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The most important thing I see here is that you shouldn't be afraid to pass on the CF gene. As long as your spouse is tested negative, and as long as people are tested for such there isn't a problem with passing the gene on. We know more than we ever did. Any body should have a test done...
I don't know if this has been said yet because frankly I didn't take the time to read all the responses... but you have to remember the pancrease not working proberly is not the only thing keeping you from gaining weight. With CF you body is working harder to keep infections out, and all the...
I just had to stop in and comment. I actually have to run from my husband... sometimes I think something crawled up his [censored] and died... and I'm the one with CF!
<blockquote>Quote<br><hr><i>Originally posted by: <b>Anonymous</b></i><br>Superman,
Congrats! May I ask overall, how has your experience been since tx? Have you had a lot of rejection scares, or was that mainly in the first year or so?
Even if you have had some scares. Being here 8 add'l...
Thanks everyone. I truly hope that no one is afraid of transplant because it is truly an amazing gift.
Take care everyone!
<img src="i/expressions/rose.gif" border="0">
Today is my 8th year post transplant anniversary.
I just wanted to say that I hope everyone appreciates what they have, and I hope that one day CF can be cured. I know some people with CF get very sick; I've been there before, and it's not fun, but keep in mind we all have loved ones, and they...
Ok, my mouse went crazy... I wanted to say I love cooking, but I get tired of making food at times. I definitely want to take a cooking class to introduce me to new things and new combinations.
May 11th will be my eight year post transplant anniversary <img src="i/expressions/face-icon-small-happy.gif" border="0">
Let me know if any of you have questions
Sorry to hear that has happened to you, but I believe that if he couldn't handle it now, he couldn't handle it later either. What if you were together for years, and your health was great, but all of the sudden something happened, and you had never told him before that you had CF. That would...
I've had it most of my life, but it only hits me hard when I am hungry and can't get food into me right away.
After my transplant I actually went the oposite with the prednisone I was (am) taking. I was shocked that I couldn't drink a regular coke or eat candy, but since my levels of...
When I needed the port I had one in the same spot. I swam and sun-bathed as wells as lifted things... I never had a problem. It was taken out only because I have no need for it now that I'm just about 8 years post transplant. There are people, however, that can have problems. Just ALWAYS...
Funny you should ask such a thing. When I was diagnosed at age 7 my doctor insisted that I go to the hospital for two weeks out of every year. Of course my parents being frightened that I could die, they addmitted me without a thought. I did hate it though. But as I started getting older I...
I've had my share of hospital stays, and starting at such a young age I picked up on many things. There were times I would tell a nurse she wasn't doing something right, and she would get mad at me. It got to a point I'd tell her to leave and send my doctor in. It would always turn out that I...
<blockquote>Quote<br><hr><i>Originally posted by: <b>loucogringo</b></i><br>
I am a strong believer that injurying a muscle is better than losing your lungs.
What are your views on exercise?<hr></blockquote>
Absolutely. You lose your lungs you lose your life.
The one thing I know is that many people come to California while waiting for a transplant. California has a probram called GHPP Genetically Handicapped Peoples Program. This program is great with helping with any medical bills. My Kaiser policy didn't cover oxygen, and GHPP did, so I paid...
Did any of you know that the protocal for a transplant has changed. It use to be on a size, blood type, and other specific things that would be important for compatability. How besides all that it is on a point system. The person with the most points is at the top of the list for transplant...
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