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My doctor never told me that us cfers can get kidney stones from cf. I just wanted to remind you all to drink lots of water to avoid what I am dealing with. I have a 1cm stone in my kidney, which is huge. I did the ultra sonic waves surgery 2 weeks ago and the stone didnt break up. They put me...
Hello, just wondering if any cfers out there get tonsil stones in their tonsils. It where the pockets in your tonsils fill with a white, hard, little stones? Whenever I am feeling slightly run down, I get them. Wondering if they are cf related. Also I know 30% of woman with cf are not fertile...
I went to the doctor yesterday and they told me they are going to have me do the surgery in a little less then two weeks. I am going to do the sonic waves. Im a little sad because I just had my polyp surgery less then two months ago. I wish the cf doctors would of told me when I was younger to...
How long were you down for and what exactly did they do during the surgery? I still have hope that maybe I can pass it natually. Right now I am having minor back sharp pain that comes and goes. Like a light stab in the back every couple mins. When I was in the emergency room a month ago, they...
Hello, I found out about a month ago that I have a 9mm kidney stone that is still giving me some pain in my back. I have not seen a urlolgist yet but I have an appointment this monday. I have DD508 and am 26 years old. I really think this has something to do with the cf. I dont take medicine for...
Im sure it will not hurt you but it might lower your immune system. Everytime I am feeling like I slightly might get sick and then I drink, I end up sick.
Im sure it will not hurt you but it might lower your immune system. Everytime I am feeling like I slightly might get sick and then I drink, I end up sick.
For the women who had a baby, any early pregnancy signs. I too have DDf508, 26 years old, been trying for a very long time, and I am healthy. I have not missed my period but a couple days ago my breast started to feel like there was a painful lump by the armpit. A couple days later the other...
Hello, I too have wondered and gave this a lot of thought. I am 26 now and hoping to start trying in about a year and a half. My future husband has a 5 year old son who is a ton of work. It makes me wonder if I will be able to handle it in the future. I really do want a kid in the future too. I...
Hello, I too have wondered and gave this a lot of thought. I am 26 now and hoping to start trying in about a year and a half. My future husband has a 5 year old son who is a ton of work. It makes me wonder if I will be able to handle it in the future. I really do want a kid in the future too. I...
I could not imagine smoking with CF and Im a healthy CFer. How are you even able to function? I have pfts always in the 80-83% and I would feel like crap if I was smoking. I guess the only thing I can say is if you want to live bad enough, you will quit. Its all on you with what you want!
I could not imagine smoking with CF and Im a healthy CFer. How are you even able to function? I have pfts always in the 80-83% and I would feel like crap if I was smoking. I guess the only thing I can say is if you want to live bad enough, you will quit. Its all on you with what you want!
Does anyone know if the one mutation the drug is for is a mild or more severe case of CF? Cant wait for df508 to happen because that effects 90 percent of us!
Does anyone know if the one mutation the drug is for is a mild or more severe case of CF? Cant wait for df508 to happen because that effects 90 percent of us!
That is true biker, people need to keep their comments to themselves! I can not believe someone said that to you! I would of replied " I have a lung disease, jerk!!" lol and I feel the same right now too. Been a little under the weather for awhile. For the most part, I feel like I can control my...
That is true biker, people need to keep their comments to themselves! I can not believe someone said that to you! I would of replied " I have a lung disease, jerk!!" lol and I feel the same right now too. Been a little under the weather for awhile. For the most part, I feel like I can control my...
Thank you for the advice! I plan to start working out again after the move into the new house is over! Im excited to start again because I am seeing it is getting harder for me to do basic things even though I am healthy. I do not like feeling this way at all. I like hearing everyones story, its...
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