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I talked to the nurse yesterday. They gave us another two weeks of samples of my son's ultrase. They want to keep him on Ultrase. She said they are certain they will get approval. I just wonder what the hold up is?? I just think it is so terrible especially the thing with the Viokase. What are...

I talked to the nurse yesterday. They gave us another two weeks of samples of my son's ultrase. They want to keep him on Ultrase. She said they are certain they will get approval. I just wonder what the hold up is?? I just think it is so terrible especially the thing with the Viokase. What are...

I talked to the nurse yesterday. They gave us another two weeks of samples of my son's ultrase. They want to keep him on Ultrase. She said they are certain they will get approval. I just wonder what the hold up is?? I just think it is so terrible especially the thing with the Viokase. What are...

Hi I am not from Arkansas but I believe insurance companies will only cover FDA approved enzymes. Those are Zenpep, Pancreaze, and Creon. We have Ultrase and are running low and the pharmacies are not able to get it. I have read other posts that Medicaid would not cover unapproved enzymed. Hope...

Hi I am not from Arkansas but I believe insurance companies will only cover FDA approved enzymes. Those are Zenpep, Pancreaze, and Creon. We have Ultrase and are running low and the pharmacies are not able to get it. I have read other posts that Medicaid would not cover unapproved enzymed. Hope...

Hi I am not from Arkansas but I believe insurance companies will only cover FDA approved enzymes. Those are Zenpep, Pancreaze, and Creon. We have Ultrase and are running low and the pharmacies are not able to get it. I have read other posts that Medicaid would not cover unapproved enzymed. Hope...

You guys are all the best! I seriously don't know what I would do without all this advice!! The CF nurse called back and they are going to put him on some antibiotics for now. I do believe they are going to culture him as well. I also asked her 493875209 questions!! haha and she was very nice. I...

You guys are all the best! I seriously don't know what I would do without all this advice!! The CF nurse called back and they are going to put him on some antibiotics for now. I do believe they are going to culture him as well. I also asked her 493875209 questions!! haha and she was very nice. I...

You guys are all the best! I seriously don't know what I would do without all this advice!! The CF nurse called back and they are going to put him on some antibiotics for now. I do believe they are going to culture him as well. I also asked her 493875209 questions!! haha and she was very nice. I...

Thanks all! Yeah I will just keep calling. He does not have asthma. Actually it sounds very similar to coughs he has had in the past when it turned out to be pneumonia!! It is a productive cough. Last night he coughed up a whole bowl full of thick icky green mucus! Gross I know. This morning it...

Thanks all! Yeah I will just keep calling. He does not have asthma. Actually it sounds very similar to coughs he has had in the past when it turned out to be pneumonia!! It is a productive cough. Last night he coughed up a whole bowl full of thick icky green mucus! Gross I know. This morning it...

Thanks all! Yeah I will just keep calling. He does not have asthma. Actually it sounds very similar to coughs he has had in the past when it turned out to be pneumonia!! It is a productive cough. Last night he coughed up a whole bowl full of thick icky green mucus! Gross I know. This morning it...

Hi everyone! I am just wondering who you guys call when something goes wrong. We are new to CF and to the doctor. My son has a really strange cough that seems really tight! We have done extra vest treatments and have not missed any of the regular stuff. Just can seem to loosen it up. I left a...

Hi everyone! I am just wondering who you guys call when something goes wrong. We are new to CF and to the doctor. My son has a really strange cough that seems really tight! We have done extra vest treatments and have not missed any of the regular stuff. Just can seem to loosen it up. I left a...

Hi everyone! I am just wondering who you guys call when something goes wrong. We are new to CF and to the doctor. My son has a really strange cough that seems really tight! We have done extra vest treatments and have not missed any of the regular stuff. Just can seem to loosen it up. I left a...

Hi all! I think I wasn't making it clear before. It isn't that the docs need to write a new script now. I know they can't while the enzymes aren't approved. I called my son's doctor and she told me that Ultrase will be approved soon!! YAY! The only thing is that they might have a differnt number...

Hi all! I think I wasn't making it clear before. It isn't that the docs need to write a new script now. I know they can't while the enzymes aren't approved. I called my son's doctor and she told me that Ultrase will be approved soon!! YAY! The only thing is that they might have a differnt number...

Hi all! I think I wasn't making it clear before. It isn't that the docs need to write a new script now. I know they can't while the enzymes aren't approved. I called my son's doctor and she told me that Ultrase will be approved soon!! YAY! The only thing is that they might have a differnt number...

Thanks for the advice. I guess using the CF pharmacy is out! LOL. My son's doctor told me that Ultrase would most likely still get approval, but the name might change. That would be why everyone would need a new script. She thought it would happen soon so she gave us 3 weeks of samples but that...

Thanks for the advice. I guess using the CF pharmacy is out! LOL. My son's doctor told me that Ultrase would most likely still get approval, but the name might change. That would be why everyone would need a new script. She thought it would happen soon so she gave us 3 weeks of samples but that...