Cystic Fibrosis Forum (EXP)

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  1. K

    oxygen blah blah blah

    im not too well at the moment. not well at all <img src="http://forums.vogue.com.au/images/smilies/newsmiles/eusa_wall.gif">. my hearts been racing like mad and ive been feeling so weak the past week due to low oxygen. they must be dropping even more when i sleep because ive had headaches when i...
  2. K

    most expensive dog bowl??

    hell yeah! i want! https://secure13.ozhosting.com/dogsandthecity/shopasp/shopexd.asp?id=104 https://secure13.ozhosting.com/dogsandthecity/shopasp/shopexd.asp?id=106 perfect for those special occasions, dont you think? rofl! *sorry i cant get the link button to work for some odd reason
  3. K

    GOOOOO EAGLES!

    for the aussies!
  4. K

    just like to announce

    that my port has gone missing. GOD i have SUCH bad luck with ports. if its still missing tomorrow i will get an x ray to see where on earth its gone. im hoping that for some weird reason that i magically grew fat over it in the past few hours and that it hasnt gone missing. i have a feeling...
  5. K

    steve irwin, crocodile hunter, has died

    <a target=_blank class=ftalternatingbarlinklarge href="http://www.news.com.au/story/0,10117,20349888-2,00.html?from=public_rss ">http://www.news.com.au/story/0....html?from=public_rss </a> how terrible <img src="i/expressions/face-icon-small-sad.gif" border="0">
  6. K

    something REALLY strange is happening to my port..

    ... its making noise. yes, you heard right, its making noise. it ticks like a watch but really fast and after about 6 to 10 ticks it takes a second break. i thought i was going mad this morning when i was making up my drugs. i thought it was the watch sitting next to me that i use to time my...
  7. K

    enzymes for foods with carbs etc

    ok, so everyone knows the story about enzymes and fat of course. but, what about carbs? enzymes are needed to break those down too but for some reason no one ever focuses on that. so should we be taking enzymes for foods with minimal fat but alot of carbs in them? just trying to figure out why i...
  8. K

    port issues... AGAIN

    well, it has to be moved. i can feel the the port fine but my nurse was clueless as to where it was despite me pointing it out a million times. she put the needle in the wrong spot twice so i said "STOP! i will just get it moved". it absolutely kills, she was so rough with it. she was digging...
  9. K

    heart problems

    who here has heart problems??? im thinking about getting mine checked out. what was just the odd flutter here and there has now turned into frequent flutters and now when my heart rate goes up i feel REALLY ill, like im going to throw up and pass out. its as if my heart cant handle going fast...
  10. K

    warning about pill planners

    lately ive been using weekly pill planners. you know those pill holders that have 7 boxes for each day of the week. a few days ago my heartburn and reflux was getting really bad despite taking my pariet. i couldnt understand why. then i had a thought, perhaps they were going off in the pill...
  11. K

    you know that bad feeling i had about my port surgery???

    yeah well looks like i had every right to feel that way! chances are, well, im 99.9% sure, that it is going to have to be moved. its been put far too low. although it doesnt seem to be too much fat where it is right now and is actually under the 2cm limit, the port just refuses to show up...
  12. K

    attn admin

    ive thought of a good idea. could we have a sticky where people could post pics of their ports? i was thinking just then that its so hard to get good pics of peoples ports, accessed and deaccessed. ive pretty much searched google high and low in the past and couldnt find pictures that were close...
  13. K

    port surgery tomorrow - UPDATE

    so, i have my old port removed and replaced tomorrow, as well as having a big stretched scar cut out. i have a <b>really</b> bad feeling about it. much more than my other surgeries. i dont know why. perhaps its because im not feeling well at the moment but that doesnt seem to feel like the...
  14. K

    attn: liz

    any word on your blood tests yet?
  15. K

    WAY too many categories

    WAY to many categories anyone else agree? there are so many that people dont even bother checking half of them anymore and people arent getting their questions answered. alot of them are just dead categories too. anyway, here are my suggestions. 1. get rid of young peoples section. its...
  16. K

    update on dressing situation

    ok, so i think im reacting to the fixomull too. unless the area has been so irritated that im going to react to anything that is put on. i took the fixomull off then because i was seeing ooze coming through and i thought the rash was uhh, erupting. i was right. its a weepy mess. im going to call...
  17. K

    dressing help!

    ok so my silly body has decided to react to almost every dressing i put over my port. tegardem, opsite iv 3000, even hydrocoll! so now i have to use the most teeny tiny amount fixomull as a dressing. but as some of you know that comes on a roll and isnt sterile. anyone know of a fabric dressing...
  18. K

    results from my sleep study

    they said that i have mild sleep apnea which isnt the cause of my problems, but that i have little REM sleep and *edit* 'periodic limb movements', despite taking sleeping tablets that night. heres me thinking i only moved my legs when i was awake in bed. i need to get bloods done to check...
  19. K

    singulair

    has anyone tried this and had any luck? a girl who goes to the childrens hospital here was put on it as sort of an experiment for aspergillus and its helped her. seeing as alot of cf'ers show signs of asthma as well im unsure as to why more people arent on it? maybe it is cost playing a factor.
  20. K

    probiotic strains

    ive been doing some research on them and it seems a few strains are better for the lower intestines and survive longer than others. one mentioned was lactobacillus gg. has anyone taken that specific strain and found it better than lactobacillus acidophillus for bowel problems? i think the tablet...
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