Cystic Fibrosis Forum (EXP)

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  1. S

    Home from Hospital

    Hi- I'm home. Ahhh-my own pillow, my own bathroom, my doggie. I'm so glad I'm home. Yes-I feel terrible. But Id rather feel terrible here. So when I went in they thought I had tonsilitis. Meanwhile-the past week I caught a cold sore from my husband. He gets them all the time and I've managed to...
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    My appointment yesterday....

    Hey All, Ok, so I had my appointment at St. Vincent's yesterday. Where am I? Home or hospital? Home. Yeah!!! BUT......haha a big but..... To start off I'm seeking all advice here, any opinion is welcome. Ok, so I'm feelin good. No blood since last week. I'm taking deeper breaths than I've...
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    Update on the Blood...

    Hi. Today I'm not coughing up blood. I had a teeny streak but that's it. But last night I started to get this pain under my jaw/neck. And it woke me up at night too. So today I have this huge swollen gland under my jaw. It's killing me. Have any of you ever got that? And what does that mean...
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    Help Blood!

    Hey, This morning with my morning PT I coughed up more blood. I said last week it was teeny streaks here and there. Today it was alot more. There was blood in every cough. The difference today too is that I'm having these uncomfortable chest pains. When I breathe in and out in burns. So I...
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    Peter Campanale hook me up!

    Hi there, OK, so anytime I see an 'older' person with CF I always want to know more about them. I hope you don't mind that. But, obviously you have been very successful in handling your disease. So what's in your opinion has been essential to your health? What do you think has gotten you to...
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    Need someone to talk to

    Hi All, I'm very reserved about asking people to talk if I need a listening ear or shoulder to cry on. (other than my dog's) That's probably not a good thing. I need to ask more. But, today I'm very very depressed. And have no one to talk to right now. My husband loves me very much, but 1-he...
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    PFT question?

    OK, I've been doing PFTs for what, 20 yrs now? The FEV1 is air pushed out in the 1st second. The FVC is full volume capacity-or something close to that. And what's that 3rd number, the small airway number called again? Is the FEV1 the number they most look at? I don't know why I keep forgetting...
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    ok I don't want to start anything here...read if you like

    I just came across something that bothered me. I'm not trying to target anyone if they feel this way! I appreciate all opinions here ok. So don't get mad on me, b/c I have to ask this. But I can't get this out of my head. It really bothered me. Mostly b/c I've never come across anyone who...
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    Help me with this Hypertonic Saline!

    Heys guys- If any of u are on the hyp.saline can u help me? I'm on my regular Albuterol puffer and Pulmozyme. Do I do H saline first or Pulmozyme first? Thanks.
  10. S

    Today is the day.....

    Hi Guys! Well, I'm up and I can't sleep and I'm so nervous I can't eat. Today my hubby and I are going to my CF center to see the genetic counselor and talk with the fertility clinic and basically find out from my team if I'm healthy enough to try for a baby. I've been doing so much reading...
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    Christian's Got A User Name!!!!

    Hey Y'all, Just letting ya know I finally got a user name! It's about time! Not being 'let' in the chat area was the last straw! So now's my official membership. Do I have to take some club oaths or something? I was expecting more fanfare I guess.<img src="i/expressions/heart.gif" border="0">...
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