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Happy Birthday In Heaven Lisa <3

I would also love to meet up with anyone else that wants to get together ! 4 Hats, Do you go to BI ? Dr. Walker is also my Dr. :) joni

Happy Birthday To You ! :) joni

Hi guys, Thats right, you read it right. We are having chat night tonight, thursday instead of wed. We thought it may be a good idea to try another night & see how that goes. So I hope to see you in chat tonight. About 8PMish EST ! :)

Ty, I would like to see it too.

Happy Birthday Lauren ! Hope you have a great day !! :) joni

Hi Danielle, I understand your fears completely.. I was also a late diagnosis @ 44 y/o & felt that I had already lived past my CF expiration date , so I was scared out of my mind.. It wasn't till a few years after diagnosis & I had renal failure , that I realized I was wasting precious...

I haven't had that experience w/ Advair & I have been using it for years. But as we CFers know, everyone is different. Maybe something else is going on ? Allergies ? Or maybe it will stop after some time of use ? If not I would discuss it w/ your Dr. & see if they have any ideas for you ..

Tom, We are usually in chat on Wednesday nights @ 8PM EST. Although we may be trying Thursdays nights starting this week. Hope you can make it in. :)

Welcome back Lefty ! :)

I hope she (& you) is feeling better today <3

Ty for sharing .. Touching story ..

Bumping this up :)

Hey Carrie, I have Mycobacterium Abcessus. The Drs. didn't treat it right away as the treatment can be harsh. Each patient is treat differently as we know ppl w/ CF present so differently. You are very blessed to be in Co. I live in N.Y. & go to Denver National Jewish for their expertise. I...

I am very excited that we will be having our first CF Family Education Day @ Beth Israel in Manhattan ! If you are part of this center & want info please let me know. I hope we have a great turn out .. :)

I hope drs have gotten in touch with you by know. I would hold all therapies until you speak with them. Thoughts, Prayers & {{{hugs}}}

Tonight, 8PM EST .. Hope you can make it in :)

Hey Fred. I am also on Urisodiol, due to having sludge in my liver lol ... Glad to hear your lungs are behaving ! :) joni

Happy Birthday in Heaven Mary <3

That's right , Wednesday night chat is tonight ! 8pm EST .. Hope you can make it in :)