Cystic Fibrosis Forum (EXP)

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  1. J

    Great Strides

    was told this is not a good idea because other CFers could also be there even though it is outside. thoughts?
  2. J

    Great Strides

    was told this is not a good idea because other CFers could also be there even though it is outside. thoughts?
  3. J

    Great Strides

    was told this is not a good idea because other CFers could also be there even though it is outside. thoughts?
  4. J

    Great Strides

    was told this is not a good idea because other CFers could also be there even though it is outside. <br />thoughts?
  5. J

    MRSA

    Jess cultured MRSA about 3 years ago. she was slowly getting worse and worse but we couldn't quite figure out why. once we got the culture back and it was treated (Zyvox = evil, but it works) she has actually never been healthier. (knock wood) Really. she still cultures MRSA from time to...
  6. J

    MRSA

    Jess cultured MRSA about 3 years ago. she was slowly getting worse and worse but we couldn't quite figure out why. once we got the culture back and it was treated (Zyvox = evil, but it works) she has actually never been healthier. (knock wood) Really. she still cultures MRSA from time to...
  7. J

    MRSA

    Jess cultured MRSA about 3 years ago. she was slowly getting worse and worse but we couldn't quite figure out why. once we got the culture back and it was treated (Zyvox = evil, but it works) she has actually never been healthier. (knock wood) Really. she still cultures MRSA from time to...
  8. J

    MRSA

    Jess cultured MRSA about 3 years ago. she was slowly getting worse and worse but we couldn't quite figure out why. once we got the culture back and it was treated (Zyvox = evil, but it works) she has actually never been healthier. (knock wood) Really. she still cultures MRSA from time to...
  9. J

    MRSA

    Jess cultured MRSA about 3 years ago. she was slowly getting worse and worse but we couldn't quite figure out why. once we got the culture back and it was treated (Zyvox = evil, but it works) she has actually never been healthier. (knock wood) Really. <br />she still cultures MRSA from...
  10. J

    Added calories necessary for pancreatic sufficient?

    OMG I meant that Jess was Pancreatic Sufficient not PI. can ou tell me more about Coconut oil? how do you add it to your food. does it change the flavor?
  11. J

    Added calories necessary for pancreatic sufficient?

    OMG I meant that Jess was Pancreatic Sufficient not PI. can ou tell me more about Coconut oil? how do you add it to your food. does it change the flavor?
  12. J

    Added calories necessary for pancreatic sufficient?

    OMG I meant that Jess was Pancreatic Sufficient not PI. can ou tell me more about Coconut oil? how do you add it to your food. does it change the flavor?
  13. J

    Added calories necessary for pancreatic sufficient?

    OMG I meant that Jess was Pancreatic Sufficient not PI. can ou tell me more about Coconut oil? how do you add it to your food. does it change the flavor?
  14. J

    Added calories necessary for pancreatic sufficient?

    OMG I meant that Jess was Pancreatic Sufficient not PI. <br /> <br />can ou tell me more about Coconut oil? how do you add it to your food. does it change the flavor?
  15. J

    Manual CPT vs Vest?

    I LOVE the vest. we did manual PT for 6 years for Jess. but the Vest has enabled he to be much more self sufficient. Sometimes it's a little too passive and I have to remind her to up her settings or control her breathing, but it has allowed her to have some 'control' over her situation. I...
  16. J

    Manual CPT vs Vest?

    I LOVE the vest. we did manual PT for 6 years for Jess. but the Vest has enabled he to be much more self sufficient. Sometimes it's a little too passive and I have to remind her to up her settings or control her breathing, but it has allowed her to have some 'control' over her situation. I...
  17. J

    Manual CPT vs Vest?

    I LOVE the vest. we did manual PT for 6 years for Jess. but the Vest has enabled he to be much more self sufficient. Sometimes it's a little too passive and I have to remind her to up her settings or control her breathing, but it has allowed her to have some 'control' over her situation. I...
  18. J

    Manual CPT vs Vest?

    I LOVE the vest. we did manual PT for 6 years for Jess. but the Vest has enabled he to be much more self sufficient. Sometimes it's a little too passive and I have to remind her to up her settings or control her breathing, but it has allowed her to have some 'control' over her situation. I...
  19. J

    Manual CPT vs Vest?

    I LOVE the vest. we did manual PT for 6 years for Jess. <br />but the Vest has enabled he to be much more self sufficient. Sometimes it's a little too passive and I have to remind her to up her settings or control her breathing, but it has allowed her to have some 'control' over her situation...
  20. J

    Added calories necessary for pancreatic sufficient?

    My daughter is PI. she has a very slight build (but then again so did I at that age. but alas, no more) the Nutritionist has suggested upping her calories. We know that when she starts feeling unwell her appetite is the first sign and her weight starts to drop. think of the extra calories...
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