    if she only took the genzyme 97 panel she needs to be tested for the full panel, there are over 1500 mutations that have been identified. I would push whoever her pulmonologist is to get the full panel genzyme or ambry amplified test done, both test for all mutation not just the most common ones.
  6. C

    I'm confused

    if she only took the genzyme 97 panel she needs to be tested for the full panel, there are over 1500 mutations that have been identified. I would push whoever her pulmonologist is to get the full panel genzyme or ambry amplified test done, both test for all mutation not just the most common ones.
  7. C

    I know its been asked before but....

    Hockey once a week 2 games, gym with 30-45 min on the eliptical and 45 min freeweights 3 times a week no O2.
  8. C

    I know its been asked before but....

    Hockey once a week 2 games, gym with 30-45 min on the eliptical and 45 min freeweights 3 times a week no O2.
  9. C

    I know its been asked before but....

    Hockey once a week 2 games, gym with 30-45 min on the eliptical and 45 min freeweights 3 times a week no O2.
  10. C

    I know its been asked before but....

    Hockey once a week 2 games, gym with 30-45 min on the eliptical and 45 min freeweights 3 times a week no O2.
  11. C

    I know its been asked before but....

    Hockey once a week 2 games, gym with 30-45 min on the eliptical and 45 min freeweights 3 times a week no O2.
  12. C

    Music Collection

    Valerie - Steve Winwood
  13. C

    Music Collection

    Valerie - Steve Winwood
  14. C

    Music Collection

    Valerie - Steve Winwood
  15. C

    Music Collection

    Valerie - Steve Winwood
  16. C

    Music Collection

    Valerie - Steve Winwood
  17. C

    Compressors

    I have one of these, it kicks ass. It's quieter, and faster, but heavier. Definatly not easily portable, I've only had a few months so I don't know about the durability yet.
  18. C

    Compressors

    I have one of these, it kicks ass. It's quieter, and faster, but heavier. Definatly not easily portable, I've only had a few months so I don't know about the durability yet.
  19. C

    Compressors

    I have one of these, it kicks ass. It's quieter, and faster, but heavier. Definatly not easily portable, I've only had a few months so I don't know about the durability yet.
  20. C

    Compressors

    I have one of these, it kicks ass. It's quieter, and faster, but heavier. Definatly not easily portable, I've only had a few months so I don't know about the durability yet.
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