Cystic Fibrosis Forum (EXP)

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  1. J

    Combo Vertex study

    Is anyone here on that study? I have some questions for you. Thanks! <img src="i/expressions/face-icon-small-smile.gif" border="0">
  2. J

    Combo Vertex study

    Is anyone here on that study? I have some questions for you. Thanks! <img src="i/expressions/face-icon-small-smile.gif" border="0">
  3. J

    What is your FEV1 Score?

    My most recent was 80% after being on antibiotics for 7 weeks, raised from 62%.  Do most people report theirs after taking albuterol or without?
  4. J

    What is your FEV1 Score?

    My most recent was 80% after being on antibiotics for 7 weeks, raised from 62%. Do most people report theirs after taking albuterol or without?
  5. J

    What is your FEV1 Score?

    My most recent was 80% after being on antibiotics for 7 weeks, raised from 62%. Do most people report theirs after taking albuterol or without?<BR>
  6. J

    eflow issue

    My eflow keeps shutting off while I am using it.  It flashes the problem with connection between it and the handheld piece with the grey wire.  Anyway, I have disconnected and reconnected everything multiple times, cleaned it thoroughly with soap, water, and the head with alcohol, as well as...
  7. J

    eflow issue

    My eflow keeps shutting off while I am using it. It flashes the problem with connection between it and the handheld piece with the grey wire. Anyway, I have disconnected and reconnected everything multiple times, cleaned it thoroughly with soap, water, and the head with alcohol, as well as...
  8. J

    eflow issue

    My eflow keeps shutting off while I am using it. It flashes the problem with connection between it and the handheld piece with the grey wire. Anyway, I have disconnected and reconnected everything multiple times, cleaned it thoroughly with soap, water, and the head with alcohol, as well as...
  9. J

    If you ever test positive for CF is that a guarantee?

    Thanks, guys!  I will advise my friend that there are false positives, but that I would insist on further tests (sweat or genetic) to be sure.  <img src="i/expressions/face-icon-small-smile.gif" border="0">
  10. J

    If you ever test positive for CF is that a guarantee?

    Thanks, guys! I will advise my friend that there are false positives, but that I would insist on further tests (sweat or genetic) to be sure. <img src="i/expressions/face-icon-small-smile.gif" border="0">
  11. J

    If you ever test positive for CF is that a guarantee?

    <BR>Thanks, guys! I will advise my friend that there are false positives, but that I would insist on further tests (sweat or genetic) to be sure. <img src="i/expressions/face-icon-small-smile.gif" border="0">
  12. J

    How often do you get lung scans?

    Once a year, unless I am hospitalized and then sometimes my doc will do another.
  13. J

    How often do you get lung scans?

    Once a year, unless I am hospitalized and then sometimes my doc will do another.
  14. J

    How often do you get lung scans?

    Once a year, unless I am hospitalized and then sometimes my doc will do another.<BR>
  15. J

    If you ever test positive for CF is that a guarantee?

    <P>When I was tested for CF as an infant at two days old, I tested positive.  Then, two weeks later they retested and it was negative.  They said that you can have a false positive that young.  Then, when I was 16 months old, a sweat test confirmed it and I was finally diagnosed with CF.  Also...
  16. J

    If you ever test positive for CF is that a guarantee?

    <P>When I was tested for CF as an infant at two days old, I tested positive. Then, two weeks later they retested and it was negative. They said that you can have a false positive that young. Then, when I was 16 months old, a sweat test confirmed it and I was finally diagnosed with CF. Also, that...
  17. J

    If you ever test positive for CF is that a guarantee?

    <P>When I was tested for CF as an infant at two days old, I tested positive. Then, two weeks later they retested and it was negative. They said that you can have a false positive that young. Then, when I was 16 months old, a sweat test confirmed it and I was finally diagnosed with CF. Also, that...
  18. J

    FEV1 with or without albuterol

    How much difference do you see in your FEV1 percent with albuterol versus without albuterol? I always seem to do mine with albuterol and never get the comparison...
  19. J

    FEV1 with or without albuterol

    How much difference do you see in your FEV1 percent with albuterol versus without albuterol? I always seem to do mine with albuterol and never get the comparison...
  20. J

    FEV1 with or without albuterol

    How much difference do you see in your FEV1 percent with albuterol versus without albuterol? I always seem to do mine with albuterol and never get the comparison...
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