Cystic Fibrosis Forum (EXP)

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  1. L

    Desensitization?

    Hey Sonia I have been desensitized dozens of times..both IV and orally. Just like Mary says they start you at a very teeny dose of the medication and every 15-20 minutes they give another dose that has more of the medication in it. Sometimes there are 12-14 doses in a desensitization. The last...
  2. L

    Desensitization?

    Hey Sonia I have been desensitized dozens of times..both IV and orally. Just like Mary says they start you at a very teeny dose of the medication and every 15-20 minutes they give another dose that has more of the medication in it. Sometimes there are 12-14 doses in a desensitization. The last...
  3. L

    Desensitization?

    Hey Sonia I have been desensitized dozens of times..both IV and orally. Just like Mary says they start you at a very teeny dose of the medication and every 15-20 minutes they give another dose that has more of the medication in it. Sometimes there are 12-14 doses in a desensitization. The last...
  4. L

    Desensitization?

    Hey Sonia I have been desensitized dozens of times..both IV and orally. Just like Mary says they start you at a very teeny dose of the medication and every 15-20 minutes they give another dose that has more of the medication in it. Sometimes there are 12-14 doses in a desensitization. The last...
  5. L

    Desensitization?

    Hey Sonia I have been desensitized dozens of times..both IV and orally. Just like Mary says they start you at a very teeny dose of the medication and every 15-20 minutes they give another dose that has more of the medication in it. Sometimes there are 12-14 doses in a desensitization. The last...
  6. L

    VX-770??

    Hey Casey. I was on the Phase II part of this study drug. The data from that phase was very very hopeful. The pill will help treat the 'cause' of CF instead of the 'symptoms'..like Tobi treats psuedomonas, pulmozyme thins the mucus. VX-770 will help alleviate those symptoms. Read up on it in...
  7. L

    VX-770??

    Hey Casey. I was on the Phase II part of this study drug. The data from that phase was very very hopeful. The pill will help treat the 'cause' of CF instead of the 'symptoms'..like Tobi treats psuedomonas, pulmozyme thins the mucus. VX-770 will help alleviate those symptoms. Read up on it in...
  8. L

    VX-770??

    Hey Casey. I was on the Phase II part of this study drug. The data from that phase was very very hopeful. The pill will help treat the 'cause' of CF instead of the 'symptoms'..like Tobi treats psuedomonas, pulmozyme thins the mucus. VX-770 will help alleviate those symptoms. Read up on it in...
  9. L

    VX-770??

    Hey Casey. I was on the Phase II part of this study drug. The data from that phase was very very hopeful. The pill will help treat the 'cause' of CF instead of the 'symptoms'..like Tobi treats psuedomonas, pulmozyme thins the mucus. VX-770 will help alleviate those symptoms. Read up on it in...
  10. L

    VX-770??

    Hey Casey. I was on the Phase II part of this study drug. The data from that phase was very very hopeful. The pill will help treat the 'cause' of CF instead of the 'symptoms'..like Tobi treats psuedomonas, pulmozyme thins the mucus. VX-770 will help alleviate those symptoms. <br /> <br />Read up...
  11. L

    CF Patient Assistance Foundation

    Yeah Julie I heard about this at the NACFC. Should be cool and very helpful for those who are seeking assistance. Thanks for posting! Rock CF, Em
  12. L

    CF Patient Assistance Foundation

    Yeah Julie I heard about this at the NACFC. Should be cool and very helpful for those who are seeking assistance. Thanks for posting! Rock CF, Em
  13. L

    CF Patient Assistance Foundation

    Yeah Julie I heard about this at the NACFC. Should be cool and very helpful for those who are seeking assistance. Thanks for posting! Rock CF, Em
  14. L

    CF Patient Assistance Foundation

    Yeah Julie I heard about this at the NACFC. Should be cool and very helpful for those who are seeking assistance. Thanks for posting! Rock CF, Em
  15. L

    CF Patient Assistance Foundation

    Yeah Julie I heard about this at the NACFC. Should be cool and very helpful for those who are seeking assistance. Thanks for posting! <br />Rock CF, <br />Em
  16. L

    Allergic to port dressing ...

    I used to be allergic to Tegaderm but now I can tolerate it. They used to replace that with something else, the name is slipping right now. It took like 2-3 square sheets to cover the area. But man I would get big blisters and itchy skin to boot. If I think of the name I'll let you know!
  17. L

    Allergic to port dressing ...

    I used to be allergic to Tegaderm but now I can tolerate it. They used to replace that with something else, the name is slipping right now. It took like 2-3 square sheets to cover the area. But man I would get big blisters and itchy skin to boot. If I think of the name I'll let you know!
  18. L

    Allergic to port dressing ...

    I used to be allergic to Tegaderm but now I can tolerate it. They used to replace that with something else, the name is slipping right now. It took like 2-3 square sheets to cover the area. But man I would get big blisters and itchy skin to boot. If I think of the name I'll let you know!
  19. L

    Allergic to port dressing ...

    I used to be allergic to Tegaderm but now I can tolerate it. They used to replace that with something else, the name is slipping right now. It took like 2-3 square sheets to cover the area. But man I would get big blisters and itchy skin to boot. If I think of the name I'll let you know!
  20. L

    Allergic to port dressing ...

    I used to be allergic to Tegaderm but now I can tolerate it. They used to replace that with something else, the name is slipping right now. It took like 2-3 square sheets to cover the area. <br /> <br />But man I would get big blisters and itchy skin to boot. <br /> <br />If I think of the name...
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