Cystic Fibrosis Forum (EXP)

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  1. M

    Methotrexate anyone?

    I was curious if any one here had any experience with this medication? As I had posted before my DD's joints are swelling. After a long drawn out time we finally got into see a rheumatologist. They put her on Melxicam. After a month of being on it she is still flaring up, unable to move. So now...
  2. M

    Methotrexate anyone?

    I was curious if any one here had any experience with this medication? As I had posted before my DD's joints are swelling. After a long drawn out time we finally got into see a rheumatologist. They put her on Melxicam. After a month of being on it she is still flaring up, unable to move. So now...
  3. M

    can anyone recommend a good vaccuum

    I used a Kirby for years. Then it broke and I got a Dyson Animal. WOW so worth it! No need to have to find a dealer for bags, it's not as heavy and honestly to me seems to do the same amount. Jen, mom to 4 kids. 3w/cf and 1 red head.
  4. M

    can anyone recommend a good vaccuum

    I used a Kirby for years. Then it broke and I got a Dyson Animal. WOW so worth it! No need to have to find a dealer for bags, it's not as heavy and honestly to me seems to do the same amount. Jen, mom to 4 kids. 3w/cf and 1 red head.
  5. M

    Tube Weaning

    My DD's who are 12 and 13 are actually working on this right now. They have not used the feeding tube in almost a yr. Instead they have been drinking the cans. I have my phone alarms set to "can times" which is generally right after a meal. The 13 yr old drinks 5 cans a day the 12 yr old...
  6. M

    Tube Weaning

    My DD's who are 12 and 13 are actually working on this right now. They have not used the feeding tube in almost a yr. Instead they have been drinking the cans. I have my phone alarms set to "can times" which is generally right after a meal. The 13 yr old drinks 5 cans a day the 12 yr old...
  7. M

    Is this a CF issue?

    Oh my goodness.. Thank you all for the information it has been very helpful. I really appreciate having some place to come and get answers to my random questions. Jen.. mom to 4 kids. 3 w/cf and one lucky red head.
  8. M

    Is this a CF issue?

    Oh my goodness.. Thank you all for the information it has been very helpful. I really appreciate having some place to come and get answers to my random questions. Jen.. mom to 4 kids. 3 w/cf and one lucky red head.
  9. M

    Is this a CF issue?

    <P>Wierd question time. Is joint pain in a slow growing 13 yr old part of CF?</P> <P></P> <P>My DD with CF for almost a year now has been having random joint pain. Her knee has swelled up about twice it's original size twice. This last time she was not able to put any weight on it at all.Before...
  10. M

    Is this a CF issue?

    <P>Wierd question time. Is joint pain in a slow growing 13 yr old part of CF?</P> <P></P> <P>My DD with CF for almost a year now has been having random joint pain. Her knee has swelled up about twice it's original size twice. This last time she was not able to put any weight on it at all.Before...
  11. M

    Not sure what to do....

    I LOVE the vest it has made our lives soo much easier! When they are in the hospital the kids opt for the vest because they feel like they really move more junk. There is also the wand thingy I can't remember the name of. We had that for awhile and it just didn't work that well. As far as...
  12. M

    Not sure what to do....

    I LOVE the vest it has made our lives soo much easier! When they are in the hospital the kids opt for the vest because they feel like they really move more junk. There is also the wand thingy I can't remember the name of. We had that for awhile and it just didn't work that well. As far as...
  13. M

    Can anyone tell me about Utah?

    I just wanted to give everyone a BIG thank you! Your information has really helped in us making the big decision.
  14. M

    Can anyone tell me about Utah?

    I just wanted to give everyone a BIG thank you! Your information has really helped in us making the big decision.
  15. M

    Can anyone tell me about Utah?

    I just wanted to give everyone a BIG thank you! Your information has really helped in us making the big decision.
  16. M

    Can anyone tell me about Utah?

    <P>I was wondering if anyone ever lived or lives in Utah and uses the CF clinic in Salt Lake City? </P> <P>We are looking at moving and curious about Utah since we've never lived there before. Also any other information like weather and stuff to do. </P> <P></P> <P>Currently we are in WA and the...
  17. M

    Can anyone tell me about Utah?

    <P>I was wondering if anyone ever lived or lives in Utah and uses the CF clinic in Salt Lake City? </P> <P>We are looking at moving and curious about Utah since we've never lived there before. Also any other information like weather and stuff to do. </P> <P></P> <P>Currently we are in WA and the...
  18. M

    Can anyone tell me about Utah?

    <P>I was wondering if anyone ever lived or lives in Utah and uses the CF clinic in Salt Lake City? </P> <P>We are looking at moving and curious about Utah since we've never lived there before. Also any other information like weather and stuff to do. </P> <P></P> <P>Currently we are in WA and the...
  19. M

    Best CF Centers

    Several years ago we were in NE and went to UNMC before it had made the switch to Childrens. I loved the clinic! Like I said it's been several years so I don't know how it is now that the change was made. When we lived in AK my oldest DD's PFT's were better than they are now that we are in...
  20. M

    You know you're a CF mom\dad\parent when......

    When you walk straight to the soap isle to check out the hand sanitizers. In your purse you carry cans of Pediasure, enzymes, antibitiotics, purrell wipes, glucose monitor, and NO make-up because there is no room. You buy a phone or gadget JUST for the med/proccedure alarms you need through...
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