Cystic Fibrosis Forum (EXP)

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  1. M

    Doing cayston on the go

    We took a Disney trip when my 7 year old was on Cayston and we did it right in the corner of a resting area! When we were done i put the head into a tub of rubbing alcohol and poured bottled water over the rest of the neb. I then wiped it down with rubbing achohol wipes until we got back to the...
  2. M

    Weight Gain

    I would like to chime in... I am a mom of a 7 y/o cfer and I completely agree with Incomudrox and the others that think that filling up our young with junk food is just a diaster waiting to happen. CF or not- diabetes and other horrible auto immune diseases are on the rise in our kids. In my...
  3. M

    Weight Gain

    I would like to chime in... I am a mom of a 7 y/o cfer and I completely agree with Incomudrox and the others that think that filling up our young with junk food is just a diaster waiting to happen. CF or not- diabetes and other horrible auto immune diseases are on the rise in our kids. In my...
  4. M

    Should I keep giving her Cyproheptad?

    I just started cyproheptadine for my 7 yo too. I only give her 1/2 pill at night. She has gained 2 pounds so far. She wakes up hungary and eats like 3 big bowls of cereal that i add benecalorie for extra calories. So far so good! Blythe mom2 brinly
  5. M

    Should I keep giving her Cyproheptad?

    I just started cyproheptadine for my 7 yo too. I only give her 1/2 pill at night. She has gained 2 pounds so far. She wakes up hungary and eats like 3 big bowls of cereal that i add benecalorie for extra calories. So far so good! Blythe mom2 brinly
  6. M

    Should I keep giving her Cyproheptad?

    I just started cyproheptadine for my 7 yo too. I only give her 1/2 pill at night. She has gained 2 pounds so far. She wakes up hungary and eats like 3 big bowls of cereal that i add benecalorie for extra calories. <br />So far so good! <br /> <br />Blythe <br />mom2 brinly
  7. M

    Sports Organization Discriminating against my daughter w/CF

    Follow up- Thank you to those for your kind words of support- umm... for the rest of you! ;( The organization is run through the city therefore the ADA act is in place. I will of course not take that route because i cannot waste anymore energy on this! She is only 7years old and reasonable...
  8. M

    Sports Organization Discriminating against my daughter w/CF

    Follow up- Thank you to those for your kind words of support- umm... for the rest of you! ;( The organization is run through the city therefore the ADA act is in place. I will of course not take that route because i cannot waste anymore energy on this! She is only 7years old and reasonable...
  9. M

    Sports Organization Discriminating against my daughter w/CF

    Follow up- <br /> <br /> <br />Thank you to those for your kind words of support- umm... for the rest of you! ;( <br /> <br />The organization is run through the city therefore the ADA act is in place. I will of course not take that route because i cannot waste anymore energy on this! She is...
  10. M

    Sports Organization Discriminating against my daughter w/CF

    Follow up- Thank you to those for your kind words of support- umm... for the rest of you! ;( The organization is run through the city therefore the ADA act is in place. I will of course not take that route because i cannot waste anymore energy on this! She is only 7years old and reasonable...
  11. M

    Sports Organization Discriminating against my daughter w/CF

    Follow up- Thank you to those for your kind words of support- umm... for the rest of you! ;( The organization is run through the city therefore the ADA act is in place. I will of course not take that route because i cannot waste anymore energy on this! She is only 7years old and reasonable...
  12. M

    Sports Organization Discriminating against my daughter w/CF

    Follow up- <br /> <br /> <br />Thank you to those for your kind words of support- umm... for the rest of you! ;( <br /> <br />The organization is run through the city therefore the ADA act is in place. I will of course not take that route because i cannot waste anymore energy on this! She is...
  13. M

    Sports Organization Discriminating against my daughter w/CF

    <P>I posted this in adults too....</P> <P>I just cannot believe this! My daughter 7 years old is on a PAID (YES...I have paid $400.00 for her to cheer and to get this *****) local Football Little league cheerleading team. </P> <P>This is the deal and actual kicker- the head cheer coach WAS (due...
  14. M

    Sports Organization Discriminating against my daughter w/CF

    <P>I posted this in adults too....</P> <P>I just cannot believe this! My daughter 7 years old is on a PAID (YES...I have paid $400.00 for her to cheer and to get this *****)local Football Little league cheerleading team. </P> <P>This is the deal and actual kicker- the head cheer coachWAS (due to...
  15. M

    Sports Organization Discriminating against my daughter w/CF

    <P>I posted this in adults too....</P> <P><BR>I just cannot believe this! My daughter 7 years old is on a PAID (YES...I have paid $400.00 for her to cheer and to get this *****)local Football Little league cheerleading team. </P> <P>This is the deal and actual kicker- the head cheer coachWAS...
  16. M

    Sports Organization Discriminating against my daughter w/CF

    <P>I just cannot believe this! My daughter 7 years old is on a PAID (YES...I have paid $400.00 for her to cheer and to get this *****) local Football Little league cheerleading team. </P> <P>This is the deal and actual kicker- the head cheer coach WAS (due to this incident i cannot even look at...
  17. M

    Sports Organization Discriminating against my daughter w/CF

    <P>I just cannot believe this! My daughter 7 years old is on a PAID (YES...I have paid $400.00 for her to cheer and to get this *****)local Football Little league cheerleading team. </P> <P>This is the deal and actual kicker- the head cheer coachWAS (due to this incident i cannot even look at...
  18. M

    Sports Organization Discriminating against my daughter w/CF

    <P><BR>I just cannot believe this! My daughter 7 years old is on a PAID (YES...I have paid $400.00 for her to cheer and to get this *****)local Football Little league cheerleading team. </P> <P>This is the deal and actual kicker- the head cheer coachWAS (due to this incident i cannot even look...
  19. M

    HTS back ordered?

    I actually just switched my 7 yo to the lower 3% dosage and i would be happy to give the 7% that we do not need! Please pm me your address and i will send it NO CHARGE of course!n Assuming you are in the us <img src="i/expressions/face-icon-small-smile.gif" border="0"> Blythe mom2 brinly 7 yo...
  20. M

    HTS back ordered?

    I actually just switched my 7 yo to the lower 3% dosage and i would be happy to give the 7% that we do not need! Please pm me your address and i will send it NO CHARGE of course!n Assuming you are in the us <img src="i/expressions/face-icon-small-smile.gif" border="0"> Blythe mom2 brinly 7 yo...
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