Cystic Fibrosis Forum (EXP)

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    TOBI...

    Do you guys lose your voice every time you're on TOBI? I work in a sales/customer service position...I'm on the phone and face to face with customers and corporate accounts all day, and it's awful every other month when I'm on TOBI and have no voice. I can tell my manager is somewhat annoyed as...
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    Team Boomer

    How do you actually JOIN Team Boomer? I saw the pledge and sponsor forms on their website, but I'm confused as to how I would actually join, and if people could pledge toward my run online? I know Sarah K. ran a marathon for Team Boomer, but not really sure about all the logistics and how to...
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    I HAVE A WEBPAGE TO RAISE $$ for CF!

    Okay, so I found a way to make a webpage to raise money for my marathon (yay!!!) I'm SO excited. Check it out if you have a chance. <a target=_blank class=ftalternatingbarlinklarge href="http://debrascfmarathon.pledgepage.org/">http://debrascfmarathon.pledgepage.org/</a> I wish it was easier...
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    Fundraising?

    Hey Everyone! I pretty much never post here, but I lurk occasionally. I'll be running a marathon in April, and I'm hoping to set up a website in order to raise money for CF for the marathon (cuz that's really why I'm doing it). Does anyone have any suggestions on how to go about setting up a...
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    What do you do

    During the school year I read/study/do homework, which works out great. However, during the summer I end up skipping a lot of treatments cuz I hate being tied down and not doing anything. I get bored watching TV...but Sudoku has kept me somewhat entertained, as well as occasional video games...
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    Nebulizers

    My nebulizer finally gave out yesterday, so I'm going to get a new one today. I have 2 travel ones (MicroAir Omron & The Pari Trek)...but I was wondering 1. What kind of nebulizers does everyone use? 2. Any reccomendations or advice before I go buy my new one? The one I had was probably 8...
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    T-shirt ideas?

    Hey guys, I'm running a half-marathon this weekend, and I wanted to make a t-shirt to wear with something to do w/ CF...maybe even put friends/people I know with CF or who had passed away from CF on the back... just wondering if anyone has any creative T-shirt ideas that I could do...
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    T-shirt ideas?!

    Hey guys, I'm running a half-marathon this weekend, and I wanted to make a t-shirt to wear with something to do w/ CF...maybe even put friends/people I know with CF or who had passed away from CF on the back... just wondering if anyone has any creative T-shirt ideas that I could do? Thanks...
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    Hurricane Rita

    Is anyone else going to be affected by Hurricane Rita?? I'm from Houston (I'm going to school in Waco right now) but my family is evacuating in a few hours, they have boarded up our windows, etc. I'm scared! Just wondering if it was going to affect anyone else... Debra
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    do i need enzymes?

    I'm currently not on any enzymes. I was diagnosed a few months ago and my doctor things I'm pancreatic sufficient, I think mainly because I have no trouble maintaining my weight (I am 5'6" and 145lbs). However, I"m starting to wonder. Before being diagnosed I had SEVERE constipation (or bowel...
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    Asperigillus flavus???

    The last time I had a culture I cultured Pseudomonas. My most recent culture came back negative for Pseudomonas, but apparenty I have Apergillus flavus. Does anyone else culture this? I've never heard of it. if so, what kind of treatment do you do for it? Any help/info would be greatly...
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    sinus infection

    I get really bad sinus infections a lot, and I currently have one right now. I went to the CF center yesterday and was hoping my doctor would give me something for it, but she didn't. However, she tell me to try squirting pulmozyme up my nose. I know it's not made for that, but she has had other...
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    TOBI

    Hey everyone, I was diagnosed a few months ago w/ CF and I have just started using TOBI a few weeks ago. I was curious to see if anyone else experienced hoarseness, or loss of voice as a side effect? If so, I was also wondering how long it lasts for? I coach a swim team, and it's hard to talk...
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