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Thanks for the advice. I guess using the CF pharmacy is out! LOL. My son's doctor told me that Ultrase would most likely still get approval, but the name might change. That would be why everyone would need a new script. She thought it would happen soon so she gave us 3 weeks of samples but that...

So I heard that they might have to change the name of the Ultrase MTs. Similar to what they did to Creon because there was actually more lipase then originally thought. I guess once all that is done and approved then everyone will just need a new prescription to get them refilled. I do hope they...

So I heard that they might have to change the name of the Ultrase MTs. Similar to what they did to Creon because there was actually more lipase then originally thought. I guess once all that is done and approved then everyone will just need a new prescription to get them refilled. I do hope they...

So I heard that they might have to change the name of the Ultrase MTs. Similar to what they did to Creon because there was actually more lipase then originally thought. I guess once all that is done and approved then everyone will just need a new prescription to get them refilled. I do hope they...

Hi thanks for the advice! We have been doing CPT for over two years now. His doctors all felt that the vest would be more affective for my child. He had a CT scan that showed large sections of the lungs being comprimised from all the infections. I am glad to hear CPT works for you. It would be...

Hi thanks for the advice! We have been doing CPT for over two years now. His doctors all felt that the vest would be more affective for my child. He had a CT scan that showed large sections of the lungs being comprimised from all the infections. I am glad to hear CPT works for you. It would be...

Hi thanks for the advice! We have been doing CPT for over two years now. His doctors all felt that the vest would be more affective for my child. He had a CT scan that showed large sections of the lungs being comprimised from all the infections. I am glad to hear CPT works for you. It would be...

Hi all! My little guy is on Ultrase and they have not recieved FDA approval. Anyone have any idea of what's going on? Our CF doc gave us a bunch of samples to help get us through until Ultrase and the FDA worked it out. We really don't want to have to switch because he is doing SO WELL!! I only...

Hi all! My little guy is on Ultrase and they have not recieved FDA approval. Anyone have any idea of what's going on? Our CF doc gave us a bunch of samples to help get us through until Ultrase and the FDA worked it out. We really don't want to have to switch because he is doing SO WELL!! I only...

Hi all! <br />My little guy is on Ultrase and they have not recieved FDA approval. Anyone have any idea of what's going on? Our CF doc gave us a bunch of samples to help get us through until Ultrase and the FDA worked it out. We really don't want to have to switch because he is doing SO WELL!! I...

Thanks! Everyone on here is so nice and wonderful! I am glad I found this site. We have to wait a while to find out the quest results. I was told it takes a while. We went to the GI doc and he told me he is pretty certain he has CF. I kind of know that but it is weird to hear. The weird thing is...

Thanks! Everyone on here is so nice and wonderful! I am glad I found this site. We have to wait a while to find out the quest results. I was told it takes a while. We went to the GI doc and he told me he is pretty certain he has CF. I kind of know that but it is weird to hear. The weird thing is...

Thanks! Everyone on here is so nice and wonderful! I am glad I found this site. We have to wait a while to find out the quest results. I was told it takes a while. We went to the GI doc and he told me he is pretty certain he has CF. I kind of know that but it is weird to hear. The weird thing is...

Thank you so much! I told the doctor I wanted the ambry test. I even called ambry myself and I told everyone that I just wanted to pay for the test! His doctor told me quest is the way to go so I listened. I just have a bad feeling. I guess because we have been going through this for so long, I...

Thank you so much! I told the doctor I wanted the ambry test. I even called ambry myself and I told everyone that I just wanted to pay for the test! His doctor told me quest is the way to go so I listened. I just have a bad feeling. I guess because we have been going through this for so long, I...

Thank you so much! I told the doctor I wanted the ambry test. I even called ambry myself and I told everyone that I just wanted to pay for the test! His doctor told me quest is the way to go so I listened. I just have a bad feeling. I guess because we have been going through this for so long, I...

That is wonderful!! I asked my 4 year old son today if he wanted to try. He was open to the suggestion because he hates the applesauce now!! He tried and was so dramatic! I think he should go into acting. I guess we will try again tomorrow!!

That is wonderful!! I asked my 4 year old son today if he wanted to try. He was open to the suggestion because he hates the applesauce now!! He tried and was so dramatic! I think he should go into acting. I guess we will try again tomorrow!!

That is wonderful!! I asked my 4 year old son today if he wanted to try. He was open to the suggestion because he hates the applesauce now!! He tried and was so dramatic! I think he should go into acting. I guess we will try again tomorrow!!

Hi Everyone!! I am new to this site and I could really use some advice. My son is 4 years old. When he was an infant he always had digestive issues and never had a formed stool. About a year ago, his digestive problems got really bad and the doctors found him to be pancreatic insufficient. I was...