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I am trying to write my second attempt of my letter to my donor and I am having a little trouble so I could use some help. It has been 2 1/2 years since my transplant and I have been extremely reluctant to write to my donors. I have had alot of guilt surrounding my transplant because it has...

I am considering trying some new things to boost my PFT's and my overall strength and how I feel. Does anyone swim as a form of excersize? Have you found that it is helpful CF wise? 26 w/ CF/CFRD/double lung tx

I was wondering if anyone had any information about having CF and being on Medicare. I am currently on both my parents Kaiser insurance as a disabled dependent as well as medicare through California disability. Once I graduate from college in May I will be taken off my parents insurance and...

I think my enzymes have stopped working. For the past few weeks I have been having the worst gas I've ever had in my life. It got so bad last night my boyfriend had to sleep in our spare bedroom, I literally stunk him out of the room, oh the things we CFers deal with. My question is what...

I am currently looking towards the future, what I'm going to do and how I'm going to make a living. After 8 years in college I will finally be graduating college in May. After I graduate I would like to go into a teaching credential program and get a secondary teaching credential to teach...

I am currently living in California and am on disability. I only get about $860 which is extremely hard to live on. I have heard of people getting disability and working part time. Does anyone have experience with this, or know more about the California disability system. Any information...

Has anyone ever heard of a person with CF and their husband or partner being able to adopt? My boyfriend and I want to have kids but I can't since I have already had a transplant and all my doctors say it will be too dangerous for me to carry a child. It's kind of hard for me to imagine an...

What is your post transplant excersize routne? How much do your doctors want you to excerisize? I am 2 1/2 years post transplant and I am currently in rejection and will need a nother double lung transplant sooner rather than later. I am doing everything I can to try to keep this first set of...

I am currently in the process of trying to get more excersize done in order to raise my pulminary function (currently my pulminary function is between 35% and 40%. I am a naturally very very competitive person and am extremely hard on myself and I find that I don't know when I have pushed...

Tonight I had one of the most discouraging nights I've had in a long time. It's been two and a half years since I had my transplant and it has only been within the last six months that my pulimnary function has majorly dropped and I found out that I am going to need a second transplant sooner...

I have been on my transplant meds now for two and a half years and I have had all sorts of side effects, most unfortunately of them being my hair has completely changed. It went from being think and wavy, to dry, brittle, thin and bone straight. It has started to get a little bit better but I...

I am 26 years old and have both cystic fibrosis and cystic fibrosis related diabetes and had a double lung transplant in September of 2010. For about 5 years now I have had serious problems with my bones. My ankles and wrists are particularly weak and my knees are the worst. At times I can...

I have been living with cystic fibrosis and cystic firbosis related diabetes for most of my life (I got diabetes when I was 13). You think I would be used to dealing with all of the medical stuff by now but for some reason it only seems to get harder. I got a transplant two years ago and I...

I had a double lung transplant 2 years ago this September 3rd. I have been doing really well since my transplant only a few minor complications. I am 26 years old and still in college pursuing a double degree in Anthropology and History however I am coming to realize that even though I will...