Search results

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Tisha</b></i> Actually, now reading Jacobus's post I remembered something. I was on Colistin for a lot of years (8?) and suddenly started developing a lot of out-of-breathlessness. Due to a flight in which they lost my luggage and...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Tisha</b></i> Actually, now reading Jacobus's post I remembered something. I was on Colistin for a lot of years (8?) and suddenly started developing a lot of out-of-breathlessness. Due to a flight in which they lost my luggage and...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>dbsholes</b></i> "Does anyone know can I demand all these tests? Or if they say no, is that it?" YES!! Demand, kick, scream, threaten. Be an absolute pain in the arse if you have to. It's YOUR life afterall - not theirs. You HAVE to...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>dbsholes</b></i> "Does anyone know can I demand all these tests? Or if they say no, is that it?" YES!! Demand, kick, scream, threaten. Be an absolute pain in the arse if you have to. It's YOUR life afterall - not theirs. You HAVE to...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>jacobus</b></i> Inhaled Tobi and Coly leave me with extreme shortness of breath. The strange thing is that it doesn't kick in until about day 5 or 6 of treatment, then it's like a smack in in the face. If I remove the nebs, I go back...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>jacobus</b></i> Inhaled Tobi and Coly leave me with extreme shortness of breath. The strange thing is that it doesn't kick in until about day 5 or 6 of treatment, then it's like a smack in in the face. If I remove the nebs, I go back...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>dbsholes</b></i> Keely, I agree with the above post from jdmd about ABPA. The only time in my life when my PFTs took a severe dive was a result of ABPA - which I hadn't even heard of before then. Aspergillis is the mold that grows on...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>dbsholes</b></i> Keely, I agree with the above post from jdmd about ABPA. The only time in my life when my PFTs took a severe dive was a result of ABPA - which I hadn't even heard of before then. Aspergillis is the mold that grows on...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>jdmd</b></i> I would definitely look into ABPA (allergic bronchopulmonary aspergillosis). To do this, they look at your IgE levels (sky high in ABPA) and specific IgG antibodies to aspergillus. I had ABPA and when it is active, it...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>jdmd</b></i> I would definitely look into ABPA (allergic bronchopulmonary aspergillosis). To do this, they look at your IgE levels (sky high in ABPA) and specific IgG antibodies to aspergillus. I had ABPA and when it is active, it...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>jdmd</b></i> I would definitely look into ABPA (allergic bronchopulmonary aspergillosis). To do this, they look at your IgE levels (sky high in ABPA) and specific IgG antibodies to aspergillus. I had ABPA and when it is active, it...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>jdmd</b></i> I would definitely look into ABPA (allergic bronchopulmonary aspergillosis). To do this, they look at your IgE levels (sky high in ABPA) and specific IgG antibodies to aspergillus. I had ABPA and when it is active, it...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>dbsholes</b></i> Keely, Your post really pulled at my heart-strings. I feel so bad for you. But something is almost certainly going on to cause this sudden (and severe) drop in your PFTs. All the advise you have received so far is...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>dbsholes</b></i> Keely, Your post really pulled at my heart-strings. I feel so bad for you. But something is almost certainly going on to cause this sudden (and severe) drop in your PFTs. All the advise you have received so far is...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>rmotion</b></i> Yeah the blood sugar is a good thing to look at. Also it could be inflammation and obviously what bugs are there. The big thing for me is nutritional issues and food allergies. We are sensitive to so many foods that it...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>rmotion</b></i> Yeah the blood sugar is a good thing to look at. Also it could be inflammation and obviously what bugs are there. The big thing for me is nutritional issues and food allergies. We are sensitive to so many foods that it...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Printer</b></i> Keely: I recently had to change CF Clinics because I strongly felt that the CF Doctor I was seeing was not listening to me. Now I'm 72 and much older than that Doctor, and I have two college degrees, so I can only...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Printer</b></i> Keely: I recently had to change CF Clinics because I strongly felt that the CF Doctor I was seeing was not listening to me. Now I'm 72 and much older than that Doctor, and I have two college degrees, so I can only...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Printer</b></i> Keely: I recently had to change CF Clinics because I strongly felt that the CF Doctor I was seeing was not listening to me. Now I'm 72 and much older than that Doctor, and I have two college degrees, so I can only...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Printer</b></i> Keely: I recently had to change CF Clinics because I strongly felt that the CF Doctor I was seeing was not listening to me. Now I'm 72 and much older than that Doctor, and I have two college degrees, so I can only...