Cystic Fibrosis Forum (EXP)

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  1. M

    Iv abx and kidneys...rising creatine levels

    My creatine levels always get messed up on Tobramycin. They always hook me up to IV fluids... I am on IV fluids almost 24/7 with IV meds. They also sometimes have to stop the Tobra for up to 24 hours to flush out my kidneys because my levels get too high. Very frustrating!! I greatly dislike...
  2. M

    Anyone have chronic pain?

    I have pretty much chronic pain due to joint issues and migraines. I have to stay on top of it as much as I can.... I take meds as soon as the pain gets to a certain level (I don't have a day without pain). I do lots of heat treatment on my joints to "assist" the pain meds. I also do warm...
  3. M

    Rehab frustration

    Water therapy sounds wonderful. I soaked it in the tub yesterday to help with the joint pain. My knees are still swollen today but the nerve pain has eased some. I wish they would listen to me. They all SEEM to know much more than me even though this is MY body. Jenn, I did the same...
  4. M

    Rehab frustration

    I have had lots of pain since doing pulmonary rehab. My knees are swollen and ankles are crackling. My shoulds also hurt occassionally. Today I am in horrible nerve pain in my hip (nerve pain all down my leg and into my foot). I talked to the therapist about the pain and swelling. I even talked...
  5. M

    Colorado Wildfires

    I live south of Greeley. Yesterday the air around here was not too bad (less gray). I went outside to water my dying garden. Dumb idea.... I am paying for it today.... coughing like crazy. It doesn't seem to affect my son or husband.... just me with the stinky lungs.
  6. M

    Starting on night oxygen

    I have been using oxygen for a short while. My hubby is not affected by it. He is actually glad that I am on it. We both know it is helping me. Hubby will turn on my concentrator for me and help me get the tubing situated so that we don't get tangled it in during the night. The tubing is...
  7. M

    Colorado Wildfires

    Yep!! We have a whole house fancy filter system.... hubby is a heating guy. I had to do Wii tonight for exercise. Kinda boring but beats going outside.
  8. M

    hypoglycemia in CF

    I have lows every so often. I stay clear of simple sugars and eat a protein and a fat with my complex carbs. That seems to help greatly.... then sugars down much slower. Once in a while I get a random surprising low (after doing everything by the book). My diabetes doc said that sometimes it...
  9. M

    One more night oxygen question

    I have the same problem. My CF nurse ordered me a humidifier to attach to the oxygen concentrator. I have only used it one night... so nothing much to report. See if a humidifier is an option for you.
  10. M

    Colorado Wildfires

    We have had a few wildfires in the past week. We have one right now north of where I live and it is pretty big and out of control. The air quality is horrible. We are more than an hour away but the air here is gray and icky. Plz keep the firefighters in your thoughts. I am staying indoors...
  11. M

    Voice

    My voice is deeper almost as deep as my hubby's. I have vocal cord issues and frequent laringitis. Give your voice another 10-12 years...
  12. M

    Salty Hands

    Yep!!! I am my dog's salt lick during the summer. I haven't noticed my hands but get it on my head and arms.
  13. M

    Water for humidifier

    I finally got a humidifer for my oxygen. What kind of water to use??....obviously not tap. Distilled in the jug, boiled like I use to flush my nose and wash nebs or some other kind of water. I don't want any new lung bugs growing because of using the wrong kind of water.
  14. M

    Who cooks?

    Oh, my goodness.... you all look like such wonderful cooks!! I am hungry looking at everyone's cooking. I tried posting a picture but it didn't work.... refused to resize.
  15. M

    Big Nose Bleed-- on nighttime oxygen

    I woke up this morning and felt all those lovely dry "boogies" in my nose from the night time oxygen. Yes, I stuck my finger up my nose like I normally to loosen them up (Yes, I am a nose picker). All of a sudden I had a massive nose bleed. It started to pour out my nose into my hand. I stuffed...
  16. M

    Can't keep up- exhausted

    Cris- I have been doing this for 3 weeks. (only going to rehab center once a week). I have tons of exercise assignments at home... and I am doing them all. When they said they were going to "kick my backend".... I didn't realize they were this serious. I talked with therapist on Friday and she...
  17. M

    Can't keep up- exhausted

    Cris- I have been doing this for 3 weeks. (only going to rehab center once a week). I have tons of exercise assignments at home... and I am doing them all. When they said they were going to "kick my backend".... I didn't realize they were this serious. I talked with therapist on Friday and she...
  18. M

    Can't keep up- exhausted

    I have been doing cardiac rehab. Tomorriw is my second exercise session at hospital. All if a sudden this week my hip has been bothering me... Old joint problem The past two days my left knee is giving me fits. I officially tweaked it tonight while cooling down from walking. On top of the...
  19. M

    Can't keep up- exhausted

    I have been doing cardiac rehab. Tomorriw is my second exercise session at hospital. All if a sudden this week my hip has been bothering me... Old joint problem The past two days my left knee is giving me fits. I officially tweaked it tonight while cooling down from walking. On top of the...
  20. M

    Anesthesia issues?

    I seem to do okay being kicked out. I don't do okay coming out of anesthesia... I am very combative. I knocked the nurse out!! They had to drug me back up, strap me down and the gradually wake me up.
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