Cystic Fibrosis Forum (EXP)

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  1. K

    Just Wondering

    Thank you for the great advice! Yes about 3-4 years ago I would only go to clinic twice a year but now I am going when I should which is once every three months. They have me on albuterol but I have notice it does nothing to help me at all. I called them the other day on the joint pain and they...
  2. K

    Just Wondering

    Well I am a firm believer that doctors help us out a lot but we have the disease and we know our body the best! I think this website is awesome because it helps us compare notes with each other. Just wondering if there is anyone else out there like me. Here is my story....... I am a 26 year old...
  3. K

    Just Wondering

    Well I am a firm believer that doctors help us out a lot but we have the disease and we know our body the best! I think this website is awesome because it helps us compare notes with each other. Just wondering if there is anyone else out there like me. Here is my story....... I am a 26 year old...
  4. K

    What is your FEV1 Score?

    I am a 26 year old female. 5'7, 147lbs. My fev is always around 80-83 percent! At 18 I was always in the mid to low 90s.
  5. K

    What is your FEV1 Score?

    I am a 26 year old female. 5'7, 147lbs. My fev is always around 80-83 percent! At 18 I was always in the mid to low 90s.
  6. K

    Is my ex allowed to do this?

    That is a real good way for him to loose his custody! I would take action if I were you. He sounds like an idiot!
  7. K

    Is my ex allowed to do this?

    That is a real good way for him to loose his custody! I would take action if I were you. He sounds like an idiot!
  8. K

    more energy

    Are you going to get a lung transplant? I hope you feel better!
  9. K

    more energy

    Are you going to get a lung transplant? I hope you feel better!
  10. K

    more energy

    Are you going to get a lung transplant? I hope you feel better!
  11. K

    Mild Case of CF

    Hello, I too have a mild form of cf. One of my mutations is df508 and not sure of the other one. They want to test me again soon. I was dx at 15 years of age. Never had anything really bad wrong besides collic as a baby, and digestive problems all throughout my life. Even though I had the...
  12. K

    Mild Case of CF

    Hello, I too have a mild form of cf. One of my mutations is df508 and not sure of the other one. They want to test me again soon. I was dx at 15 years of age. Never had anything really bad wrong besides collic as a baby, and digestive problems all throughout my life. Even though I had the...
  13. K

    Mild Case of CF

    Hello, I too have a mild form of cf. One of my mutations is df508 and not sure of the other one. They want to test me again soon. I was dx at 15 years of age. Never had anything really bad wrong besides collic as a baby, and digestive problems all throughout my life. Even though I had the...
  14. K

    more energy

    Does anyone have any tips for getting more energy through the day. My lung function is in the 80s/3.0 and I run 3 miles about 3 times a week. That helps a little for some extra energy but most of the time its hard to make myself get up and do the things that need to get done. I get so lazy...
  15. K

    more energy

    Does anyone have any tips for getting more energy through the day. My lung function is in the 80s/3.0 and I run 3 miles about 3 times a week. That helps a little for some extra energy but most of the time its hard to make myself get up and do the things that need to get done. I get so lazy...
  16. K

    more energy

    Does anyone have any tips for getting more energy through the day. My lung function is in the 80s/3.0 and I run 3 miles about 3 times a week. That helps a little for some extra energy but most of the time its hard to make myself get up and do the things that need to get done. I get so lazy...
  17. K

    Question?

    Yes that lung function at age 54 is so good! Im 25 years old!
  18. K

    Question?

    Yes that lung function at age 54 is so good! Im 25 years old!
  19. K

    Question?

    Yes that lung function at age 54 is so good! Im 25 years old!
  20. K

    Question?

    Mine is about the same right now and I also have low energy but I still get everything done and I run 3 miles around 3 times per week. I just feel lazy all the time and it is hard to make myself get up. Like right now for example, I have so much to do but I just want to lay in bed. Know the feeling!
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