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Hi there, Let me 1st tell each of you thank you for all your advise you have given me in the last couple months. We are doing much better! We met with the doctors that perform PGD, and our future looks brighter. I just have to get my BMI way down...So, I have made up my mind that if my son has...

Hi there, Let me 1st tell each of you thank you for all your advise you have given me in the last couple months. We are doing much better! We met with the doctors that perform PGD, and our future looks brighter. I just have to get my BMI way down...So, I have made up my mind that if my son has...

Hi there, Let me 1st tell each of you thank you for all your advise you have given me in the last couple months. We are doing much better! We met with the doctors that perform PGD, and our future looks brighter. I just have to get my BMI way down...So, I have made up my mind that if my son has...

My son is almost 5 months old now..and doing very well. We just had our monthly CF clinic, and I had question for the team, but forgot to ask. So, I thought I ask for some help on here. I'm curious when the doctors generally start children on nebulizers? His lungs status says: Exam...

Hi my 4 month old sons mutations are 1898+1G>A....and 258delT. I have found information on the 1898+1G>A, but even the doctors at childrens could find little on the 258delT...Anyone have this mutation or have a child with it? Thanks for your help....Just curious...what class it is in or if there...

I know I should be posting this in the pregnancy forum. But, I wanted advice from you guys as well. I had my first child Johnny this last August. He was born with a meconnium illius. We didn't know he had CF until the day we brought him from the hospital. That was in the end of September. That...

My son has CF...These are the two mutations they found 2585delT 1898+1G>A heterozygote I can't find anything about these two...I know the 2585delt is rare..the doc at childrens couldn't even find anything on it on monday..

Anyone know anything about this mutation....2585delT our sons combination now is 1898+1G>A, 2585delT

Hi there, I feel silly for posting again..But, I have so many questions. Okay, today we had our 2nd visit to the CF Clinic. Everything went well, but I asked the Social Worker some tough questions. I got her to answer some questions, but have no real way to fix anything. They explained to us the...

Hi there, I was wondering if anyone could give me any info about this mutation..My son sweat test came back with this one..They are doing a more intense one to find the mutation he got from my husband. When I was pregnant I came back as a carrier..my husband was tested then and came back NOT...