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Watch Francis Collins in this new TedTalk: http://www.ted.com/talks/francis_collins_we_need_better_drugs_now.html??utm _medium=social&source=email&utm_source=email&utm_c ampaign=ios-share

I'm sure you already know this one! http://sethgodin.typepad.com/seths_blog/2013/02/the-simple-form-that-could-save-your-life.html?utm_source=feedburner&utm_medium=feed&utm_campaign=Feed%3A+typepad%2Fsethsmainblog+%28Seth%27s+Blog%29

10 members took our survey and two mutations are represented: f508del and R1162X We look forward to the conversation. Jeanne

http://www.surveygizmo.com/s3/1129460/Genetics-US and the above survey is still open for those who want to continue with us. We started with the Intro Guild and today we will open the DNA UK Group. 10 people have signed in from the UK. Thanks again for continuing the conversation. Imogene

From our profiles these are the top 10 mutations on CF.com with the number of people who have them: 1582 F508del 72 G551D 69 R117H 55 G542X 29 N1303K 28 W1282X 26 1717-1G->A 21 3849+10kbC->T 20 I507del 20 5T 18 621+1G->T 13 R553X 13 D1152H

Welcome to our newest feature: DNA Guilds. Thank You! 150 of you agreed to "hear more" about DNA Guilds in our latest Survey. We have over 50 mutations represented in our survey: F508del, 3849+10kbC->T R668C L558S I1027T R117C 621+1G->T L206W S489X N1303K...

Thank you 150 members who "want to hearmore" about our Mutation Guild Project! http://www.surveygizmo.com/s3/1129460/Genetics-US (survey still open) CF.com has been about support, education and hopesince 1996. Privacy has always been important to thiscommunity, especially when Pre-Existing...

Members of CysticFibrosis.com, Here, at cysticfibrosis.com, you come to tell your stories. Since 1996, the stories have been about diagnosis, treatments, and environment. You have come here to depend on friend to help you with adherence and daily living. A newer addition to the story is your...

This community is my church, but on Sundays and sometimes during the week, I attend CHURCH services at Marble Collegiate Church in NYC. Peter is a deacon there and I belong to small groups and I've grown close to the ladies in the group and they teach me how to pray. One, even donated an iPad...

http://www.youtube.com/watch?v=sbUhw...ature=youtu.be The patient centered genome. What do you think you would do with you genome, if you owned it?

http://www.youtube.com/watch?v=sbUhwZgqE1E&feature=youtu.be Is it going to begin in England? That is what Alice thinks... Wow this is exciting...when patients can control their own genome info...

Our store is beginning to buzz with shoppers but now we need some comments on the products you are purchasing...that is what makes this Patient Retail Center even more of a Win Win. Here at CF.com, you have always chatted and messaged about medications, products, clinical trials, and what's...

Using alternative energy sources in the event of a disaster: Read More: http://kdhhealthcomm.wordpress.com/2012/11/27/giving-back/?goback=%2Egde_3870310_member_190592310

Today we welcome nSpire Health to our store featuring 2 spirometers. PiKO 1 Health Monitor at $57.95 Take Control of Your Lung Health with PiKo, the world's most effective FEV1 and Peak Flow Monitor! PiKo-1 provides electronic Peak Flow/FEV1 measurements at the touch of a button. Clear LCD...

At our Medrise Store, we have taken your lead and contacted many spirometer companies. (Remember the surveys from last summer? You definitely wanted to know more about spirometry!) What we have found in our research, is that if the device connects to the computer, it does so PC based. Please...

I would like to take this opportunity to thank all of you, members and lurkers and now customers who order from Medrise Store. The proceeds help in a big way to pay for this amazing site and also we will be using part of the proceeds to continue to buy iPads for our members. I hope you take an...

Today, we welcome QRS Diagnostic which is a PC-based medical device company located in Minnesota. Melissa75 demonstrates their PC based spirometer. We have the opportunity to ask questions and comment as we compare, contrast and review many of the exciting health tools available to patients...

Today, Melissa75 is coming and she will "try out" the QRS spirometer. It is exciting to see how the different health tools compare and contrast. Scientists and engineers are busy all over the world designing devices for patients to use at home. We will feature this one at Medrise some time next...

Back in 1996, I was fired as a math and computer teacher in a small Catholic girls’school in NJ. My ability to get along with the administration was wanting. Being forced to leave a job I loved caused me to go off and innovate. As a web developer, I now have lots of experience making health...

About the same time (1996) I began this journey with the community at cysticfibrosis.com, I found a church. Marble Collegiate Church on 5th avenue and 29th street in Manhattan, but Norman Vincent Peale (the former minister and author of the book:“The Power of Positive Thinking) had already...