Cystic Fibrosis Forum (EXP)

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  1. J

    feeding tube

    thanks, that's pretty much what I was thinking. It would defiantly not be worth drinking golytle. lol
  2. J

    feeding tube

    thanks, that's pretty much what I was thinking. It would defiantly not be worth drinking golytle. lol
  3. J

    Do I Apply

    this is defiantly a state-by-state policy question. The best thing to do would be to go to social security.gov or your local Social Security community service administration and ask in person. You could also call 211 and see if they have any referrals to local agencies that help with navigating...
  4. J

    feeding tube

    Hello, So I was wondering if any of my elder CFers Have gtubes still. I have had one for 10 years and I do not use it except for golytly when I have an obstruction. It itches and burns all the time and interferes with my ability to do exercise. So my doc wants me to think about getting it...
  5. J

    feeding tube

    Hello, So I was wondering if any of my elder CFers Have gtubes still. I have had one for 10 years and I do not use it except for golytly when I have an obstruction. It itches and burns all the time and interferes with my ability to do exercise. So my doc wants me to think about getting it...
  6. J

    Coughing judgment at the gym (or any public space)

    I always used to get looks in class or in public, but now that my social circle is fairly large and strong, and since I wear my CF on my sleeve nobody gives me crap about it anymore. I still get really self conscious when I cough up blood though or have a coughing fit/spasm that turns my head...
  7. J

    Coughing judgment at the gym (or any public space)

    I always used to get looks in class or in public, but now that my social circle is fairly large and strong, and since I wear my CF on my sleeve nobody gives me crap about it anymore. I still get really self conscious when I cough up blood though or have a coughing fit/spasm that turns my head...
  8. J

    To all the bleeders out there...

    I have a vessel in the upper laft lobe of my lung that likes to break all the time for no good reason. It's really annoying. It sucks being a bleeder, it's annoying, embarrassing, scary, and makes it hard to figure out when your infections are acting up. <img...
  9. J

    To all the bleeders out there...

    I have a vessel in the upper laft lobe of my lung that likes to break all the time for no good reason. It's really annoying. It sucks being a bleeder, it's annoying, embarrassing, scary, and makes it hard to figure out when your infections are acting up. <img...
  10. J

    I need advice

    I have this problem too and enzymes help, but its kind of just a problem I have to deal with. I would suggest keeping his bowels active with senna and using miralax everyday and especially when his belly hurts. Unfortunately the miralax will make the belly hurt more if he is constipated, but it...
  11. J

    Garlic

    what is it supposed to help with?
  12. J

    Garlic

    what is it supposed to help with?
  13. J

    Garlic

    what is it supposed to help with?
  14. J

    Garlic

    what is it supposed to help with?
  15. J

    Garlic

    what is it supposed to help with?
  16. J

    Scandi-Shakes

    i liked scandi shakes then my provider also switched to boost, and its gross. carnation instant breakfasts with whole milk is very yummmy and good with a little vanilla extract mixed in. also if you put in a canning jar and shake the nasty clumps at the bottom go away
  17. J

    Scandi-Shakes

    i liked scandi shakes then my provider also switched to boost, and its gross. carnation instant breakfasts with whole milk is very yummmy and good with a little vanilla extract mixed in. also if you put in a canning jar and shake the nasty clumps at the bottom go away
  18. J

    Scandi-Shakes

    i liked scandi shakes then my provider also switched to boost, and its gross. carnation instant breakfasts with whole milk is very yummmy and good with a little vanilla extract mixed in. also if you put in a canning jar and shake the nasty clumps at the bottom go away
  19. J

    Scandi-Shakes

    i liked scandi shakes then my provider also switched to boost, and its gross. carnation instant breakfasts with whole milk is very yummmy and good with a little vanilla extract mixed in. also if you put in a canning jar and shake the nasty clumps at the bottom go away
  20. J

    Scandi-Shakes

    i liked scandi shakes then my provider also switched to boost, and its gross. carnation instant breakfasts with whole milk is very yummmy and good with a little vanilla extract mixed in. also if you put in a canning jar and shake the nasty clumps at the bottom go away
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