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We live in North Carolina and are just beginning to see the H1N1 rear its ugly head here. How is this affecting CFers in other places. Any deaths? This is scary... Melissa

Hi, everyone...yes it is me again. I have MANY threads on this issue and my family members. I need some major wisdom and someone to help me stand up for my daughter. Lexi as you all know is 5 and is VERY sensitive to fragrances. She shows no immediate signs, but the next day is very...

I am interested in purchasing a steam mop for my laminant floors. We have to fake wood laminant floors throughout our home. Any suggestions? Melissa

I know that fragrances are terrible for CF patients and my daughter, Lexi, is very sensitive to smells. I was just wondering product names that you all use? Shampoo, conditioner, ect. Thanks, Melissa

My little Lexi is still coughing. Today completes 4 weeks that she has been on Iv Vanc and Ceftazadime. She had a bronch on June 5th that showed some Staph and a lot of Pseudomonas. Her PFT's were the best they had ever been at her check up last Tues. I just don't understand what is going...

Lexi has just gotten out of the hospital. She is still on home IV antibiotics. Her bronch cultures showed Staph, Pseudomonas, and Aspergillus. If we get rid of these, what are your suggestions on how to prevent reoccurance. Where are these bacteria located anyway?

Lexi went in for a bronchoscopy on June 5. She had been culturing a small amount of Pseudomonas and Staph in her lungs for about 2 years now. She has been on Tobi and Zithromax, but this was just kinda holding the bacteria down and not irradicating it. After her bronchoscopy they found about...

I need an opinion again. So my sister in law who always smells really strong has done better. I finally made her a cute little basket with all fragrance free products. She used them and still smelled really strong. I was so confused. I finally realized after going to her house to drop off...

As all of you know from my other threads...I have a time with compliance with my in laws. My mother in law keeps Lexi so that we don't have to put her in daycare, or I would just have told them all to stay away. They come around her sick, my FIL smokes and smells like and ashtray, my SIL still...

My daugher, Lexi, will be going in this summer for a tune up. This will be our first one since discharged after birth and diagnosis. She will be getting a picc line. How well do young children do with this? Can they play, swim, ect.? Thanks, Melissa

Hey everyone, you all probably remember my last post about my sister in law and her perfume issue. You all were very helpful and I can tell a difference since removing plug-ins, frangranced soaps, shampoos, lotions, washing powders, ect from our home. Lexi's congestion seems to have improved...

Lexi, my 5 year old daughter with CF will be starting school in the fall. My husband and I will be meeting with her principal next week to see what exact state programs she applies for...IEP, 504, a shadow. I was just wandering if any of you have any suggestions. What you would/wouldn't do...

Hello everyone, I need your advice on a family member. I am gonna try to be as specific as I can about the details so that you can see exactly my delima. I asked you all a while ago about some things that I could do around my home and for Lexi to help her stay well. One of those things was to...

My husband and I sat down last night and figured our medical bills for 2008. We spent over $18,000. This is such a strain for us. We have tried to get some assistance, but do not qualify for anything because we make too much money. I so wish they had some type of assistance for families with...

Hey I was just wondering if over the years you guys have leared what prevantative measures to take to prevent some of these terrible bacteria from getting in your lungs. I have done some research on psudomonas and b.cepacia, but nothing online tells how you can try to prevent these bugs. I...

Hi everyone....its been a while since Ive written or responded, but I do have a question for you all with CF. My daughter Lexi is 5. She has resistant staph and pseudomonas in her cultures. She has had this consitantly for 1-2 years. She takes Tobi every other month and Zithromax M,W,F. She...