Cystic Fibrosis Forum (EXP)

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  1. S

    share your information about pancreatic enzymes

    Hi all I am a mother of a 10 months old CF daughter.These days I have been wondering so much about PE(pancreatic enzymes)how they suggest units.what does it contain.and also things you should keep in your mind while u give PE to ur child. my daughter takes 4 capsules of creon of 2500 units.How...
  2. S

    new recipe suggestion for my 10 months old baby

    Some one told me to give her boiled potatto and the blend it with hand blender so it gets lump free and get digested easily and also blend all fruits available at home and add them in the little ones diet so they get nutrition what do u think
  3. S

    new recipe suggestion for my 10 months old baby

    Hi all What did u use to give your cf child when he/she was young? My 10 months old daughter is bored of eating the same rice and lentil puree every day so all cfer's mommies plz suggest me some wholesome and delicious recipes for my cf daughter Thanks
  4. S

    When cf will no longer be an incurable disease??

    do u think kalydeco would be a breakthrough in cf treatment has anyone used it and felt any difference?
  5. S

    When cf will no longer be an incurable disease??

    I said half sick bc when they marry another carrier they pass their sickness to their child in the form of cf. I was wondering if dr could find something when 2 carriers marry and their children do not suffer from cf just a thinking I m not a dr<img src="i/expressions/face-icon-small-sad.gif"...
  6. S

    When cf will no longer be an incurable disease??

    Swallowtail You r right Prevention is better than Cure. After reading all people's comments I feel so sad to know that it is going to take way too long to find a cure for cf but I m hopefull that someday a cure will be discoverd! Right now I think that all people should get their genetic...
  7. S

    When cf will no longer be an incurable disease??

    Printer: Maybe u got me wrong I didn't wrote or mean anything about eliminating carriers of cf I just mean that cfers r full sick and cf carriers are half sick so why not start off with the half sick it makes sense doesn't it!
  8. S

    When cf will no longer be an incurable disease??

    sometimes i wonder if curing cf patients is difficult why dont dr find something to cure cf carriers no carriers no cfers how is that?
  9. S

    When cf will no longer be an incurable disease??

    i hope that day come soon when cf would be equal to sugar
  10. S

    When cf will no longer be an incurable disease??

    how long do u think it would take when they will find cure for cf and no human being on this earth will die out of cf share
  11. S

    When cf will no longer be an incurable disease

    how long according to u would it take when they will find cure for cf and no person on the earth will die from cf
  12. S

    Cf major vs CF minor

    means there must be some thing wrong going on in cf carriers they dont notice it or feel it?
  13. S

    Any family from PAKISTAN here?

    hi people if u r on face book or have any personal e mail adress please send me so we can talk about the problems directly and have our ideas shared.
  14. S

    What time suits you for chat

    hello just wondering if we can chat here please write your suitable time for chatting here also write your country.
  15. S

    Cf major vs CF minor

    Why is that when a person has one mutated cf gene ie. cf minor they live normal lives and unfortunately when person get two mutated cf gene they get caught up in life threatening disease CF why is that so?what is the difference in normal person having both normal gene and a cf carrier?
  16. S

    Alternatives for treating Pseudo in my littlest one!

    How did u know u kid has PA blood test or what?
  17. S

    hypertonic saline Can you feel it?/

    How old is your daughter?
  18. S

    IV antibiotics periodically or as needed?

    I think should be taken as needed but ask your doc for best advice
  19. S

    IV antibiotics periodically or as needed?

    I think medicine should be given when needed other wise they body becomes resistant and meds don't work when u need them to work.When my daughter was diagnosed I met couple of docs some of them gave me a list of meds including antibiotics on alternate days and lots of nabs I skippped that doc...
  20. S

    Question about TOBI(tobramycin)

    So plz don't mind my asking too many question I m new to this cf thing and very concerned about my kid's health
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