Cystic Fibrosis Forum (EXP)

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  1. L

    Lung Lavage

    Hello, Hulkster (love the name btw!) I admit, I didn't have a chance to read your links (I am suffering an awful headcold and my sinuses and eyes are killing me), so I apologize if this isn't what you're looking for. I have had a "bronchoscopy with lavage" a couple months ago. I had a "mass"...
  2. L

    Lung Lavage

    Hello, Hulkster (love the name btw!) I admit, I didn't have a chance to read your links (I am suffering an awful headcold and my sinuses and eyes are killing me), so I apologize if this isn't what you're looking for. I have had a "bronchoscopy with lavage" a couple months ago. I had a "mass"...
  3. L

    Lung Lavage

    Hello, Hulkster (love the name btw!) I admit, I didn't have a chance to read your links (I am suffering an awful headcold and my sinuses and eyes are killing me), so I apologize if this isn't what you're looking for. I have had a "bronchoscopy with lavage" a couple months ago. I had a "mass"...
  4. L

    Lung Lavage

    Hello, Hulkster (love the name btw!) I admit, I didn't have a chance to read your links (I am suffering an awful headcold and my sinuses and eyes are killing me), so I apologize if this isn't what you're looking for. I have had a "bronchoscopy with lavage" a couple months ago. I had a "mass"...
  5. L

    Lung Lavage

    Hello, Hulkster (love the name btw!) <br /> <br />I admit, I didn't have a chance to read your links (I am suffering an awful headcold and my sinuses and eyes are killing me), so I apologize if this isn't what you're looking for. <br /> <br />I have had a "bronchoscopy with lavage" a couple...
  6. L

    Exercise Motivation

    Hi, Haley! I agree with what others have said. I just KNOW it will make me feel better. I feel awful when I just sit around and know I haven't worked out in a couple days. I always do the "every other day" on the treadmill, so I'm ok with eveyr other night sitting on the couch, but I...
  7. L

    Exercise Motivation

    Hi, Haley! I agree with what others have said. I just KNOW it will make me feel better. I feel awful when I just sit around and know I haven't worked out in a couple days. I always do the "every other day" on the treadmill, so I'm ok with eveyr other night sitting on the couch, but I...
  8. L

    Exercise Motivation

    Hi, Haley! I agree with what others have said. I just KNOW it will make me feel better. I feel awful when I just sit around and know I haven't worked out in a couple days. I always do the "every other day" on the treadmill, so I'm ok with eveyr other night sitting on the couch, but I...
  9. L

    Exercise Motivation

    Hi, Haley! I agree with what others have said. I just KNOW it will make me feel better. I feel awful when I just sit around and know I haven't worked out in a couple days. I always do the "every other day" on the treadmill, so I'm ok with eveyr other night sitting on the couch, but I...
  10. L

    Exercise Motivation

    Hi, Haley! <br /> <br />I agree with what others have said. I just KNOW it will make me feel better. I feel awful when I just sit around and know I haven't worked out in a couple days. I always do the "every other day" on the treadmill, so I'm ok with eveyr other night sitting on the couch...
  11. L

    aztreonam expanded access

    Thanks, everyone. The eap site says you have to be listed for transplant or within transplant standards, doesn't it? Am I reading it wrong. With my recent severe decline in FEV1 (even after IV abx), I am below 50 for sure. I'm also pan resistant to abx AND even with syngery do not get...
  12. L

    aztreonam expanded access

    Thanks, everyone. The eap site says you have to be listed for transplant or within transplant standards, doesn't it? Am I reading it wrong. With my recent severe decline in FEV1 (even after IV abx), I am below 50 for sure. I'm also pan resistant to abx AND even with syngery do not get...
  13. L

    aztreonam expanded access

    Thanks, everyone. The eap site says you have to be listed for transplant or within transplant standards, doesn't it? Am I reading it wrong. With my recent severe decline in FEV1 (even after IV abx), I am below 50 for sure. I'm also pan resistant to abx AND even with syngery do not get...
  14. L

    aztreonam expanded access

    Thanks, everyone. The eap site says you have to be listed for transplant or within transplant standards, doesn't it? Am I reading it wrong. With my recent severe decline in FEV1 (even after IV abx), I am below 50 for sure. I'm also pan resistant to abx AND even with syngery do not get...
  15. L

    aztreonam expanded access

    Thanks, everyone. <br /> <br />The eap site says you have to be listed for transplant or within transplant standards, doesn't it? Am I reading it wrong. <br /> <br />With my recent severe decline in FEV1 (even after IV abx), I am below 50 for sure. I'm also pan resistant to abx AND even with...
  16. L

    aztreonam expanded access

    Hello! So, I was just informed today that my doc wants me on something aerosole every month as an antibiotic. Since I can't tolerate TOBI and my lung function has been a lot lower, they want to put me on the expanded access for aztreonam. Just curious how many others are on this? The nurse...
  17. L

    aztreonam expanded access

    Hello! So, I was just informed today that my doc wants me on something aerosole every month as an antibiotic. Since I can't tolerate TOBI and my lung function has been a lot lower, they want to put me on the expanded access for aztreonam. Just curious how many others are on this? The nurse...
  18. L

    aztreonam expanded access

    Hello! So, I was just informed today that my doc wants me on something aerosole every month as an antibiotic. Since I can't tolerate TOBI and my lung function has been a lot lower, they want to put me on the expanded access for aztreonam. Just curious how many others are on this? The nurse...
  19. L

    aztreonam expanded access

    Hello! So, I was just informed today that my doc wants me on something aerosole every month as an antibiotic. Since I can't tolerate TOBI and my lung function has been a lot lower, they want to put me on the expanded access for aztreonam. Just curious how many others are on this? The nurse...
  20. L

    aztreonam expanded access

    Hello! <br /> <br />So, I was just informed today that my doc wants me on something aerosole every month as an antibiotic. Since I can't tolerate TOBI and my lung function has been a lot lower, they want to put me on the expanded access for aztreonam. <br /> <br />Just curious how many others...
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