Cystic Fibrosis Forum (EXP)

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  1. J

    Childbirth at 65

    With all the new technology regarding fertility recently, a 65-year-old friend of mine was able to give birth. When she was discharged from the hospital and went home, I went to visit. 'May I see the new baby?' I asked 'Not yet,' She said 'I'll make coffee and we can visit for a while first.'...
  2. J

    Sleep Study-gonna be a long night

    Well, after his clinic visit 2 weeks ago the Pulmo ordered a sleep study. Then he shared that even if the results are not what he is expecting that he is likely going to ask the ENT to remove tonsles/adnoids anyways. So my 6yr old & I get the chance to spend the night in the hospital, yippee...
  3. J

    POLL: Single greatest impact

    New poll on CF advances.
  4. J

    Gas prices--I hate IKE!!!

    Just a quick gripe on Ike: Regular just south of Atlanta-- Last night--$3.49 Lunch today--$3.65 9PM today--$4.07 all at same station, all others around town are the same!!!! For my van, this is is more than $20/tank in less than a day <img src="i/expressions/face-icon-small-sad.gif" border="0">
  5. J

    POLL: Treatment consistency

    Ok, just curious how good we are all if we are anonymous & honest.
  6. J

    Church humor

    <b>Church </b> One Sunday morning, a mother went in to wake her son and tell him it was time to get ready for church, to which he replied, 'I'm not going.' 'Why not?' she asked. I'll give you two good reasons,' he said. '(1), they don't like me, and (2), I don't like them.' His mother...
  7. J

    Smilies??

    Anyone else notice our smilies are gone when we post??? I even tried typing one and it didn't convert.
  8. J

    Penguins Go to the Zoo

    A blonde woman drives to a gas station and has her tank filled up. The gas pumper spots two penguins sitting in the back seat of the car. He asks the driver, "What's up with the penguins in the back seat?" The woman in the car says "I found them. I asked myself what to do with them, but I...
  9. J

    Earthquake near LA

    <a target=_blank class=ftalternatingbarlinklarge href="http://www.msnbc.msn.com/id/25918120/">quake news</a> Just checking on all our friends in the LA area, looks like they are saying no real damage/injuries so hopefully not to much going on. On a lighter note: if it just lasted a bit longer...
  10. J

    Letter to Employees (a bit mature)

    Memo To All Employees Dear Employee: As a result of the reduction of money budgeted for departmentareas, we are forced to cut down on our number of personnel. Under this plan, older employees will be asked to take early retirement, thuspermitting the retention of younger people who represent...
  11. J

    Kangaroo Pump Supplies--Free

    When we got M, he was g-tube dependent (Mic-key); however we have not used the pump since he came home as we discovered something amazing: If you just feed him and deal with the CF poop instead of starving him so he wouldn't; then he gains weight w/o needing night-feedings <img...
  12. J

    Super-posters (OT)

    Ok, I have harassed my wife for years as she is one on several other boards but my question is this: This is the only board I'm on, I have been here 2 months and seem to spend a lot of time reading/browsing but have only 50 posts. Yet some of you have crossed the 2-3K mark and simple math...
  13. J

    How to tell when your neb compressor needs replaced

    Ok, this is a dumb question, so sorry. It was mentioned to us that the compressor for our son's neb will wear out and to let the clinic know when we need a new one. How do we know? I doesn't have any sign that lights up and says get a new one <img...
  14. J

    We found the answer...

    we now know where our son's gallbladder went. While in the hospital 2 weeks ago we had an U/S and the tech looked at me very seriously and asked 'does he have a gallbladder?'. Needless to say, I think I surprised her with "I think so...." Having adopted him when he was 6 we didn't get full...
  15. J

    Resistant C. Diff becoming more common

    This made the front page of MSNBC a bit ago that c. diff is showing up more often and developing resistant strains<img src="i/expressions/face-icon-small-shocked.gif" border="0"> <a target=_blank class=ftalternatingbarlinklarge...
  16. J

    Are they all this clueless on CF?

    Ok, my son & I have been in the hospital since Monday evening for a tune-up & testing. He went NPO from Mon bedtime until 3PM yesterday so they could sedate him for a PICC, and then again from 4AM-11AM today for a chest CT. This means we have missed at least 3 meals and countless snacks in the...
  17. J

    Dr. wants a 2-week tune-up

    Ok, our son came home last week and had his first clinic visit in Atlanta on Monday. The Dr was not pleased with the care he has been getting at his old clinic. They had been obsessed with a couple of aspects, primarily his bowel/continence issues, and ignored everything else. Including...
  18. J

    Yep.....

    he has CF! We picked up our son yesterday being a dad, I had to check and licked him!!!! Not much doubt since he has gene test confirmation and huge case history, but we can rest assured he has it. Just thought I'd share a laugh as my wife about died when I did it. Tom
  19. J

    New to site

    Hi, I've been lurking for a while, trying to find a place online to network and meet other parents and it looks like this is a good place to start. A quick introduction, my wife & I are the parents of 7 kids (4 boy, 3 girl). We have just reached the culmination of the process to adopt a 6yr...
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