Cystic Fibrosis Forum (EXP)

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  1. M

    G-tube covering for swimming?

    When I had my tube place 15 years ago I too had to wait a long time...if it burns while swimming its because the site is not healed...the size or type of tube wont make it hurt swimming...so even if you get the mic-key sooner and she experiences pain you need to get her out of the water because...
  2. M

    Orlando Salt Room

    We are 6 days away from our first Fundraising Event at the Salt Room in Orlando... <a target=_blank class=ftalternatingbarlinklarge href="http://www.saltroomorlando.com/ ">http://www.saltroomorlando.com/ </a> A Wine and Chocolate Affair with a Breath of Salt Air A fundraiser to benefit...
  3. M

    Orlando Salt Room

    We are 6 days away from our first Fundraising Event at the Salt Room in Orlando... <a target=_blank class=ftalternatingbarlinklarge href="http://www.saltroomorlando.com/ ">http://www.saltroomorlando.com/ </a> A Wine and Chocolate Affair with a Breath of Salt Air A fundraiser to benefit...
  4. M

    Orlando Salt Room

    We are 6 days away from our first Fundraising Event at the Salt Room in Orlando... <a target=_blank class=ftalternatingbarlinklarge href="http://www.saltroomorlando.com/ ">http://www.saltroomorlando.com/ </a><br /> <br />A Wine and Chocolate Affair with a Breath of Salt Air <br /> <br />A...
  5. M

    Attending a Great Strides walk

    This may not be the right forum but I want to comment on the isolation issue, because this upsets me the most. I am now 30, I recently started my own foundation for CF...check it out www.breathe-easy.org my entire life, up until 3 years ago, I too was isolated by this disease. I really blame...
  6. M

    Attending a Great Strides walk

    This may not be the right forum but I want to comment on the isolation issue, because this upsets me the most. I am now 30, I recently started my own foundation for CF...check it out www.breathe-easy.org my entire life, up until 3 years ago, I too was isolated by this disease. I really blame...
  7. M

    Attending a Great Strides walk

    This may not be the right forum but I want to comment on the isolation issue, because this upsets me the most. I am now 30, I recently started my own foundation for CF...check it out www.breathe-easy.org my entire life, up until 3 years ago, I too was isolated by this disease. I really blame...
  8. M

    Attending a Great Strides walk

    I am a CF patient and I would go anyway....more than likely you are outside and not going to interact with Cf patients directly...plus I am not that firm of a believer that this bateria causes as many problems as the cff says...i think its more to CYA themselves.
  9. M

    Attending a Great Strides walk

    I am a CF patient and I would go anyway....more than likely you are outside and not going to interact with Cf patients directly...plus I am not that firm of a believer that this bateria causes as many problems as the cff says...i think its more to CYA themselves.
  10. M

    Attending a Great Strides walk

    I am a CF patient and I would go anyway....more than likely you are outside and not going to interact with Cf patients directly...plus I am not that firm of a believer that this bateria causes as many problems as the cff says...i think its more to CYA themselves.
  11. M

    Attention Central Florida CF patients

    The Salt Room in Orlando will be hosting our first fundraiser for the Kevin A Przybyl Breathe Easy Foundation. "Wine and Chocolate Affair with a Breath of Salt Air" To benefit those with Cystic Fibrosis Where : The Salt Room 1804 North Mills Avenue, Orlando, Florida 32803 When: May 21...
  12. M

    Attention Central Florida CF patients

    The Salt Room in Orlando will be hosting our first fundraiser for the Kevin A Przybyl Breathe Easy Foundation. "Wine and Chocolate Affair with a Breath of Salt Air" To benefit those with Cystic Fibrosis Where : The Salt Room 1804 North Mills Avenue, Orlando, Florida 32803 When: May 21...
  13. M

    Attention Central Florida CF patients

    The Salt Room in Orlando will be hosting our first fundraiser for the Kevin A Przybyl Breathe Easy Foundation. <br /> <br />"Wine and Chocolate <br />Affair with a Breath of Salt Air" <br />To benefit those with Cystic Fibrosis <br /> <br /> <br />Where : The Salt Room <br />1804 North Mills...
  14. M

    Kevin A Przybyl Breathe Easy Foundation

    Hey everyone, The website site for the Kevin A Przybyl Breathe Easy foundation is fully functioning!! Please check it out, spread the word, and register at the website !! www.breathe-easy.org
  15. M

    Kevin A Przybyl Breathe Easy Foundation

    Hey everyone, The website site for the Kevin A Przybyl Breathe Easy foundation is fully functioning!! Please check it out, spread the word, and register at the website !! www.breathe-easy.org
  16. M

    Kevin A Przybyl Breathe Easy Foundation

    Hey everyone, The website site for the Kevin A Przybyl Breathe Easy foundation is fully functioning!! Please check it out, spread the word, and register at the website !! www.breathe-easy.org
  17. M

    Kevin A Przybyl Breathe Easy Foundation

    Hey everyone, The website site for the Kevin A Przybyl Breathe Easy foundation is fully functioning!! Please check it out, spread the word, and register at the website !! www.breathe-easy.org
  18. M

    Kevin A Przybyl Breathe Easy Foundation

    Hey everyone, <br /> <br />The website site for the Kevin A Przybyl Breathe Easy foundation is fully functioning!! Please check it out, spread the word, and register at the website !! www.breathe-easy.org
  19. M

    CF memorial

    Hello all, It's finally complete...thats right the cf memorial boat wrap. It took alot longer than I thought it would but it truely looks awesome. All but a few names are on there but, they will be added very shortly...also there is plenty of room for more name. so if you want to be remembered...
  20. M

    CF memorial

    Hello all, It's finally complete...thats right the cf memorial boat wrap. It took alot longer than I thought it would but it truely looks awesome. All but a few names are on there but, they will be added very shortly...also there is plenty of room for more name. so if you want to be remembered...
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