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Hey everyone, I've been waking up in the morning completely short of breath, like to the point where I think I haven't been breathing at all for a minute or something. After that, I'm dizzy, I can't stand up for more than 3 minutes at at time without having to lay down. I don't know what to do...

Hey everyone, Lately I've been having awful awful adbominal pain mixed with burning abdominal pain, and a very painful spot about as low as my waist area right below like where your jeans button? The CF doc said it could be h. pylori or c. diff. My GI is looking more into the C. diff because I...

Hello everyone, I was just watching television and a commercial for Spiriva came on. It said it can improve lung function. Is anyone on it? If so, have you noticed a difference? Thanks!

Hey everyone, Thank you all SO much for your contribution in helping compile the 10 Most Important CF Facts!! Here are the details for those out there who are interested in going to the charity event. I'll refresh, my cousin Annie Ippolito put together a fundraiser for Cystic Fibrosis through...

Hello everyone! Sorry I've been on hiatus for the past few months, but I'm back! Anyway... My cousin is organizing a fundraiser to raise awareness about CF. She works for a dance company with kids and she's organized a recital in which the proceeds will go to the CF Foundation. She's asked me...

Hi everyone, as most of you know I'm still not feeling well. My cough is gross, my sinuses are killing me, etc. etc. I've been on home IVs since September and nothing seems to be working. My dad keeps pushing going into the hospital but I'm scared b/c I'd have to take time from work and school...

I'm in sort of a bit of a dilemma until I get my CT results back today. I've been on IV antibiotics for 3 weeks now and I got a follow up CT scan of the chest to make sure that the infection is gone. However, I'm supposed to be going into surgery tomorrow for a hernia!! What if my results come...

i think i'll post this up here to hear what you guys think of this because my doctor pretty much has no idea what is wrong with me. so here it goes... the only time i had pulmonary issues was when i was 18 and i was put on IVs. other than that i've had major gastric involvement. this past...

i was in the store the other day and saw smart water and saw that it had electrolytes in it. does anyone know if it has as much as or more than gatorade? if not, perhaps any ideas where we could find out? if it has as much or more, thats a GREAT substitute for those of us w/ diabetes. i can't...

hey guys, i just got diagnosed with diabetes, and this has been my first week on insulin. its SO much maintainance! i'm used to it b/c of the cf, but WOW. aside from the fact that my fingertips feel like pin cushions, as do my emotions. <img src="i/expressions/face-icon-small-sad.gif"...

UGH! I've been on and off IV's since September; right after I got my second hernia repair surgery. Now I went to the surgeon to see if it had come back (because it surely felt like it!) and he had said that the scar tissue from my first surgery back in 2000 is like wrapping itself into a tight...

I'm at work and I had to rant for a second... I've been on IV for like 8 weeks with a few days in between (home treatments). I've had my midline out for about a week or 2 so far and I feel congestion again so of course I'm freaking out again. I don't want to relapse AGAIN. However...not the...

Hello everyone! I know that some of you guys out there have digestive involvement but have mostly pulmonary issues. I have the opposite issues. I have more digestive involvement and liver issues and I have very mild pulmonary involvement. I do have my flair ups where I go on IV for it (just...