Cystic Fibrosis Forum (EXP)

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  1. C

    Vest

    Personally, I prefer good chest pt. There are others who prefer the vest. Now, there is good chest pt and bad chest pt. I am refering only to good chest pt... For me, good Chest PT is better for the following reasons: 1) The postural drainage positions of chest pt use gravity to help...
  2. C

    Vest

    Personally, I prefer good chest pt. There are others who prefer the vest. <br /> <br />Now, there is good chest pt and bad chest pt. I am refering only to good chest pt... <br /> <br />For me, good Chest PT is better for the following reasons: <br /> <br />1) The postural drainage positions...
  3. C

    compliance

    I grew up a 10, and am an 11 now. I was raised knowing that if I wanted to X, I had to do my meds. My dad did my CPT twice a day, everyday, from when I was very young, through age 18 when I went to school. Running on my high school teams helped me avoid the teen rebellion phase.... not only...
  4. C

    compliance

    I grew up a 10, and am an 11 now. I was raised knowing that if I wanted to X, I had to do my meds. My dad did my CPT twice a day, everyday, from when I was very young, through age 18 when I went to school. Running on my high school teams helped me avoid the teen rebellion phase.... not only...
  5. C

    compliance

    I grew up a 10, and am an 11 now. I was raised knowing that if I wanted to X, I had to do my meds. My dad did my CPT twice a day, everyday, from when I was very young, through age 18 when I went to school. Running on my high school teams helped me avoid the teen rebellion phase.... not only...
  6. C

    compliance

    I grew up a 10, and am an 11 now. I was raised knowing that if I wanted to X, I had to do my meds. My dad did my CPT twice a day, everyday, from when I was very young, through age 18 when I went to school. Running on my high school teams helped me avoid the teen rebellion phase.... not only...
  7. C

    compliance

    I grew up a 10, and am an 11 now. <br /> <br />I was raised knowing that if I wanted to X, I had to do my meds. My dad did my CPT twice a day, everyday, from when I was very young, through age 18 when I went to school. Running on my high school teams helped me avoid the teen rebellion...
  8. C

    Do you think Dr's should be at their patients funerals?

    Short answer: No I don't, but I wouldn't mind if mine was. Long answer: We have to remember that while we have 1, maybe 2 CF doctors to call our own, they usually have dozens of CF patients. I think CF patients (and parents) need to realize that this often creates a one-sided relationship...
  9. C

    Do you think Dr's should be at their patients funerals?

    Short answer: No I don't, but I wouldn't mind if mine was. Long answer: We have to remember that while we have 1, maybe 2 CF doctors to call our own, they usually have dozens of CF patients. I think CF patients (and parents) need to realize that this often creates a one-sided relationship...
  10. C

    Do you think Dr's should be at their patients funerals?

    Short answer: No I don't, but I wouldn't mind if mine was. Long answer: We have to remember that while we have 1, maybe 2 CF doctors to call our own, they usually have dozens of CF patients. I think CF patients (and parents) need to realize that this often creates a one-sided relationship...
  11. C

    Do you think Dr's should be at their patients funerals?

    Short answer: No I don't, but I wouldn't mind if mine was. Long answer: We have to remember that while we have 1, maybe 2 CF doctors to call our own, they usually have dozens of CF patients. I think CF patients (and parents) need to realize that this often creates a one-sided relationship...
  12. C

    Do you think Dr's should be at their patients funerals?

    Short answer: No I don't, but I wouldn't mind if mine was. <br /> <br />Long answer: We have to remember that while we have 1, maybe 2 CF doctors to call our own, they usually have dozens of CF patients. I think CF patients (and parents) need to realize that this often creates a one-sided...
  13. C

    VX-770

    This is incredibly exciting. I have been approached for the next phase, and if it can fit around June's big ride and moving, I will participate. I am pretty certain that G551D was selected because its an easier mutation to "fix". In G551D, CFTR protein is intact, but doesn't make it through...
  14. C

    VX-770

    This is incredibly exciting. I have been approached for the next phase, and if it can fit around June's big ride and moving, I will participate. I am pretty certain that G551D was selected because its an easier mutation to "fix". In G551D, CFTR protein is intact, but doesn't make it through...
  15. C

    VX-770

    This is incredibly exciting. I have been approached for the next phase, and if it can fit around June's big ride and moving, I will participate. I am pretty certain that G551D was selected because its an easier mutation to "fix". In G551D, CFTR protein is intact, but doesn't make it through...
  16. C

    VX-770

    This is incredibly exciting. I have been approached for the next phase, and if it can fit around June's big ride and moving, I will participate. I am pretty certain that G551D was selected because its an easier mutation to "fix". In G551D, CFTR protein is intact, but doesn't make it through...
  17. C

    VX-770

    This is incredibly exciting. I have been approached for the next phase, and if it can fit around June's big ride and moving, I will participate. <br /> <br />I am pretty certain that G551D was selected because its an easier mutation to "fix". In G551D, CFTR protein is intact, but doesn't...
  18. C

    unforgiving professors

    Double post... sorry! Chris m 27 w/cf
  19. C

    unforgiving professors

    Double post... sorry! Chris m 27 w/cf
  20. C

    unforgiving professors

    Double post... sorry! Chris m 27 w/cf
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