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Update; ng tube out and iv out. Eating clear food diet. Peed 3 times, and now just waiting on the poop:) thanks again for all your prayers.

Update....hello from our "Hotel Room". (The Hopital) Well here is our update. Wed night went to ER for tummy ache, and puking. Once there we had x rays, and they got him to poop twice. They wanted to admit him in for observation. We refused and took him home for the night. That night Johnnys...

Being admitted now

Thanks everyone for your replys. I asked about miralax last night, and the er doctor wouldn't discuss it. They wanted us to stay, PERIOD. That was the end of discussion. I just wish I could of spoke to someone on our CF team. Johnny slept for 4 hrs once we got home. I gave him some orange...

Hi there, Well, yesterday Johnny started complaining of a tummy ache. He pooped yesterday at 3:00 p.m. it was a normal solid poop. Through the nightlast nighthe cried and fussed we were up every hour with him. This afternoon I tried getting him into all his different doctors. With no luck of any...

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Okay, I have it all set up thanks!! Found our Pulmozyme Co Pay card all set up! Now crossing fingers it works!

Okay, I have it all set up thanks!! Found our Pulmozyme Co Pay card all set up! Now crossing fingers it works!

Okay, I have it all set up thanks!! Found our Pulmozyme Co Pay card all set up! Now crossing fingers it works!

Hi there, On the phone again this morning. Looks like we are now just waiting on insurance to run it. Now that brings me to the next portion. Copay......We have never had a large copay on Pulmozyme. Maybe only $30.00 every three months. My question is now how to keep that. I know we have...

Hi there, On the phone again this morning. Looks like we are now just waiting on insurance to run it. Now that brings me to the next portion. Copay......We have never had a large copay on Pulmozyme. Maybe only $30.00 every three months. My question is now how to keep that. I know we have...

Hi there, <br /> <br />On the phone again this morning. Looks like we are now just waiting on insurance to run it. Now that brings me to the next portion. <br /> <br />Copay......We have never had a large copay on Pulmozyme. Maybe only $30.00 every three months. My question is now how to keep...

Hi there, On the phone again this morning. Looks like we are now just waiting on insurance to run it. Now that brings me to the next portion. Copay......We have never had a large copay on Pulmozyme. Maybe only $30.00 every three months. My question is now how to keep that. I know we have...

Hi there, On the phone again this morning. Looks like we are now just waiting on insurance to run it. Now that brings me to the next portion. Copay......We have never had a large copay on Pulmozyme. Maybe only $30.00 every three months. My question is now how to keep that. I know we have...

Hi there, <br /> <br />On the phone again this morning. Looks like we are now just waiting on insurance to run it. Now that brings me to the next portion. <br /> <br />Copay......We have never had a large copay on Pulmozyme. Maybe only $30.00 every three months. My question is now how to keep...

Thanks Teri.....If Cysticfibrosis.com had a like button, I would click it! OMG....Never have I had such bad service. Our insurance switched from Medco to Caremark. WOW, WOW!! Going to give them until tomorrow to fill this. If not I'm going to try using Cystic Fibrosis Pharmacy. I only need his...

Thanks Teri.....If Cysticfibrosis.com had a like button, I would click it! OMG....Never have I had such bad service. Our insurance switched from Medco to Caremark. WOW, WOW!! Going to give them until tomorrow to fill this. If not I'm going to try using Cystic Fibrosis Pharmacy. I only need his...

Thanks Teri.....If Cysticfibrosis.com had a like button, I would click it! OMG....Never have I had such bad service. Our insurance switched from Medco to Caremark. WOW, WOW!! Going to give them until tomorrow to fill this. If not I'm going to try using Cystic Fibrosis Pharmacy. I only need his...