Cystic Fibrosis Forum (EXP)

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  1. C

    Pancreatitis

    I've been suffering with chronic pancreatitis for 3 1/2 years. It has not eased. I have pain and nausea. Eating food makes it worse. Eating protein makes it even more worse (pardon the grammar). I have been told that the pancreas will burn out at some point (5 years?). I pray for that, because...
  2. C

    Pancreatitis

    I've been suffering with chronic pancreatitis for 3 1/2 years. It has not eased. I have pain and nausea. Eating food makes it worse. Eating protein makes it even more worse (pardon the grammar). I have been told that the pancreas will burn out at some point (5 years?). I pray for that, because...
  3. C

    Pancreatitis

    I've been suffering with chronic pancreatitis for 3 1/2 years. It has not eased. I have pain and nausea. Eating food makes it worse. Eating protein makes it even more worse (pardon the grammar). <br /> <br />I have been told that the pancreas will burn out at some point (5 years?). I pray for...
  4. C

    Relationship Troubles

    This is my opinion, and you don't have to follow it. <img src="i/expressions/face-icon-small-smile.gif" border="0"> Let me say that this is a valid concern, and one I had often before I got married. You are under no obligation to reveal that you have CF on a first date (or on a job interview)...
  5. C

    Relationship Troubles

    This is my opinion, and you don't have to follow it. <img src="i/expressions/face-icon-small-smile.gif" border="0"> Let me say that this is a valid concern, and one I had often before I got married. You are under no obligation to reveal that you have CF on a first date (or on a job interview)...
  6. C

    Relationship Troubles

    This is my opinion, and you don't have to follow it. <img src="i/expressions/face-icon-small-smile.gif" border="0"> Let me say that this is a valid concern, and one I had often before I got married. <br /> <br />You are under no obligation to reveal that you have CF on a first date (or on a job...
  7. C

    bad Dr. Visit

    I just wanted to say that this might not necessarily be your new baseline. This may be just a bad phase. I often take longer than a few weeks after IVs to feel better, and sometimes as long as six months for my PFTs to rebound. I know this might sound silly, but thinking negatively can make...
  8. C

    bad Dr. Visit

    I just wanted to say that this might not necessarily be your new baseline. This may be just a bad phase. I often take longer than a few weeks after IVs to feel better, and sometimes as long as six months for my PFTs to rebound. I know this might sound silly, but thinking negatively can make...
  9. C

    bad Dr. Visit

    I just wanted to say that this might not necessarily be your new baseline. This may be just a bad phase. I often take longer than a few weeks after IVs to feel better, and sometimes as long as six months for my PFTs to rebound. <br /> <br />I know this might sound silly, but thinking negatively...
  10. C

    Eflow

    I am getting Cayston and the E-flow for the first time. The woman on the phone told me that I can only use Cayston in the E-flow. Yet, some of you are saying you use albuterol in it. I assume you use a different neb cup/hose?
  11. C

    Eflow

    I am getting Cayston and the E-flow for the first time. The woman on the phone told me that I can only use Cayston in the E-flow. Yet, some of you are saying you use albuterol in it. I assume you use a different neb cup/hose?
  12. C

    Eflow

    I am getting Cayston and the E-flow for the first time. The woman on the phone told me that I can only use Cayston in the E-flow. Yet, some of you are saying you use albuterol in it. I assume you use a different neb cup/hose?
  13. C

    A Good CF Center/ Doctor

    There may be several reasons why you aren't allowed to walk up and down the stairs. For example, you might culture MRSA or B. Cepacia, or something else that has a protocol for infection control. You also might be a fall risk. If you are really sick, on O2, or on certain types of medications...
  14. C

    A Good CF Center/ Doctor

    There may be several reasons why you aren't allowed to walk up and down the stairs. For example, you might culture MRSA or B. Cepacia, or something else that has a protocol for infection control. You also might be a fall risk. If you are really sick, on O2, or on certain types of medications...
  15. C

    A Good CF Center/ Doctor

    There may be several reasons why you aren't allowed to walk up and down the stairs. <br /> <br />For example, you might culture MRSA or B. Cepacia, or something else that has a protocol for infection control. <br /> <br />You also might be a fall risk. If you are really sick, on O2, or on...
  16. C

    contest

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>musclemania70</b></i> These are adults living with CF who would like to have a fun contest. If you can't look at yourself in the mirror and laugh at the circumstances SOMETIMES, you'll be depressed. The topic on this site should...
  17. C

    contest

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>musclemania70</b></i> These are adults living with CF who would like to have a fun contest. If you can't look at yourself in the mirror and laugh at the circumstances SOMETIMES, you'll be depressed. The topic on this site should...
  18. C

    contest

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>musclemania70</b></i> <br /> <br />These are adults living with CF who would like to have a fun contest. <br /> <br />If you can't look at yourself in the mirror and laugh at the circumstances SOMETIMES, you'll be depressed. <br />...
  19. C

    contest

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>musclemania70</b></i> Who would be interested in participating in a hot chick contest? I think this would be fun. Anyone up for it??</end quote></div> I think this is sexist, and no, I'm not a prude. It's not "fun", it's about...
  20. C

    contest

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>musclemania70</b></i> Who would be interested in participating in a hot chick contest? I think this would be fun. Anyone up for it??</end quote> I think this is sexist, and no, I'm not a prude. It's not "fun", it's about encouraging...
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