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  1. I

    Attending a Great Strides walk

    I just got out of the hospital and feel pretty good, so I am registering for it today. I don't have B. cep, and haven't cultured anything non typical lately. I really hope I don't get anything, should I wear a mask just in case? theLostMiler, I'm sorry you couldn't go! that sucks. <img...
  2. I

    Attending a Great Strides walk

    I just got out of the hospital and feel pretty good, so I am registering for it today. <br />I don't have B. cep, and haven't cultured anything non typical lately. <br />I really hope I don't get anything, should I wear a mask just in case? <br /> <br />theLostMiler, I'm sorry you couldn't go...
  3. I

    Attending a Great Strides walk

    Hi! I was wondering, can you attend a Great Strides walk as a CF patient? I think somebody told me that if you cultured B. cepacia, that you can't, but otherwise you can, but I'm not sure. There is one May 15th...a few days after I'm getting out of the hospital. If I am feeling well enough I'd...
  4. I

    Attending a Great Strides walk

    Hi! I was wondering, can you attend a Great Strides walk as a CF patient? I think somebody told me that if you cultured B. cepacia, that you can't, but otherwise you can, but I'm not sure. There is one May 15th...a few days after I'm getting out of the hospital. If I am feeling well enough I'd...
  5. I

    Attending a Great Strides walk

    Hi! <br /> <br />I was wondering, can you attend a Great Strides walk as a CF patient? I think somebody told me that if you cultured B. cepacia, that you can't, but otherwise you can, but I'm not sure. <br />There is one May 15th...a few days after I'm getting out of the hospital. If I am...
  6. I

    Order of med's

    Hmmmm, yeah my doctor says hypertonic before pulmo. My order right now is: Albuterol Hypertonic Pulmozyme Symbicort. What's weird is that when im a patient in the hospital, different RT's do it in different orders, so I just pretty much follow what my doctor says.
  7. I

    Order of med's

    Hmmmm, yeah my doctor says hypertonic before pulmo. My order right now is: Albuterol Hypertonic Pulmozyme Symbicort. What's weird is that when im a patient in the hospital, different RT's do it in different orders, so I just pretty much follow what my doctor says.
  8. I

    Order of med's

    Hmmmm, yeah my doctor says hypertonic before pulmo. My order right now is: Albuterol Hypertonic Pulmozyme Symbicort. What's weird is that when im a patient in the hospital, different RT's do it in different orders, so I just pretty much follow what my doctor says.
  9. I

    Order of med's

    Hmmmm, yeah my doctor says hypertonic before pulmo. My order right now is: Albuterol Hypertonic Pulmozyme Symbicort. What's weird is that when im a patient in the hospital, different RT's do it in different orders, so I just pretty much follow what my doctor says.
  10. I

    Order of med's

    Hmmmm, yeah my doctor says hypertonic before pulmo. <br />My order right now is: <br />Albuterol <br />Hypertonic <br />Pulmozyme <br />Symbicort. <br />What's weird is that when im a patient in the hospital, different RT's do it in different orders, so I just pretty much follow what my doctor says.
  11. I

    FDA Approval of Enzymes??

    We have also been told about this. I take Ultrase MT 20 and we are getting my refills today or tomorrow. Ugh, this sucks.
  12. I

    FDA Approval of Enzymes??

    We have also been told about this. I take Ultrase MT 20 and we are getting my refills today or tomorrow. Ugh, this sucks.
  13. I

    FDA Approval of Enzymes??

    We have also been told about this. I take Ultrase MT 20 and we are getting my refills today or tomorrow. Ugh, this sucks.
  14. I

    FDA Approval of Enzymes??

    We have also been told about this. I take Ultrase MT 20 and we are getting my refills today or tomorrow. Ugh, this sucks.
  15. I

    FDA Approval of Enzymes??

    We have also been told about this. I take Ultrase MT 20 and we are getting my refills today or tomorrow. Ugh, this sucks.
  16. I

    G-Tube solved

    Aw man, I hope you feel better soon! I heard the granulation tissue is pretty common, I also had it. The GI doctor used the silver nitrate sticks, ouch, but after 2 or 3 times it was gone, and now it's fully gone. I know how you feel, though.
  17. I

    G-Tube tenderness

    Jane pretty much covered all I was going to say, I just wanted to wish you good luck with the weight gain! The gtube might take a while to get used to, but it really does help and to me, it was worth it.
  18. I

    G-Tube tenderness

    Jane pretty much covered all I was going to say, I just wanted to wish you good luck with the weight gain! The gtube might take a while to get used to, but it really does help and to me, it was worth it.
  19. I

    G-Tube tenderness

    Jane pretty much covered all I was going to say, I just wanted to wish you good luck with the weight gain! The gtube might take a while to get used to, but it really does help and to me, it was worth it.
  20. I

    G-Tube tenderness

    Jane pretty much covered all I was going to say, I just wanted to wish you good luck with the weight gain! The gtube might take a while to get used to, but it really does help and to me, it was worth it.
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